Tingling: Common Symptom?

[edirish73]

Hello,Today I experienced my first round of tingling, basically in my hands and feet, very subtle and drove my attention completely away from the twitches (good thing!). I was wondering ¿ how common is tingling?, is it a come and go symptom?, should I feel like my nerves are healing (please tell me yes!), is tingling a mellow kind of twitch?Good luck,Eduardo

 

[simonw00]

Hi EduardoI just looked at the Mayo Clinic results on the About BFS web site and it looks as if 51 out of the 121 patients surveyed had 'migrating paraesthesiae' - or tingling to you or me. My tingling is a come and go symptom as you put it and my experiences with my own BFS is that it isn't a sign of nerve healing... my twitching and my tingling haved occurred in waves on and off over the months and the arrival of the tingling has not seen the twitching go away.Ironically though I found the tingling very comforting. The reason for this is that I was very scared that I had ALS but I know that ALS NEVER EVER causes changes in sensation, whereas BFS does. So when I got tingling I breathed a bit of a sigh of a relief and became a lot less worried about ALS.I hope that you are feeling better soon.Kind regards from New ZealandSimon

 

[Krackersones]

I mentioned this in another post but it seems appropriate here as well. I had two normal NCV tests followed three weeks later by a NCV test that showed severe conduction velocity slowing in my sensory nerves. This was followed by migrating tingling all over my body. I asked my doctor about it and he said the sensory nerve test in his opinion is the result of demyelination. He also said the tingling and twithing represent the same phenomenon which is nerve hyperexcitability. He said my nerves are firing when they should be quiet and he does not know why but suspects it is related to an abnormality with my immune system. He recommends I take B vitamins and iron to support healthy nerves and muscles and to take Klonopin to calm the nerves. If I get worse or weakness, then he would suggest trying a drug or treatment aimed at addressing a potentially immune-related cause.I am 7 months into this ordeal and now strongly believe that there are no hard and fast rules with this stuff. It is really an educated guess based on a doctor's experience (and some definitely have more than others when it comes to neuromuscular diseases/symptoms). And when a person is not disabled in the classical sense (weakness, loss of function, etc) and does not have a clear-cut problem that is well-known to cause their symptoms, they are sort of in an "I don't know category but some people have this and it never turns into anything more." The only way to really nail down a cause is to (1) have biopsies that show a clear problem ( but often they won't) or (2) try a cause-directed treatment that has some risks but if it works it provides evidence of the cause based on what aspect of the body's system the treatment addresses. Time with lack of severe progression and a few other findings help doctors make educated statements about what is or is not going on but this is not an area where non-disabling symptoms can usually be definitively diagnosed as "X" or "Y." Even if given a label, this still doesn't mean the cause is known.

 

[LindsayCohen7]

I just went through a bout of tingling as well. Started about 4 weeks ago and lasted 2.5 weeks, give or take. Moved from right to left, hands to feet. I was just on the board because my right leg muscle has been achy and feels "weird" for a while and today I've had a few waves of tingles travel through the muscle. I'm hoping this will pass too...but to answer your question, yes tingling can come and go. I remember having it in my left hand a few years ago, and not since. JRO - what is demyelination? I guess I didn't understand your post - did your doc say that's what causes the twitches/tingling? I'd thought I'd read that was something awful that caused degenerative neuro disease of some sort.