Tingling and Dizzy Spells Worrisome

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ValgerAce59

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Hi all~~ I posted recently on having tingling predominantely on the right side eof my body, and I wanted to start a new topic so I could ask about my recent experience with this. I went to the doctor this week (my general doc) and asked him about the tingling, and also some dizzy spells I've been having. He scared me with his response...first he said "Well, we never like to see this combination of symptoms", and then said "I don't want to scare you, but the way you describe it is classic MS"...he said the "classic" word several times. I described my tingling as in patches, and that it comes and goes, it doesn't usually go all the way up and down my body, it's more like I'll get it, for example, on my foot, then later on my leg, another time maybe my arm, etc. I've had bodywide twitching for just over two years. Do you guys think that these sensory feelings could be just assoicated with my BFS, or is it possible, do you think, that maybe now, with the addition of these other symptoms that maybe the twitching was associated with early MS, and now it's progressing? It's weird, cause with the twitching, it was just that, and I didn't really have any sensory feelings, and now I'm getting alot of weird things. Even sitting here, I have some tingling on my right thigh, and a feeling like a fly is landing on my left leg, hard to explain. It's so nervewracking!! He gave me an order for a brain MRI, but said I could go to my neuro first if I wanted. I think I plan to do that, because before putting myself through the stress of a brain MRI, I want to see what the neuro thinks. I have to say that this particular doctor has kind of done this before, he's kind of the type of doctor that isn't usually very reassuring. It's just his way, he is kind of morose about things. But, I like him, and trust him, so it's hard to just discount what he says. I actually went to my cardiologist first with these symptoms, because I was concerned at the time that my symptoms might possibly be due to a blood clot, and he blew off my symptoms as anxietey, and prescirbed me some anxiety meds. So, do any of you have sensory stuff like that, or do you think my symptoms do sound kind of weird? Thanks so much for any help! My husband thinks that there's a million other things that can cause tingling like I have, and that he was surprised the doc jumped to MS so fast. And, the doc didn't say, well, lets rule it out, he really acted like my symptoms were classic MS. I also have some blood sugar issues, my blood sugar (fasting) was 139 when I was in there, so it might have something to do with that. It's not a good thing to have diabetes, but it's better than MS. By the way, he didn't really perform any in-office testing, other than to have me stand with my arms out and eyes closed, which I think I did ok. He more or less just was looking at his computer during the visit, and inputing things (my symptoms). Thanks again for any help!! Val
 
Hi Val...I don't have a lot of advice but you've been so helpful to me that I wanted to reply and at least let you know I was wondering how you were doing. I hope all of this turns out to be nothing (for you and for me). I have had tingling feelings before....nothing consistant. i always have dizziness with my sinus problems so I wouldn't even know if that were something new. I would bet there probably are a million benign things that could cause both symptoms. I hope your neuro can give you peace of mind.Jess
 
I have tingling all over that developed after the bodywide twitching (now going on 9 months). I recently had a clean brain MRI. My neuros tell me that the same thing causing my twitching is causing the tingling. The different symptoms are due to the different type of nerves effected (motor vs. sensory). It is the same phenomenon of nerves firing when the shouldn't possibly due to demyelination and/or antibodies attacking or irritating the nerves. There is a lot of educated speculation here but the bottom line is that the symptoms are not unheard of as you can see from this board and the BFS article on the site which mentions parathesias (sp?) being reported by many patients.
 
I have had loads of sensory issues, still have. I have had MRI, brain scan etc and all clear, so you can have them all and still no clear diagnosis. I would not worry about MS.....Stay Well...
 
I would love for there to be an article about how BFS differs from MS, because this has always been my fear. I've had the clean emg and mri as well, but still have trouble getting past it. I also had the tingling spots this winter, three years after my initial onset of BFS. They are gone now - (just feeling lots of fizzing instead) I think they lasted 3-4 weeks on and off. I ended up going online (I know - bad idea!) and finding a rundown of the clinical exam neuros give for bad diseases. I didn't have even ONE of the symptoms so I calmed down. This was the stuff like standing on one foot with eyes closed, putting chin to chest to see if there's an electric current feeling down your spine, etc. I also try to reassure myself that my stuff is EVERYWHERE. My twitching, tingling and cramping do not discriminate, and can pop up anywhere at anytime because my nerves (all of them?) are hyper. I always thought the bad stuff presented in one place REALLY badly. Your doc might be like my initial doc - uninformed about neuro stuff and willing to toss around hypotheses not taking into account that we on this board have a good dose of medical anxiety. In fact my primary doc had never HEARD of BFS and my neuro didn't have a name for it - I handed him an article about it and he said it was "intriguing" that they'd given it a name (this guy was well into his 60s). He also told me that we can't prove that anyone won't get MS, but if there's no proof (mri, emg) that you DO have it, don't worry.Easier said than done, I know...
 
Hi Val,I tingle mainly down one side but I think it's a form of panic attack. I'm becoming increasingly aware of my own health anxiety - I don't think 'normal' people worry about their health as we do. I've never classed myself as a hypochondriac - I just think about the 'what if' issues a little too much! Also - this machine does not help!! We have a little too much access to information. Would ANY of us fear ALS or MS without Google? I doubt it! I don't do it any more - staying up all night shivering with fear after a late night Googling session has cured me! I tingle and twitch more when I'm anxious, and I get anxious when I tingle and twitch! I'm 52 and I've had twitching for a year and the tingling since my 20's! The night I found the ALS link I went numb down one side of my body - it was sheer panic - nothing more. I've had this for so many years that I just accept it. If I can go to sleep it's usually gone when I wake. That's what worried me about the twitching - I wake up with it. The chiro stopped the tingling in my lower leg and foot - psychological? Who cares? All of these things are real and we understand each other, but how much of it is physical and how much is created by our minds? I would say that an awful lot of it is. I think our head is the place to start.
 
Just one more quick thought, with the side note that I've just read a lot of stuff on the internet - but I guess we all have! I'm just trying to share some stuff I remember that helps me when I get scared...There's an entire thread that goes on for many months, maybe on medhelp - I forget. Anyway people are writing in about their fasics, tingling, numb patches, etc. All of them are undergoing tons of tests, and finding out they are negative, and wondering if they can in fact be fine. Sound familiar? One of the women on the thread has an ex-husband who has MS. He kept telling her that what she was feeling was very different than what he feels. As I recall he had an episode in the 80's where his stomach area went completely numb for over a month. Couldn't feel anything at all. It got better and nothing else happened for over a decade, other than heat intolerance. Then he got tingling in his fingers - but it was different than what some of us feel because it never stopped. never. Until the lesion healed months later. I just remember it because what she was feeling sounds EXACTLY like what you described, and what a lot of us have felt at times. Migrating tingling, twitching, thumpers, etc. And the comforting thing is that the spouse of a woman feeling what we feel said that no way was it the same. be well.
 
Thanks for the post about the woman with the husband who has MS. It was reassuring.I have the buzzing in the feet thing on and off and have had it for the entire time since my twitching started almost 20 months ago. In fact, the buzzing is now more annoying than the twitching. I have often thought it could be MS, but that is the only MS type symptom I really have. Sometimes it is my left foot and sometimes my right.I know lots of people on the forum have this too. I have not had an MRI and really don't want one unless more symptoms arise. Linda
 
Hi all~~ I just wanted to make sure to get on here and thank you all so much for the wonderful replies!! I can't even tell you how much they all helped me!! It took me a while to get back because we've all been so sick around here, it's been ridiculous lately. It's gone from one thing to the next. First, the flu went through our whole household, and now we are still trying to recover from bad colds and coughs. I've been on antibiotics, which didn't help much at all...and now I'm just finishing up some Prednisone. I haven't been bothered so much with the tingling lately, it's always something new. I still have that, but not as bad as it was. What I'm being bothered with the most right now is ringing in the ears. It sort of became very noticeable with the start of this illness, it seems like, and now is becoming very nervewracking. I read where this can also be a sign of MS, but it's also a sign of alot of other things. I don't even want to google if it's a sign of als, because then I'd be in a panic!! It's really bad though, to the point where it's interferring with my hearing. I haven't gone in yet for the MRI, just because we've been so sick here, and there hasn't been the time. I'm going to go to the neuro first, though, and maybe do the sleep study, which he's been trying to get me to do for months. Thanks so much for all your reassuring words, because I would have otherwise been going nuts during this illness, but I was able to concentrate on getting better and not focus too much on the MS worry, because of all your posts. Thanks so much. I'm just trying to focus on the more common things that can be causing my symptoms. I have been having dizzy spells, so that combined with my ear ringing could point to some inner ear problem, but I know both of those can be MS symptoms also. Anyway, thanks again~~I read your posts over and over again, and it helps beyond belief! Talk to you soon, Val
 

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