Thigh Weakness: 4 Weeks and Counting

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inskizjohnnyjobinski

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Hi everyone.Think I`m in trouble. Weakness in thigh Startet 4 weeks ago. Not going away. getting worse. I had hoped I could make the 2 year mark. Not so sure now. Just alittle confused.Take care
 
sjob, take a deep breath and relax. I'm not a doctor but at one time in my life, I was one of those guys who didn't let anything bother them (boy what I'd give to have those days back). Anyway, I visit this site now because I've been twitching away for 3 months now and I've had severe health anxiety for the past 3 years, ever since I had kids. BUT, back when I was about 30 years old, I had a constant buzzing in my thigh. I thought my cell phone was vibrating but there was nothing in my pocket. Then I had a weird sensation in that same thigh like it wasn't carrying it's weight... it just felt weak. The whole thing probably lasted 6 moths or so, maybe longer, I don't remember because I didn't care at the time. That was 8 years ago. Here I am, fine... twitching away, but the thigh problem is long gone. Weird things happen to us. You've had it for nearly two years, that should be reassuring in itself.
 
Try to take deep breaths. I am realistic in most times. This is a new thing I have no experience from before. Don`t know why I let the anxiaty take over. I too was pretty much careless of those things before. it was great. I am going to a neuro in a couple of weeks. I`ll give you a feedback.Thx for responding. :)
 
well...went to 2 neurologists. One with clinicle examination and one with clinicle and EMG. 5 needles. thigh both legs. Between thumb and point finger. both eyes and tounge. All clean.. GREAT. But, why the constant questions and thoughts. I feel I cant say T and S correctly. nasal voice. Throat pain at night. Is the tounge EMG trustful? Got jaw fatigue, if he just could put a needle in my jaw. Why the pain (ough the pain), stiffness. I can go on about symptoms. Think I got most of them. Apparently it means nothing. Thank god. Frustrating thoughts like I write them.Summary: I have had symptoms for 2 years now. clean EMG`s. I wonder why I feel like a 30 year old in a 70 year old body. Is the brain that powerful. It is hard to let go of thoughts when the symptoms is there all the time. (not only twitching.) 4 weeks ago a buddy complained about a twitch in his eye. I came to remember that the eye must be the one place I have not had any twitch. 2 days later I twitched like crazy in my eye. It went away 2 days ago. :)I am sorry I cant give you a happy story, but it feels good to vent. I have bulbar symptoms that really worries me.Any comforting words? :)
 
Two comforting words-Clean EMG!Here is a few more- two years in.Try ( and I say that knowing it is difficult) to move past it. This too shall pass.Sometimes my legs feel so weak I doubt that they will carry me, but they always do.
 
My husband has had BFS for about 12 years, and when he first got it, we both went through the **S fright-fest over it. Now, all these years later, he never twitches and would never even acknowledge that he still even HAS bfs, except just a few weeks ago, he was complaining of profound leg weakness. He felt like he could barely hold himself up, or walk up the stairs. When he said, "I think my bfs is acting up," I nearly fell off my chair. And actually, I had been fasciculating for a few years before my weakness hit me. It was what led to my diagnosis, because the twitching actually never freaked me out like the weakness and tremors did. I'd had hot-spots and numbness, but weakness was what drove me to the neurologist. So, no worries. You are in good company. Blessings, Sue
 
Thank you for your replies. That was really comforting words. I really got to get this out of my head and focus on getting better from this BFSbs. I have not been diagnosed with BFS. It is all in my head he says. So I am as healthy as ever from a doctors view. strange. (Btw CPK was normal) Today I went for a walk with my 2 year old daughter in a "bag" on my back. One hour. Fatigue and pain all the time but my legs go on.I was wondering, does exercise reduce or accellerate pain and fatigue? For me it feels like the last. Should I just go on or give me some rest a couple of months?Any advice?
 
Definitely agree - don't cut out physical activity. Overall you will feel better staying active and mentally also it's a boost (esp if you focus on the positive - seeing what you are capable of rather than what you can't do). I also went through the exercise intolerance phase - it passes and there's lots of stuff you can do to counter-act it a bit: relaxation, stretching, hydration, meditation, etc. So glad I don't get that anymore so you see it does not have to be a constant state. Still occasionally get the weighted feeling, like gravity has magically increased and yeah, it makes you think you are weak but most probably you are not just as you are not actually weaker when you are tired (you just don't have the energy to exert yourself).
 
Sjob, I took a lot of comfort in reading what you wrote. I'm 3.5 years in this but still have bad days.Daily, I feel:Stiff and clumsy when walking, especially right leg (going on 7 years)Uncoordinated when using a computer, especially right arm with mouse (2 years)Really bad mouth problems. Jaw gets fatigued when eating or talking. Perceive that I can't bite down as hard as before. Difficulty saying some sounds especially th and s sounds. Lips feel swollen or inflamed or something. I've noticed I avoid saying certain words to avoid saying difficult things (2 years)Really bad twitching in right leg though have experienced twitching throughout entire body over 3.5 years with many hotspots.Muscle pain in backs of both calves (few weeks)Many more things over the years but that is what is in my mind lately. What can I say? Scary stuff but I'm comforted by two clean MRIs, two clean EMGs, clean bloodwork, symptoms for 3.5 years.Best guess I have is being very out of shape (cardiovascually - I'm actually tall and thin) and very anxious. I'm very sure I have TMJ with my jaw clacking and popping frequently along with daily though not constant jaw pain.
 
Well, I listen to you guys/girls and try to keep up the exercise. I think you are right. But yet to physically feel it. Just wonder what exercise intolerance is. Is it difficult to exercise or trouble after exercise. Can`t seem to get hold of that. What are your experience? I have done exercise periodically, tipically summertime. The big trouble (pain,stiffness, fatigue) started in may and does not seem to get any better. Any advice?. Does stretching help?juliacristina2. Seems we have alot in common. I am glad you are comforted. I am not there yet. Hopefully I reach it fast. Thx for your replies :)
 
Exercise intolerance is a extreme reaction to physical effort. Like excessive soreness over longer periods of time - outside the normal recovery time and beyond what you'd expect for the effort you put out or easy depletion of energy. The actual symptoms vary per individual - for me it was a very slow recovery from physical exertion beyond what I'd considered my normal time and also a tendency for muscle to stay overly-contracted for days afterward. Sometimes I would get very fatigued but honestly I can't say I could always tag that directly to anything physical as it would happen at other times also. A lot of that has stopped for me. At the time though I was convinced that taking acetyl l-carnitine (a protein) helped. I did find that relaxing afterward helped a lot (breathing exercises, slow stretches, etc) but I wouldn't recommend aggressive stretching or pushing it physically without proper breathing. You have to find what works for you.
 

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