Thanks to Those Who Helped!

[sarahjane]

First of all, I’d like to say thanks to those who responded to me this week when I posted with my frantic panic attack questions. Your reassurance truly helped and meant the world to me.

Second, I just got back from a neurologist appointment who assured me I was fine. And he told me something that I had never heard from any of the other neurologists I’ve seen – and I found it very comforting, so I figured I’d pass it along here. Please, if someone has some internet searching way to say this is not true, please don’t post it as a reply, because I am finding comfort in what he said – and I’m sure he knows what he’s talking about. Anyway, he told me that ALS affects the upper and lower motor neurons, and the weakness is caused by the lower motor neurons having a problem, and the upper motor neurons is what causes an abnormal neuro exam – like reflexes babinski etc. He said if you have a normal neuro exam, then you don’t have ALS, because in ALS you have BOTH upper and lower motor neuron involvement.

Thank you again for all the comfort and support!

Julie

 

[Carrilicious]

I'm happy for you Julie. You sound like this neuro made you feel comfortable in knowing you are well. It's nice to find comfort in a doctor and trust what they say.

I have also heard the same thing. I actually read that on an als site a few months ago. I believe what your neuro said to be true.

I was doing all the tests myself everyday and even trying to convince my husband and kids to do reflex testing on me and the babinski test. Sick huh? It got to the point where my 3 year old would walk around the house checking her limbs, mouth and tongue on a constant basis.

I'm passed being THAT bad now. I still have my days though. Today I was doing a lot of strength testing because sometimes i feel like my toes on the bad leg are numb from time to time.

Well I won't go on about it I am just happy your appt went well. Just think how beautiful those fireworks are going to be to you.

I know I will appreciate them a lot more. A lot of that is due to all the support I have received here. So Thank You all and,"HAPPY FOURTH TO EVERYONE"

Have happy happy day!
Carri