Thanks to everyone on here

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InvisibleItches

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Hey Guys,1st I want to thank everyone on here, especially all of the veterans who have really really helped me during this hard time. I'm doing a lot better over the last 2 or 3 days. Kind of rolling with the punches and not focusing in too much on any one symptom. A new twitch somewhere or a continuous twitch in my back or eye that I've had for over 10 months, it doesn't bother me. I'm trying not to think about the mouth symptoms that I'm still having and of which I've flooded this message board with.But over the past 2 weeks I've really started to notice something, and I'm having trouble rolling with this one. Last week I was tripping a lot, kind of tripping on my own feet and what not. Very unusual for me because I've always been very athletic. And then this past week I've noticed I've been dropping things a lot. Drop some paper at work, my spoon, my food, and today: I dropped my food, a stack of paper, and my razor as I was shaving :oops: :crying: I guess my question is this....why? How could this be normal or safe/clear of something serious!? I want to accept this as part of BFS and move on. But this is so completely unusual for me that I'm having a lot of trouble again. I had taken 2 big steps forward, but now I'm almost back to where I was a week ago....Do this happen to anyone else? Is it normal? Safe?
 
You are dropping things because you are focusing on it so much. Happens all the time. IMO that is one of the most common symptoms of a person drenched in anxiety. You are focusing on every little thing you do or that is happening in your body right now, and your brain isn't supposed to do that. A lot of stuff is just supposed to happen automatically.Instead of looking at it as a negative (OMG I started dropping things!), try looking at it as a positive instead. Start thinking hey, I stopped tripping! I'm no longer tripping anymore!! Yay!! Look at things that you -aren't- doing anymore, as opposed to things that you -are-. You will get over this much faster if you can start doing that.
 
Thanks Mario,So you are saying it is normal?But in my heightened sense of anxiety and of every single function of my body, I'm noticing it more than normal? I'm scared because I feel that I've always had a heightened sense of my body, hypersensitivity, and I've never noticed dropping things before... I'm scared it is the start of weakness....but I guess it doesn't work that way?
 
I would agree. I've been twitching for 3 mos with clean EMG/NCS and have been told that it "looks like BFS" by my neuro. But yet, I've been tripping all over myself too. Try this... I wouldn't normally recommend us giving ourselves strength tests, but I think this will make you feel better. Try standing on your toes on one foot. It's difficult so if you wobble or lose your balance, don't sweat it. But if you can stand on your toes of the foot in question for 10 seconds, you're fine. Better yet, try 30 seconds. If you had something sinister like ALS to the point where you're tripping due to weakness, there's NO WAY you'd be able to do this. Try it.
 
Yup. Just part of the normal "progression" of BFS + anxiety. I choked on my own saliva, tripped over my feet, had difficulty buttoning my sweater, and YES, I dropped things a LOT. I still do, actually. I am extremely klutzy. :oops: My friend, I'm afraid you just don't get to be unique in this way. I'm sure you are interesting in lots of other ways that are far more important, but in this instance, you are the same as the rest of us. It's all just silly, goofy bfs. :p A hyperstimulated nervous system causes ALL of the symptoms you are describing; not just because you are anxious, but because your reflexes will be quicker, you will be jumpier, clumsier, and your body will be more apt to make certain movements before your brain has fully initiated. Think of it like what happens when you first begin to drive someone else's car. The steering and the brakes feel a bit "off," from what you are used to, and you might find that the car lurches and jerks suddenly when you turn the wheel even a tiny bit. It's the same thing, here. Your mind isn't accustomed to the new way your body moves on all this extra adrenaline, and so, when the brain tells your hand to grasp something, the hand receives "incoming" at a different speed than before, and reacts clumsily. When a person drinks alcohol, then drives, the reflexes become sluggish. Under the influence, your brain might see a deer run across the road, but the time between the brain sending the message to the foot, and the foot's reaction to that message is slowed because of the depressive nature of the alcohol. In BFS, it's the opposite! Thus, the feet and hands react more quickly and may even put forth extra movement such as tremors or jerks. It's all perfectly normal for bfs. Once you calm down for a significant amount of time, your nervous system will settle into its new "normal," and the symptoms will lessen, considerably. For now, just expect that new stuff is going to crop up. The more stuff you have, the better. True NMD's don't present with a whole "laundry list" of symptoms at once. Any neuro will tell you that. I hope this helps to ease your mind. Blessings, Sue
 
I notice it to london. I fiddle fart around with my keys to open my door all the time. I also find when I feel shakey, I'm usually freaked out. Your fine.
 
Thanks SuzieQ,That was great stuff and great advice! I need to start remembering that, and for the past few days I took that advice to heart and it worked very very well.I also took a few days off from the internet and it really helped. I was relaxed a bit and doing better. But today and yesterday I have had a lot of trouble talking, and although I have the clean tongue EMG about 4 weeks back, I'm still very worried that I'm not in the clear yet, because again my mouth symptoms keep coming back. And I know it can start this way and I know I need to wait a while until I'm certain that I'm fine.Sorry for the frantic post again. I'm freaking out! Again, 2 steps forward and now another one back. :confused: :(
 
Its normal to drop things, to be clumsy, to fall over obstacles etc. I have always had blue marks all over my body becourse Im tall and clumsy. I walk into cornes of the dining table, I stumble over the chairs and I am clumsy when I walk the street. I have a lot of salvia at night, I choke on food and water and a hundred other ALS-related stuff or at least so the imagination tells us. Yet Im completely over this ALS-fear. Total and definite. I have chosen to trust the experts - the neuro and the GPs who was right. And almost always are.Like dr. Hill (read that story - its good) I never had an EMG but I didnt have any real weakness either. In my panic, I was reading all the bad stories and the rare cases but I have yet to read a story of a guy with hidden ALS, cleared by experts and a countless numbers of clinical xms, who run 5 km every 2nd day summer and winter for more than four years. Yesterday I did my obligatory 5 km while whistling all the way at the same time. Singing and whistling while running! Thats whats BFS allow us to do m8. Try to do some walking or running or physical activity. Dont give a !"#¤!#¤ about those twitching. Live should be so much else. Get away from the internet and try to go to the real life. One day you are old and maybe you lost your best years in life to needless fear. How smart is that?Stay well dudeBtw: YOU DON NOT HAVE ALS! GODDAMNIT!
 
Thank You SuzieQ and Fox2Run,But see, that scares me Fox2Run, the story you cited. Because I can still run 3 miles a day and feel great. Play basketball, lift weights, etc. etc. But then I get home and have all these twitches, mouth symptoms, drop things., etc. etc. And I fear that my clean EMGS and 3 different visits with 3 different Neuros over the past year are ALL WRONG!
 
Thanks SuzieQ,Honestly, thank you so much. I feel horrible that I can't accept peoples great advice and realize that I'm okay. Especially people in my everyday life, it seems to be driving them away from me because this is turning me into a person I never used to be. I'm trying my best to beat this fear. I've had some progression, and I do really take your advice to heart. I move forward, then fall back a little. But I promise I will beat this thing. I know I can. I'm going to stay away from the internet for a few more days after today and after I ask one more question that I'm curious about with BFS. Does anyone with BFS notice that their hands tighten up alot? I've noticed that on the sides of my left and right palms, around the creases, there seems to be pronounced lines. Like the lines on your palm that a palm reader would trace. This was worrying me because I thought mine are so pronounced that maybe it was starting to become a dent or something, especially because whenever I do something now involving my hands I feel the creases there...All day long. It is very weird and I hope it is something normal with BFS or something else innocent.
 
I wasnt citing any stories. I was using mysdelf as an example. I have had this for more than four years. I have been (and sometimes still am) among the top-ten twitchers on this site with more than 10.000 fascics at day at times. Im running. All is well. I didnt have ALS. And I didnt even get an EMG. You have been scanned from head to the ass, man. And yet you have fear. You dont have ALS. OCD is more likely.
 

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