Thankful for Support with L5/S Disc Issue

KitKat224

New member
Hi all - I'm posting for the usual reasons, but wanted to first say thank you - much of the commentary here has been extremely helpful even prior to actually being registered and able to post.I have a reoccurring lower back issue with my L5 or L$ disc, which most recently produced fairly regular tingling, tightness and numbness in my left leg. My father also passed away from MS after a 31 year battle with it, so I always have that in the back of my mind. Anyway, about 5 weeks ago, I started to feel numbness and tingling in my right leg as well as my left and basically panicked, thinking it was maybe the start of MS. I started on a litany of MD visits, psychologist visits, physical therapy and now two neurologist appointments. Thankfully, I keep getting a clean bill of health (though my neuro has now requested a brain MRI to try and further reassure me). Along the way, my numbness and tingling seemed to morph into nearly constant muscle twitches in my lower legs, then feet, and now also occasionally upper legs, shoulders, arms and fingers. At my last neuro visit he was able to see the twitching in one of my legs but still is absolutely convinced that it's nothing dire. Frankly, before finding this site I was starting to think that my extreme anxiety had almost sent my body into arrest / spasm (I've had trouble sleeping without sleeping pills for like two weeks now).Sound familiar to anyone?? I still am not quite sure why he's so sure it's not MS, unfortunately, though I know soundly believe that I don't have ALS thankfully. I also have occasional pain in joints and a fatigued feeling in my legs, especially in the morning, but for the most part the main symptom I have is twitches and a light "crawling" feeling in my calves and feet.This is a great site and you all are a great support for each other! Thanks for any replies or thoughts. :D)
 
New here too. Calves. Nuff said. Yes this morning when I walked downstairs and my legs felt watery. I toldu neuro today and he said they were fine. But I am with you. You are right, they are stronger later on in the day except mine are sore from the emg today
 
Yeah, what a weird thing, huh? I'm about a week or two into near constant twitches - whether it goes away or not I guess we'll find out. I'm trying to hydrate a lot, sleep, stretch and will look into stuff like yoga, hell, even acupuncture...
 
For my calves and feet someone on the Facebook group recommended magnesium oil spray and I went to the local health food store and got some and I am not kidding you it works! I also was taking a mag supplement, but when my legs and feet are going crazy I find that spraying them with the oil works much better! I hope this helps :D) The kind I found was Life-flo pure magnesium oil 100% pure super concentrated. It was only like $12.00 for a giant bottle too. I also get terrible buzzing in my legs and feet and this also seems to help with the buzzing and vibrating sensations.
 
Hi,practically combination of strange feelings, twitches and joint pains (especially in the morning, which sometimes makes it similar to RA) is very common in our fellowship.I never had heard that MS in a hereditary disorder. yep the reason is yet unclear but I know some people with MS and usually it is a single case, so you really should not think that having a close relative with MS means your chances are higher. I would rather say that there are more chances that your lumbar issues become bilateral (at least you definitely have the disruption there so chances are much higher already).
 
Yours sound a lot like my experience early on. I wish I had found this site back in November. I too had a left side L4-L5 issues... a disc herniation in late 2010 which had mostly resolved over about a year and a half. A neck MRI after my BFS symptoms started (last Fall) showed some disc issues there as well but nothing to explain my neurological sensations. I can relate in so many ways. Lots of lost sleep for me too. And my worry went from ALS to MS and even brain cancer. A brain MRI and 2 EMG's were clean and I still don't have a diagnosis. I just want to say that BFS can throw a lot of weird symptoms at us but you will eventually feel better. I did. I am still here after 9 months and am in my best shape since high school. I still twitch but mostly just in my legs and they don't bother me too much. I will say this, I took valium for a while and even muscle relaxants washed down with a beer or two or three. That scared me into just getting off those meds completely. I got some passion flower to calm me and melatonin for sleep, rubbed icy hot, ben gay etc... on my legs and took epsom salt soaks at night to overcome the sensations and soothe my mind. I even bought a foot massage bath for my feet. And stretching helped too. It took a while but I was eventually able to learn to sleep through the symptoms until they eventually subsided. Mark
 
Thank you very much for the responses, especially your thoughts Gracely and TwitchyBoomer. I did a full leg workout at the gym on Sunday and admit that I start crying in the middle of it -- from relief that I was still able to do it just fine. That seemed to reduce my twitching for a few days. Unfortunately I tweaked my back again yesterday morning (shaving of all things) and, since then, I haven't been able to stretch and the twitching is worse now. I haven't tried magnesium of any kind yet but will.Otherwise I feel like I'm adjusting and accepting this pretty well. Don't get me started on my visit with the doctor yesterday who basically pooh poohed everything I was trying to tell him, told me there wasn't a "physical problem" (including my back!) and told me to see a mental therapist (I wanted a back MRI to understand the extent of the problem one way or the other)....Thanks again!!
 

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