Hi all,First I would like to thank everyone for all the support given to me over the last couple of months.Here is a summary of where I am at....Juneish, lost 10 lbs felt weak, felt like I was losing strength and muscle.July through September had all kinds of blood work done and everything was normal except test positive for Mon
ctober 15th notice twitching in calves and google "Calf Twitching"....learn all about ALS.October 18th see my family doctor who sends me to have EMG done.Calves now twitch 24/7 and I feel weak all over.November 11th, have EMG, comes back normal except for fasciculation's in calves noted.Calves and feet now twitch 24/7, legs are constantly tired. Feel like I have internal shake. Face and tongue shake when opening mouth. Get hit and run twitches everywhere. December 2nd see Rhuematologist, examines me and says everything looks normal except quivering mouth with tongue out. Recommends I see Nuerologist.December 6th, see Neurologist. Normal clinical exam, see my twitching, thinks everything but twitching is very likely anxiety related. Wants to do another EMG, because doesn't believe in using other EMG's to make her diagnosis.December 7th, had second EMG. Doctor said EMG looked very normal (except for fasciculations) and wants to see me again in six months. At this point everything looks benign to her.This is where I'm at today.... I don't feel normal, but all the doctors don't see any sign to connect my twitches,and the way I feel, to anything sinister. I literally had a clean EMG yesterday, and I'm nervous today.... I have to let this go!!Bottom line, I can't spend anymore of my life worrying about this. If by a longshot I do have early ALS then I need to enjoy the time I have left while I'm still fully functional....and if it is BFS then it is stupid to waste anymore of my life worrying about it.I keep searching the Internet looking for that magic bullet, that will put my mind at ease, but all I seem to do is find little things that make me worry. Plus all that TIME searching is wasted moments of my life I won't get back.So here's my plan,1. Exercise. If I can get healthier I think I can start to believe that nothing is wrong with me and that I am healthy.2. Cut out caffiene. It's my only vice, don't smoke or drink so I'm going to give it a try and see if it helps.3. Load up on vitamins. Heck maybe this is a deficiency of some sort.4. Quit looking at my twitching. Raises anxiety.5. Quit looking at the Internet. Raises anxiety.6. Ignore everything except maybe choking or falling down. Anything else I'm going to chalk up as normal.7. Go back to the chiropractor. He helped the crick in my neck two years ago, maybe he can help.8. Have faith! I'm saved through Jesus Christ and Gods in control. This is the most important part... quit being a control freak and worrying.This is my plan. I hope to get over this for myself and then maybe come back on this forum later to help others.One other thing for anyone who searches my posts in the future. If I am that longshot that gets ALS or MS or something, I will come back on here and let you know. If you don't hear from me, it means I'm doing fine.If anyone ever has a question for me then send me a pm and I'll be happy to help.I plan on starting this Monday. If you see me lurking on here after Monday, please try and run me off. 
) ) Thanks again to everyone, I hate to abandon the community, but I feel I need to get over my own fear before I can help others with there's.I'll check back between now and Monday so if anyone has any advice or comments before I begin my weaning, please let me know.Adam
ctober 15th notice twitching in calves and google "Calf Twitching"....learn all about ALS.October 18th see my family doctor who sends me to have EMG done.Calves now twitch 24/7 and I feel weak all over.November 11th, have EMG, comes back normal except for fasciculation's in calves noted.Calves and feet now twitch 24/7, legs are constantly tired. Feel like I have internal shake. Face and tongue shake when opening mouth. Get hit and run twitches everywhere. December 2nd see Rhuematologist, examines me and says everything looks normal except quivering mouth with tongue out. Recommends I see Nuerologist.December 6th, see Neurologist. Normal clinical exam, see my twitching, thinks everything but twitching is very likely anxiety related. Wants to do another EMG, because doesn't believe in using other EMG's to make her diagnosis.December 7th, had second EMG. Doctor said EMG looked very normal (except for fasciculations) and wants to see me again in six months. At this point everything looks benign to her.This is where I'm at today.... I don't feel normal, but all the doctors don't see any sign to connect my twitches,and the way I feel, to anything sinister. I literally had a clean EMG yesterday, and I'm nervous today.... I have to let this go!!Bottom line, I can't spend anymore of my life worrying about this. If by a longshot I do have early ALS then I need to enjoy the time I have left while I'm still fully functional....and if it is BFS then it is stupid to waste anymore of my life worrying about it.I keep searching the Internet looking for that magic bullet, that will put my mind at ease, but all I seem to do is find little things that make me worry. Plus all that TIME searching is wasted moments of my life I won't get back.So here's my plan,1. Exercise. If I can get healthier I think I can start to believe that nothing is wrong with me and that I am healthy.2. Cut out caffiene. It's my only vice, don't smoke or drink so I'm going to give it a try and see if it helps.3. Load up on vitamins. Heck maybe this is a deficiency of some sort.4. Quit looking at my twitching. Raises anxiety.5. Quit looking at the Internet. Raises anxiety.6. Ignore everything except maybe choking or falling down. Anything else I'm going to chalk up as normal.7. Go back to the chiropractor. He helped the crick in my neck two years ago, maybe he can help.8. Have faith! I'm saved through Jesus Christ and Gods in control. This is the most important part... quit being a control freak and worrying.This is my plan. I hope to get over this for myself and then maybe come back on this forum later to help others.One other thing for anyone who searches my posts in the future. If I am that longshot that gets ALS or MS or something, I will come back on here and let you know. If you don't hear from me, it means I'm doing fine.If anyone ever has a question for me then send me a pm and I'll be happy to help.I plan on starting this Monday. If you see me lurking on here after Monday, please try and run me off. ) ) Thanks again to everyone, I hate to abandon the community, but I feel I need to get over my own fear before I can help others with there's.I'll check back between now and Monday so if anyone has any advice or comments before I begin my weaning, please let me know.Adam