Taking the Plunge: BFS Support

TessaTessa

New member
After reading these posts for the last month or so, I'm finally going to actually write my own. This says alot about how stressful this BFS is for me, as I'm not really a "support group" kind of gal.

My twitches started one morning in February in both of my eyelids. After about a week I saw a neurologist who treated me with Verapamil (a blood pressure pill). This almost completely stopped the twtching except for one of those occassional "eye-flutters". I believed him when he told me I had nothing serious, until I began to have all-over body twitches about 3 months ago. Since then, I've been back to see him about 4 times. He increased my Verapamil does (which helped the twitches not be so intense). He also told me to take Xanax when needed. After all of my strength tests being normal AGAIN, he STILL assures me that I'm not dying. Funny how I feel great for about one day after my appointment, and then start obsessively worrying about dying again.

I've tried EVERYTHING I can think of to reduce symptoms. I had taken wellbutrin for about 3 years. I stopped that thinking maybe it was some delayed side effect. I thought the twitching may have reduced, however, some days it is still very bothersome. I tried accupuncture a few times. When I leave, I feel great. Then, the twitching starts again. I'm taking a cal/mag supplement. No luck. I started drinking Gatorade after reading someone's "miracle" post just yesterday. I can't afford the extra calories. Has anyone had any success with "Propel"? It's just a sugarfree Gatorade drink.

Everywhere I twitch is annoying. The thing I'm most freaked about is that my face feels like its starting to get them now. I'm in the skin care business and this is especially disturbing, even though its just a vanity issue! I don't think anyone else can really see the twitches, but I sure can FEEL them.

The part of this whole twitching thing that is that most frustrating is that no matter what I'm doing, I feel like I'm always being interrupted by my twitches. I can be watching a great movie and I can't focus too well because of twitching!

The only really helpful thing that I've read are these posts. I feel we are the only ones who can relate. I feel that I'm going CRAZY!
 
Dear Anxious Mess, if you are as unfortunate as most of us on here and your twitching continues, then once you get the anxiety bit under control, you will probably find the twitching becomes less and less intrusive to you. I have twitched for 10 years and most of the time, I am not bothered by them, despite the fact that my calves twitch 24/7.

You must trust your neuro. This is a hard lesson that many of us here have had to learn. Don't waste time focusing on your symptoms, try and find distractions and I am sure you will start feeling easier.

Diego4Life
 

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