Taking Tests for Lyme Disease

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NordicPrincess

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Hi,Have many of you taken tests for borrelia/Lyme dicease? I have taken the standard tests in Norway, but right now there a huge debates in media about these tests. Researchers don't think we are using the best tests, and that the tests they use in Deutchland are much better, but the doctors here are very conservative and hard to get to listen... We have a Lyme-senter where doctors now are beginning to use the same tests and treatments as i Deutchland, and I'm thinking of taking the tests. It's expensive, and so are the treatment if positive.. Have a look at this: I also googled fasciculations and Lyme, and fasciculations can certainly be one of the symptoms when chronic Lyme.ore and more reasearchers mean that the standard tests for Lyme are not spesific enough and the symptom picture of BFS resembles that of Lyme A LOT! A Lyme picture can be very individually - different from person to person. I think this is interessting, specially after I read about protozoal infections her:This researcher also use antibiotics in his treatment - as well as he recommends a low fat diet and vit. D. I see he also means that we should NOT take magnesium. I do, both orally and in spray-form. I wonder if I should quit. What do you think? He means that magnesium can help in the short term, but in the long term it makes th protozoal harder to dectect and to destroy.Have any of you taken these tests?: Elispot®-LTT and CD3-/CD57+ cells. That is what is recommended in Deutchland. And if we have a co-infection it's harder to detect the Lyme disorder and harder to treat. Maybe that is what has happend for us?? I'm speculating. Have any of you tried long term antibiotics treatment? Maybe you have been worse the first weeks? That is what is called a Herxheimers reaction. Means that the treatment work..No one knows what BFS is, but I feel I can not give up looking for an answer for my symptoms and try to find a cure. I hope some of you have experiences to share. How have you f.eks reacted to antibiotics - if you have tried after you got BFS?Hugs to you all
 
Hi dear,first of all to get Lyme you must be bitten by a tick. I have no information about conditions in Norway but should that had happen, it must be in spring or summer period before your flareup and most probably some of people living close to you (husband, parents etc.) must notice that you bear a tick or have that specific borelliosis rush at the place of bite.If you did not have encoonters with a tick, then your chances for getting Lyme must be very very very low... So I mean if your doctors put you through the test, they should suspect that you had a tick bite?For me I can tell for sure I never was bitten by tick yet (however my dog was - fortunately he did not develop borelliosis) and my BFS should be most probably combined reaction for viral flu, long term stress and owerworking... but not everybody, of course have that plain 'ethiology'...
 
Yes I got a tick bite in august last year and had a swollen red ring around the bit for about 5 days. In the authumn last year I had headaches and was a bit more tired than normal and had somr pains and was dizzy, but i didn't considered myself ill..I worked as normal and so on.. All my fasciculations, paresthesias and extreme pain started after a very bad stomach infection in jan this year. So i don't really believe i have chronic Lyme, but there is a chance I have. The symptoms can absolutely seem to fit with Lyme.. But it's hard to tell..and so much doubts and discussions about witch tests that are right..and what treatment is right.. Oh yes, we have A LOT of ticks in norway in summertime ! More and more for each year and especially in the part of the country where I live. If anyone here have experiences with antibiotics, how this affects your symptoms, please tell me. Thanx!
 
in that case it is better to reperat tests several times ore really use a different test but as far as I know the nature of them, they could be sometimes not very specific (for example looking for Ig (immunoglobuline) of certain type, but in case of chronic form that Ig might not be produced in enough quantity etc.)one of my internet fellows had a borelliosis (another name for Lyme disese) few years ago. Her manifestations, as far as I know, was extreme feeling of fatigue and some pains. She went through long term antibiotics and, as far as I can judge from her posts, is quite well now.
 

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