Swallowing Difficulties After Dread Disease

GrumpyCat82

New member
Hello allWow - pleased to find this website is still here. Last visited four years ago during full-on panic about the dread disease. Eventually calmed down, and in the four intervening years have been twitching all over - as ever. Recently, though, I've noticed problems swallowing. Not getting food down, just actually STARTING to swallow in the first place - sometimes have to wait a second or two and try again before I can physically swallow. Have also noticed the twitching seems to be happening much more around my neck than anywhere else. Also noticed that when eating sometimes food slips down my throat without me intending it to.Truthfully, this doesn't happen all that much - pretty rarely in fact - and has been going on a few months. But recent health probs have got me all anxious again (have really bad acid reflux). Also, from when I first noticed the twitching, have had problems breathing - just like someone's sitting on my chest when I try to take a deep breath.That's my tale. I'm sure after four years I shouldn't be worrying but am now obsessed I have some slow-moving bulbar als. Anyone else got similar symptoms? Am I worrying about nothing??Thanks for letting me rantjw
 
Everybody and his dog is complaining about mouth / tongue / swallowing issues now. Go figure. Mine started a week ago last Friday."am now obsessed" -- that part of your dx is correct.
 
HI there,Thanks for replying. I've realised actually it was five years ago - was 25 when all this started - so I guess, surely, I'm being ridiculous. Especially since my swallowing issues are way worse when I test myself by swallowing hundreds of times a day, and my difficulty breathing is accompanied by pain in the chest. The breathing issues came on very suddenly when I was 25, like taking a deep breath was hard, like there was a weight on top of me - but have not got significantly worse in 5 years. This time, I'm determined not to go to the docs. Just get on and enjoy life instead of panicking all the time. That's the theory anyway..jw
 
Me again. Despite my upbeat earlier post, it's now late at night and I'm still googling symptoms and staring at my tongue - which seems ridged on the underside, like I can see the veins more.. this is crazy. 5 years ago when I had my first bout all I could think was, 'I wish I was one of those old-timers who'd been having it for years - they must KNOW it's ok'. But here I am convinced I have some very slow-moving variant.. Reassurance and voices of sanity required..jw
 
Sorry, I seem to keep expanding on this in the hope someone else has had this or can put my mind at ease. Am now totally obsessing - despite my earlier decision. Can see lots of small twitches in my tongue - but then again, isn't it really hard to keep your tongue entirely still?? Plus, I've only just looked. So maybe it always had done that, even 5 years ago when I had my first panic.My second worry... I know after reading lots of posts here that generalised all-over twitching isn't the first sign of anything. But 5 years later, i'm wondering if the two are even related, and maybe this is just really bad luck.. But I'm also telling myself that being more aware that there could be a problem doesn't necessarily mean there is one. I've got severe GERD and due for endoscopy next week - which I'm nervous about - so maybe it could be related to that. Although the swallowing issue started quite a few months ago. Like I say, it's occasional - like I need to take a moment before actually swallowing - and it takes a few swallows to get everything out of my mouth and down. Anyone had anything like this?? Am trying not to go to doctors - who only referred me to GI last week - but it's getting harder and harder.jw
 
This happens to me all the time this time of year.It is a coincidence I happen to be on here tonight reading this - I've been away for nearly two years. I get the EXACT FEELING yo describe often this time of year. You can check my posts from YEARS ago worried about nearly the same thing. Really worrisome stuff the first few times you go through it.What I found was I get sinus infections in the winter time. In my case, they don't produce a stuffy nose like I think of when I get sinus infections because of a deviated septum and blockages above my nasal chamber. So instead, the stuff just clogs my head, and drips down the back of my throat at night, causing mild inflammation there. Those mild differences in head congestion and throat inflammation cause subtle changes - I strain a bit more when speaking (often I don't notice it), I work my neck muscles differently even to hold my head up, and I'm not as quick with thought, speech etc. Very MILD mind you, so that consciously you aren't even noticing these things. Also, I tend to find that this is the time of year when my tongue twitches flare too. Usually in tandem with the neck spasms and some mild pain on the back half of my tongue (never in front - who knows why). Again, had it for years, and nothing's come of it.All of this produces that weird - "I can't talk right, and my neck twitches all the time feeling". Tongue twitches and in my case intermittent back of head and neck soreness/stiffness. Everything you describe to a T. In the end, I found that an antibiotic (non-floroquinolone) for three weeks made me feel a hell of a lot better and cleared up these issues too for the most part.If you search the archives for this time of year, as I did long ago, you will find it jammed with these tongue, neck, speech issues. From January through April - in other words, from sinus infection season straight through allergy season. Like clockwork. And I firml;y believe what is happening is the infection/allergic reaction is causing moderate changes to the sinus cavities and throat (in the form of inflammation and mild soreness) and that triggers a whole slew of subtle reactions that result in your dilemma. I'd start even with some Vitamin C & D to help support the immune system, and a POSSIBLE trip to the doc to check into an antibiotic if you feel a sinus infection could be an issue, and relax/rest. I think this usually passes in 3-5 days after you break free of the grip of having your mind fixed on it and worry.Don't forget, even when we feel a sinus infection has "passed" on its own, it rarely fully resolves without antibiotic treatment (if it is bacterial of course), so even an infection weeks ago could still be producing your symptoms. I hope this helps. Don't worry - I had/have exactly what yo describe and nearly five years later, I'm better than ever!Take care - pug
 
Hi there,Thanks so much for this - just what I needed to hear! I am indeed coming down with a cold. Plus, the power of the mind is a strange thing. Thelast two days I've suddenly found I seem to have too much saliva in my mouth and can't swallow it all down. This has only happened since I read this was a symptom of... y'know. Crazy. And I keep telling myself - what are the odds, really, of being such a nervous wreck about my health and being RIGHT? I've been wrong a LOT of times before. A lot. Anyway, thanks again. It's great when people who've been away a while come back to share.. I promise to do the same over the years..jw
 

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