Suspicion Confirmed: Thanks!

[Antilope]

I suspected as much. Thank you for your reply.

 

[qb2y]

Akimbo, I think we could just switch places and wouldn't know the difference. I've had the same exact feelings as you've described and am about 4-5 months into this. I still get the weak feeling and wierd stuff here and there but again all checked out normal by neurologist with exam and all the tests. I'm dealing with more emotional tiredness at this point as I bet you are as well. Good Luck.


Patrick...

 

[Antilope]

Absolutely. I am emotionally EXHAUSTED!!! Using cognitive-behavioral all day long to reassure myself but at some point this just isn't rational. I'm also frustrated trying to help coach my son's soccer team and even just maintain the family/work schedule. Neuro put me on Clonazepam for sleep but obviously I can't go around drugged up all day, and I really want to be strong enough to handle this without pharmacological assistance. Only a few months in and I'm straining under the weight you know.

I know I'm very lucky it isn't something terrible, but I'm begining to think benign doesn't mean easy at all.

Thanks for your response. It's vERY comforting to know I'm not alone with this.

Mark

 

[ristinaL91]

Hi Akimbo,

Sorry that you are having all the misery that comes with BFS.

I know how you feel. That is the thing about this community...there is that saftey in numbers thing going on. SO many of us can probably tell you better than you can explain it yourself ..your symptoms, and describe the exact stressyou are going through.

You did all the right things, went to the neuro..ruled out all the nasties...and now you are left to deal with it.

Last year at this time, I could barely type on the computer, my fingers felt so stiff. I remember trying to roll dough at Thanksgiving to make pies thinking my days were numbered because my arms were so weak I could barely do it.

Cannot tell you what happened, but little by little I accepted it, and then the symptoms began to wane somewhat. I STOPPED twitching hadn't had one twitch for over a month. A week or so ago, I got a bunch of mosquito bites...began twitching again. Well, I had a little relapse, I got scared, I got annoyed, and then I got real. I told myself that this has been going on for too long for it to be anything else. It would not come and go, and I felt better. Then I read a story regarding lung cancer and twitching...and my mind was off and running again, then I followed the same procedure as above. I also pm'd and confided in someone...and they helped to set me straight.

I am telling you all this because you sound so much like me in the beginning. I wish that I could help you stop right now, and feel better, and I guess I can if you believe me....oh and I so hope that you believe me...I am telling you the truth. You will be well, you are well...it is bfs. the weakness and the pain will get better.

ristinaL91

 

[Antilope]

You guys are the nicest people I've ever encountered on the internet. Thanks for the kind words, my day is brighter already.

 

[Codemonkeys]

I know this is an old post, but has anyone had that fatigue in one arm? I have it in my right arm/right shoulder/right back and some days its better than others. Twitching seems to be worse there also. Heaviness/burning/lack of stamina all are the symptoms. Lifting my arms and holding things are harder. I read that people have it but usually in both arms and legs. Any thoughts?

 

[SandyAnn]

Hi Akimbo & Jimmy!Me too! I have had the weakness in the arms and legs, it comes and goes! Hard to shampoo my hair, hang out the washing etc and I have had the weakness in the legs too but can still do all the things I should be able to do! I am nearly 4 months into this! Listen to the people on this forum and be reassured!Warm regardsSandra

 

[angusglover]

I thought I was having muscle fatigue as my legs ache ALL the time, but then someone posted a link to something called PNH. My legs feel like the muscles are "fluttering or tremoring" all the time. I mean 24x7...and I wake in the night really sweaty due tot he activity of the muscles in my legs and arms.My doc has diagnosed, with help of NCS, an ulnar neuropathy but I think this is a separate issue, maybe showing up as a result of the PNH, or vice versa. I don't have any weakness, just fatigue to to the constant activity so now I need to wait to see neuro again.Doc has givenme some amitryptaline which I have just started taking so hopefully that will help with the anxiety.