Surviving 3 Years with BFS Symptoms

[suga1]

Dear All 3 years after My first BFS symptoms, I'm still alive and kicking, I'm still fasciculating (less and less, but still some). I still remember the quasi-panic I was in, and on and off for about a year. I was like most of us here certaint hat I had ALS, certain that the docs missed something, certain that I was *the* exceptional case that would turn out bad etc etc... I spent nights on ALS forums checking my symptoms against the ALS ones - and of course finding so many similartities etc..So for those of us who are still in this very unpleasant state of mind: yes you will be fine, no it's not ALS, yes I had this symptom and that one too and that other one as well, and yes I fasciculated in this muscle and that other one. Yes this is anxiety, yes it shall pass (but don't be afraid to ask for help if the anxiety settles in for too long), no you're not a special case, and *definitely* yes the docs know what they're doing. You *ARE* fine and you *WILL* remain so.Cheers,jeje

 

[LaurentHCH]

good to hear you are fine jeje....we are all in the same boat;-)tout de bon pour toi!laurent

 

[BarbiePetals]

Good to hear from you. I remember you sending me a word of encouragement when this all started for me. You really helped me and I am you stopped in to share your story.

 

[simonw00]

Hi JejeThanks for the post - always good to hear from people who are diong fine despite fasciculation!RegardsSimon