Suffering From BFS at University

[MonicaGarcia]

Hello everyone!I've been suffering from bfs for some time now, and i've had my ups and downs. This website and the comments have calmed me down a lot, also it's reassuring to see people accepting this condition and living normal lives. Anyway i was just wondering, if there are any students out here on the forum? I recently started university and i sometimes feel angry at myself for having bfs. There is so many things i would like to do, but with all this i just feel like i can't cope. I look at other people, full of energy, and then there's me twitching, having headaches and being generally tired. The worst thing is that i would never in my dreams suspect that i would be having this kind of problem. Until recently i didn't even know what the word fasciculation meant. So a question to students: How do you find uni? Do you find it stressful? Oh and the exams? I will be a nervous wreck in January lol but i'm used to that, and i had a lot of practice to try and stay calm during my a level exams

 

[TompeteA]

It must be hard with your studies and BFS, I find it really hard to concentrate when symptoms are really flared up. I have accpeted this condition, but my life is far from normal, it has change dramatically, not sure what lies ahead, welcome to the forum.

 

[MonicaGarcia]

Hi Tom, yes it is really difficult for me to do well in my studies. I've always been good at school but since all this started i can't concentrate as well and i don't get as much work done as i would have wanted. Sometimes i just wish i could have my old life back, without the twitches, without being so tired all the time. Soon i will probably forget what it's like to be "normal". I know i should be grateful this condition is only "benign" and its not something a lot worse. But all the people who are experiencing bfs will know that it is a big deal, and it does affect your life.

 

[TompeteA]

Monica, the only thing I have found that works to keep up on my work load, is to work twice as long, I wish I had better news, If what we have is benign, then it has to pass, until then we just do best we can, good luck with your studies.

 

[MPLS1970]

If you have been diagnosed with BFS, try your hardest to accept it and be positivie. I can sometimes, other times I feel on the edge of the abyss.This is a crazy syndrome, changes week to week, month to month, day to day, hour to hour. Take comfort in positive news from your Neuro's and study hard. Cuz, (and please don't take this the wrong way)...school is like defcon 1 in levels of stress, real world job is defcon 2, marriage (Mine has been 14 years of greatness, no lie) is defcon 3, kids+mortgage are defcon 4And again, please dont take my comments the wrong way. Just know that you are in a situation where you can control almost all the variables. Go to class every day, study hard and you will do great. Don't allow this twitching to take over your life and you end up skipping class or studies. Then you feel worse and worse about yourself.Do I sound like an old man? I am only 39 but these last 15 months have given me a new perspective. Try to exercise daily if you can. It clears your mind and allows you to prove to yourself you dont have ALS