Stuck with Biceps Twitching

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raideryparkeryranger

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Guys, I'm no stranger to this forum. Found it 11 months and 2 days ago (when my symptoms started). I've had ups and downs with this as I've convinced myself it's nothing, then right back to the dreaded. I'm kind of stuck in the latter right now, and have even come to terms with it somewhat. It all started with a biceps twitch and then about a week later I noticed that my right tricep and both calves were going crazy constantly. That has not changed. With me, it seems like once it goes somewhere, it becomes a trouble spot from then on out. I was 26 going on 27 when this all started, now I'm almost 28. I twitch everywhere all the time. Some of them are very very reocurring (stomach, hands, chest) and others come only every couple days, face, butt, neck, etc. However, I do twitch pretty much constantly, EVERYWHERE all day, all night, for 11 months now. I have absolutely no weakness at all, and do not think I have any clinical signs. I know everyone is going to tell me to go to the doctor, but I just can't bring myself to go to a doc because if I have it... that's it anyway, nothing they can do. I figure it will show itself sooner or later if that's waht it is. I think and I'm not trying to brag, that I might honestly twich more than anyone out there. Is there a case where someone has had widespread, and I do mean ABSOOLUTELY everywhere widespread that's presented with *** in this manner. I'm seriously done with this, it's taken up too much of my life, and I'm going to let it go. I have twitched in EVERY muscle possible, and I'm not exaggerating at all. Even my scalp has acted up. Just feels like it's progressing further and further, and never remitting, just getting worse. At my wits endE
 
after 11 months of generalised twitching without weakness you would be an exception case of als......at your age it is even more impossible that you have something sinister.....
 
Hi E,Long time no see. Man, You need some serious round of PM therapy AGAIN with me. Hurry up, its Friday Night and I am leaving to a crazy party in like 1 hour (yes .....with my million twitches included).Im waiting E,Relax,Eduardo
 
Hey E! Sorry your having trouble, but it's good to see you. What are you doing to manage your anxiety right now? Therapy, meds, yoga, meditation, some combo of these? If you are doing nothing, it's time to take control. Maybe you do twitch a lot, but you do not have ALS. All signs point to BFS.
 
Hi E, We've never met, but it seems your friends who know you are giving you sound advice. Please listen carefully. As someone who is a bit older than you and one who has been to the brink of suicide with this health anxiety stuff, I think I have a bit of experience on this topic. While it is true that there is "nothing that can be done" about THAT diagnosis, there IS MUCH that can be done about bfs! There are medications that can help control your anxiety and your twitches, and there is cognitive behavioral therapy to get a grip on your fear and dread. If you DON'T see a physician and get treated for your BFS, you might as WELL have **S. Because you are living as IF you have it, ANYWAY. Honestly, what is the difference between believing you have a fatal disease and being completely miserable over it, and HAVING the disease for REAL? In fact, we often say around these parts that people who DO have **S probably live more fulfilling, blessed and productive lives than some of US, because THEY, of ALL people know the value of every precious minute. You are 28 years old. There is NO WAY you have **S. Based on your description, I can say that with 100% certainty, because you, yourself have said that you have no weakness. Considering your age, the length of time you've had these symptoms without progression, and the fact that you have not lost strength, there is absolutely NO reason to fear the worst. Go to the doctor, get on some meds for anxiety, and claim your life back dude! There are TONS of people with this constant, widespread pattern of BFS. Just search this forum and you will find them all. Mine was like that during a particularly bad flare, when I was exceedingly anxious over all of the symptoms. It IS annoying, (yes, I hate those scalp twitches, have you had the ones inside your nose, yet?) but it isn't worth wasting your energy on. You are SO young, please don't throw your youth down the toilet over something as meaningless as this! This isn't to downplay your suffering, but it could be SO much worse! Seriously! You only get to be 28 once, (though Bill would probably argue that point. :mad: ) We know at the very least that you only get to be raideryparkeryranger at age 28 once, and being at your "wits end" is probably not the best way to live your life to the fullest. Please, make the appointment, grab a girlfriend, significant other, parent, or friend, and GET to the doctor, NOT because you should fear **S but because you have something treatable. Heck, how do you know your symptoms aren't related to a thyroid condition, an electrolyte/metabolic imbalance, some nutritional/malabsorption or even an environmental toxin? For all you know, there is a magic pill with your name on it and it will all go away, or at least, fade into insignificance. Blessings, Sue
 
E,Widespread even widespread persistent twitching with no other signs...is not indicative of anything other than this. By now if you had something awful it would have progressed and by progressed I do NOT mean more twitching all over but things like falling down and not being able to hold a pencil. Since you did not describe that I will assume that you are just progressing with more frequent twitches in more interesting places. Again BFS not ALS. Why would you not go to the doctor and just get the exam? That is like living with a headache and deciding to give away all your worldly possession because you are convinced you are dying of a brain tumor. Honestly, why would you torture yourself? IF it is a bad dx awaiting you ...better to know and get on with living. IF it is NOT (which by the way it is NOT) better to know and get on with living. See my point? Talk to Ed. Go to the party with Ed even better:) Either way kiddo time to kick the martyr stuff. You are fine.Be well,Kit
 
raideryparkeryranger,If you are not weak after 11 months of this you will not be dx with ALS, so don't worry about that. The best thing said here was from LisaLM. She said and many of us know that there are meds to help with the anxiety and the twitching depending on what you really need. Only a good neuro can help you evaluate that. When and if you go to the doctor, think hard about how your symptoms really bother you (describe the physical discomfort and the anxiety about what you have separately although I know they are related). I speak from experience. When this hit me I thought I would have to quit the teaching job I loved. When I got Klonopin. The first .5mg pill allowed me to sleep and sit comfortably for the first time in weeks and I was back to loving my work. Things have only gotten better from there. I am still not cured but I have lived a high quality life through this weird condition that hit me and the time that has passed (now one year) has provided me more reassurance that I'm going to be ok.Krackersones
 
Thank you guys and gals for your encouraging words. It's the only thing that keeps me on track anymore. I appreciate these words almost more than any I have heard before. You guys are seriously saints (and not just those who have posted over 800 times :) I'm going to try and take it easy, and for the first time, make an honest attempt to stop all the testing, watching, etc... as it hasn't gotten me anywhere over the last 11 months, and nothing has happened to me either (besides the twitching). If any of you ever need help with anything, please PM me..Thanks again, Eric
 

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