stupidass123
New member
Howdy all!This is a great forum and I’ve learned a lot.I need some advice from all of you who have put up with this c**p much longer than I have.Right after the first of the year (after a fairly stressful Christmas holiday), I started with the widespread twitchin’ thang. It started first in my trunk, like a cell phone buzzing on and off. Then quickly moved to my legs and the rest of my body. It was tough trying to get sleep early on because in bed, my legs would jerk violently and I twitched all over. At that point I consulted Dr. Google, and I need not say where that took me. I did however, start taking magnesium and the twitching declined some, but still continues (buzzing and twitching with the occasional hot spot - the upper lip being the coolest! Thank you. Thank you very much. Think Elvis here…). During the peak of the twitching in mid-January, my left shoulder became sore and has stayed that way ever since. Went to my GP who referred me to a neuro. The neuro, after listening to me explain what was going on (for about three minutes) proclaimed “You don’t have ALS. Probably BFS.” He then hit me with the little rubber hammer in a few places, watched me walk on my heels, etc. and sent me on my way. No EMG. Whole appointment took ten minutes or less.Since then, I continue to have widespread light to moderate twitching and buzzing. My left shoulder / arm / hand continues to ache to some degree all day, every day. Recently, my left leg has decided to join the fun and has started to ache all day, every day as well. The sensations in my left shoulder / arm / hand / leg vary from a dull ache to burning to what feels like a very mild electrical shock. Sometimes, a fabulous combo of all three. Both left limbs also feel stiff as well. I feel the best when I first wake-up in the morning and am still in bed. Once I get up however, it’s all down hill. I hobble around like an arthritic 80 year and I’m only 44! Movement / exercise does help. Movement = good, sitting still = very bad.I don’t believe I feel weak - I can still hoist my 6 and 7 year old boys around, ride my bike to work, climb four flights of stairs, etc. Constantly fatigued would be a better descriptor. Everything physical just seems to take more effort than before. I feel like a wind-up toy that hasn’t been wound up in awhile and is s l o w I n g d o w n. And, thanks to that miscreant Dr. Google, I now notice intermittent speech and swallowing problems and diminished cognitive capacity (although my rational mind tells me those issues are probably due to allergy season being in high gear right now). Has anyone ever considered slapping Dr. Google with a class action malpractice lawsuit?All kidding aside, my real concern is the progressing aspect of this whole thing. Is progression over some months “typical” of BFS and its variants? My right shoulder / arm / hand now “seems” to be getting stiff and sore as well. And, as not to be left out of the good times, my tongue is now presenting the sensation of several “Pop Rocks” fizzin’ away near the tip. Is it time to see the neuro or my GP again and try sort this all out? Or, would I be wasting their time and my money?Thanks!!!
) If you feel like going back to the doc might help, especially if you are in a lot of pain then by all means. However I think they are probably just going to try and figure out if there is anything they can do for your discomfort. I wouldn't worry about this progressing (when I say that I mean progressing to degeneration)... its just a bad flare, some are worse than others. Take care and stay strong!Megan
No wonder you are anxiety ridden and twitching. If I lived by you I would come by and take you out for a drink or 10. You should take some deep breaths and find some nicer girls to hang around with. Big hugs and smooches to you.Be well,Kit
)))I promise it will get better, it is the natural order of things.Smooches,Kit