Struggling with Tremors and Twitching

[jebus]

I've been refraining from coming here - no offense to any of you of course, but it wasn't good for me. My beginning symptoms were a visible tremor in my leg, along with twitching on both legs when resting, but not when moving. Hand tremors when held at certain positions. I was fine, and dealing with them perfectly well, and I would have liked to think I was getting better. I was shown to have an underactive thyroid, which has since been treated. The thing that's getting me though is that I have recently discovered a "quiver" on my tongue when held slightly out of my mouth. Fully extended, nothing. In my mouth, nothing that I can see. But when I extend it half way there is a very noticeable quiver or twitch. Is this something I should be concerned about? I'd like honestly as opposed to comforting, not to be rude of course but this at this point is affecting my life and I'm desperate for answers. I would greatly appreciate any responses or help with this.Also - I realize the chances of me getting Bulbar onset *** at the age of 20 is almost non existent, but I can't shake this at all.

 

[BuzzLightyear]

No. It's nothing to worry about. I am very familiar with bulbar onset ALS. That is not a symptom. Bulbar onset is very aggressive and characterized by rapid progressive weakness. Clinical weakness (not perceived) is the key. Trust me on this. Your tongue tremor/twitching is annoying. That is all.

 

[jebus]

I appreciate the response, really. It does more than I can say. The worst part is that I find myself on *** forums just wondering how I have the audacity to complain about a tongue moving. At the end of the day though, it gets to me.

 

[twitchplaysp]

I'm going to be perfectly honest: You're wasting your time. What you see there is just how muscles work, and not fasciculations or twitching: The muscles don't work in the way that the brain tells them to contract with 50% strength and all fibers simultaneously contract with half their force. The individual fiber only knows "contract" and "relax", so to archive 50% strength, half of the fibers contract. Which ones changes constantly and rapidly, so that all are equally used. That's what you see as "quivering", because the tongue is a naked muscle. Totally normal. You can even ask a friend you trust to show him her/his tongue, it will be the same as yours.What you're seeing in bulbar ALS is "spontaneous activity" in the tongue, the muscle fibers are moving although there's no voluntary contraction. You'd see an uncoordinated movement on the surface of the tongue while it's completely at rest. This is very noticable and is commonly described as "small waves on the sea" or "thousands of tiny worms wriggling inside the tongue". You don't have that.And yes, it's not a good idea to read about the fears that other people here have, it will only add to your worries.

 

[jerryTwo]

Yes my tongue does the same. And the hallicus brevis muscle on foot (look at google which one it is) does the same, when half flexed big toe the muscle has lot of mini jerks like tremor. First I thought this are twitches but they are not. Not all muscles are like this, if I bend the finger a little the muscle doesn't shiver...

 

[FantasticFurball]

I think most people on this forum had spent hours in front of the mirror at some point looking at their tongue thinking about bulbar onset. In that regard you are perfectly "normal." The thing is that if you think about symptoms they can easily come. Regarding bulbar I have had difficulty speaking, I have tried to cough on liquids and food, my tongue had been fasciculating and so on and so on. As real as it seemed it wasnt sinister though but just a combination of BFS and imagination which an be hard enough to deal with. Please trust people in here when they tell you, that you are fine. You are. You dont have anything near ALS. Please get on with life and accept that twitching body-parts are annoying but not deadly....Regards FantasticFurball (a five year twitcher or more.....)