Struggling with Constant Symptoms

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ChrisUK88

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Really not sure how i am going to last till 18th November to see a Neuro. Constant bubbling, twitching, popping all day and night......really messing with my head :( Even had a 2 minute episode yesterday where the WHOLE calf muscle was moving, contracting at the same time in 1 second intervals.I kinda know deep down that this is not right, and i am really beggining to think that i am moving away from BFS a little and into the dark side !My right leg feels so much more fatigued than my left......If they do an EMG on me there is no way they will not find anything as i twitch twitch twitch twitch. I have read many people here say that when they went to there Neuro he/she didnt see the twitches, well thats imposbile for me as its ALL the time.Sorry for souding defeated....i am today, this is starting to beat me. I try to forget about it and ignore the twitches but its impossible, when i put my hand on my calf its thud, thud, thud..how the hell can this be benign? when i can see the whole mucle dancing away.To be honest i thought i was a strong person but i am not, this has made me a total mess and almost impssobile to live with, and i have to wait another 5 weeks to find out what i fear.oh well start of a new day and endless twitching ahead :( Sorry all just had to get this off my chest.Chris
 
Hi Chris,The only thing I can say is my calves twitch 24/7, but really 24/7. Meaning at different places at the same moment ALWAYS. I see my muscles move all the time. It's almost going on for 1 year now. I saw a lot of neuro's, 2 ALS specialists, ... nobody of them was the slightest bit concerned about the twitching. My leg feels weak on and off, but I can still walk, jump etc...Going on those ALS forums is a big mistake, the only way to deal with this is to stay off those sites. What do you want to read there? What do you want to find there? You will only find information that you think confirms your opinion. Stop it. Realize a lot of stories there don't provide all the medical information, some aren't even true. I can't say it's ALS or BFS , that's up to the neuro, but with all the information I have : weakness before twitches, calves twitches are the most common place to twitch,... I think you just have to wait until 19th November. If you can't wait anylonger try to get an appointment elsewhere.Why spoiling your life now when you're not dx with something? If it would (I say would because I think it's BFS) be ALS there is nothing they can do about it, so, why destroying yourself and your life now? You don't gain a thing with it. Enjoy your life, stay away from the internet, have some fun. It's not woth it ! I know what I'm talking about. You are missing out on some great moments Chris. Stay positive! You write your leg feels weak ; with als you would have definite problems walking, driving that only get worse.Stop testing yourself : what's the point? Only one woman on this forum (Who had a obvious foot drop!!!) was dx with als. All those thousands others that are twitching like crazy got dx BFS. You have to believe you will get this dx too!Come on Chris, get your mind on some fun stuff. Best of luck,Bart
 
Hi Chris,The only thing I can say is my calves twitch 24/7, but really 24/7. Meaning at different places at the same moment ALWAYS. I see my muscles move all the time. It's almost going on for 1 year now. I saw a lot of neuro's, 2 ALS specialists, ... nobody of them was the slightest bit concerned about the twitching. My leg feels weak on and off, but I can still walk, jump etc...Going on those ALS forums is a big mistake, the only way to deal with this is to stay off those sites. What do you want to read there? What do you want to find there? You will only find information that you think confirms your opinion. Stop it. Realize a lot of stories there don't provide all the medical information, some aren't even true. I can't say it's ALS or BFS , that's up to the neuro, but with all the information I have : weakness before twitches, calves twitches are the most common place to twitch,... I think you just have to wait until 19th November. If you can't wait anylonger try to get an appointment elsewhere.Why spoiling your life now when you're not dx with something? If it would (I say would because I think it's BFS) be ALS there is nothing they can do about it, so, why destroying yourself and your life now? You don't gain a thing with it. Enjoy your life, stay away from the internet, have some fun. It's not woth it ! I know what I'm talking about. You are missing out on some great moments Chris. Stay positive! You write your leg feels weak ; with als you would have definite problems walking, driving that only get worse.Stop testing yourself : what's the point? Only one woman on this forum (Who had a obvious foot drop!!!) was dx with als. All those thousands others that are twitching like crazy got dx BFS. You have to believe you will get this dx too!Come on Chris, get your mind on some fun stuff. Best of luck,Bart
 
Hi BartI completly understand what your saying ofcourse i do, i have juts been really freaked out by the past few days, i am now getting a pulsating twitch in my calf, its in the same place and its constant.I have like you had 24/7 but in different places in the calf, nothing like this before has happened, it delves in every second and feels like a pulse. It just wont go away.Thanks for your advice thoChris
 
I get those too.Don't get yourself freaked out by some disease you are not likely to have.Twitch but life! ;)Hang in there!Bart
 
Have you ever thought that maybe it IS your pulse? Lots of times I think I'm twitching rather rhythmically, and then I realize it's actually my pulse that my hyper sensitive brain is picking up. In fact I'd say it happens at least a couple of times a day. Most often in my calves and my feet. In fact, if I just stop and concentrate, I can feel almost any muscle in my body twitch right along with my pulse.My advice to you is the same thing anyone else is going to give you. Don't go to ALS sites, ever. Why even do that in the first place? And if you do do that, for heaven's sake, don't come back here and just start trying to scare everyone. Because at that point it's almost like you're just being malicious. It comes off like you're miserable, and you just want everyone else to be miserable too. And I don't think most of the people here are going to appreciate that.Just my 2 cents. Sorry if it came off harsh. Hope you have a better day tomorrow. We've all had days like this.
 
SORRY SORRY SORRY SORRYThat was the last thing i was trying to do, i dont have a malicious bone in me. Really sorry to anyone if thats how that came across like that, LOTS of people have helped me on here and there is no way i would repay them or anyone by scaring them.I will edit my original post now to remove that and sorry to anyone who read that.It might be my pulse ! but the calf moves at same time???Again sorry to anyone, feel bad about that now
 
Sorry, I didn't mean to hurt your feelings either. That just happens to be a sensitive subject with me. I hate the idea of one person causing everyone panic around here. Even if it is unintentional.I have no idea what to tell you about your calf other than it seems like lots of people have had that exact symptom on this board, and the calf is easily one of the most overused and underrested muscles in the entire body. I mean, seriously, you can barely move without putting stress on your calf. If one muscle is going to start wigging out in your body, it is bound to be that one.You just have to remember that benign doesn't mean "nothing is wrong." It translates more literally to "this won't lead to anything else." That has been the key to the name of the symptom that has been very helpful for me. Nowadays I still twitch, but the only difference is that I don't care WHY I am twitching. I twitch, and people who know this stuff tell me it is benign. What more do I need?I'd pay attention to your breathing, your pulse, and your anxiety for a while. The pulse one has always been a biggie with me. I'm so hypersensitive that I can feel it in every little spot in my body. It's a weird feeling to get used to.
 
No you were 100% right to point out what i did, i didnt see it that way and i am grateful you did before more people seen it.Thanks alotChris
 
Just tried the pulse theory but when i put my hand on my neck and feel my pulse its not in time with the pulse feeling in my calf. So i guess that rules that out!
 
Try taking a nice long bath (with Epsom salts if possible) and see if it goes away. Lots of people have said that baths help with twitches. Either that or go outside and go for a walk around the block. Odds are, your calf won't twitch when you are walking.
 
i will go for a run tonight when i get home, seems to take my mind of it, i only really notice it when i am at work, and yes when i walk around i dont seem to notice it. Then when i sit down after a few minutes, it starts up.Chris
 
Well there you go. Almost by definition, that pretty much has to be benign. I notice my twitches mostly at work too. I imagine your calf gets tired just walking from your car to your work chair. And then when you sit down, it gets to rest and has a chance to revolt. That's not clinical weakness, that's muscle fatigue.
 

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