Ok, so it's six months and two weeks since I started twitching and I thought I'd come to terms with it, so why am I still freaking? Well I'm not freaking 24/7, but the anxiety is enough to put a damper on most things and I realise that it has to stop somewhere. For the past month I've been away from my normal routine and, believe it or not, perception of twitching has been at an all time low. But now that I'm back home and have time to think, my anxiety has ramped up again tenfold. I think most of it is down to something my EMG guy said, regarding a six month timeframe. He said, "If anything nasty is going to happen after you start twitching, it usually happens in the first six months OR SO". (Initials are mine). It's the 'OR SO' which is doing my head in. I'm now at six months and two weeks since I first noticed twitches and, however mad it may sound, am currently expecting that something nasty to start happening. And since I've been back home - which is all of two days - I've been twitching more than ever before. Mostly - as usual - in calves and feet arches, but with random hitters elsewhere. Plus I perceive weakness, although I'm able to do all of the strength tests at which I've become such an expert in the past six months.So is this six months business an arbitrary thing? If nothing nasty happens now, should I wait until seven months, then eight, then nine? Why not ten, eleven or twelve? You can see where this is going. I don't want another EMG and my neuro has told me not to bother him any more, and that I should get psychological support rather than neurological reassurance.But how are psychologists going to help when they have no idea of the frustration that one feels from a condition which is described as benign, but which at the same time has all the hallmark signs of something really nasty?Anyway, sorry for venting. Someone the other day remarked on how cool I was over this whole thing, and that I'd finally beaten my anxiety. How wrong they were...
Struggling to Accept Twitching
- Thread starter Soupy27
- Start date
I would like to say you should not really worry about six month or so. In fact change of environment is enogh to make twitches more, and what your EMG guy said means - if in six month or so you still would only twitch, then consider you are safe and OK for sure - but not "Expect something bad if you still would be twitch in six month or so'.I am in over 8 month in BFS now, and of course after 4 weeks of absolutely disturbed sleep because of my daughter summer modus vivendi I.ve got a flareup... but still nothing more that twitches, PW and so on... The life exists past 6 month mark, and even if you still twitch, it is your life and you have more promises than before 
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))But think positive my friend - BFS had opened the rest of your life in a bit different way (or this discovery is still ahead of you, but many many of us made it - that the life is precious). I think it is rather counterproductive to think thay you had lost six month - ok, you did it, but the rest of life is still ahead, yes you lived in fear - but look, I lived in fears for 35 years - how should I regret in that case? it is half of average human being life! Did I spent it in vane? - in no way! I still live in fears (however much less) - because during my personality forming process fears become integral and vital part of my nervous system, finally leading to BFS. Should I regret for that? never ever! I met so many clever people here )) I have got so much of reassurance - clear as gold, no impurity in it, I finally recognize that I really need to manage my life in my way, not in the way my employer needs etc.Seeking of reassurance mentioned by Chrissi was a bit different way - you can observe that in the forume - this is rather the case when somebody takes more care for staying obsessed despite on being told in many ways that things are better than he or she thinks. This is a condition itself, and I doubt that reassurance is really what those people are looking for, sometimes I think that they are looking for acceptance of them as deadly ill... like the teenager sometimes needs to be accepted as bad boy or girl... Sad to think what deep struggle and what desperate needs might be laying behind those patterns...I do not mean of course situation when people really get themselves worse day by day... I mean when they actively and proactively look for what is going worse today...picking up even the least possibility to fall in fears.I do not think it is your way... you just definitely accepted the doctor phrase as "In six month something should happen", but believe me it meant - 'if nothing new would happen in six month, your chances to be Ok jump high".
)) I have got so much of reassurance - clear as gold, no impurity in it, I finally recognize that I really need to manage my life in my way, not in the way my employer needs etc.Seeking of reassurance mentioned by Chrissi was a bit different way - you can observe that in the forume - this is rather the case when somebody takes more care for staying obsessed despite on being told in many ways that things are better than he or she thinks. This is a condition itself, and I doubt that reassurance is really what those people are looking for, sometimes I think that they are looking for acceptance of them as deadly ill... like the teenager sometimes needs to be accepted as bad boy or girl... Sad to think what deep struggle and what desperate needs might be laying behind those patterns...I do not mean of course situation when people really get themselves worse day by day... I mean when they actively and proactively look for what is going worse today...picking up even the least possibility to fall in fears.I do not think it is your way... you just definitely accepted the doctor phrase as "In six month something should happen", but believe me it meant - 'if nothing new would happen in six month, your chances to be Ok jump high".katiemichelle
Active member
Try to move on from this. It's the only way you will truly realize you are OKAY. Waiting for something bad to happen is just wasting precious moments. Like you said, it has already taken 6 months of your life. You are right about seeking reassurance too. It is only a temporary fix until you start to get worried again in a few days, weeks, etc. I try to wake up and say to myself "today you are okay. Today you are the same as you were yesterday". That way I realize that nothing bad is happening and I am still able to do everything I did when I woke up the day before. It's a mental struggle and a long road, but you will get there.
PuppyFurryFunTimes
Well-known member
I couldn't have said it better.. You & I are on the same schedule! 6 months for me too!! I go back and forth & I just wait to wake up one day and see if I can still stand on my feet.... sucks.. It's ALWAYS on my mind. Get a hobby, it'll take your mind off of it!! It's hard but when I'm with my horse I don't seem to have ANY issues.... it's so wierd. I REALLY think the majority of this is in our HEAD. Believe me, I know it's easier said than done because the moment I have ONE little issue is the moment when I will second guess myself with a "what if...?" I hate it, I wouldn't care about BFS if I was 100,000% sure that's ALL it is. But our heads get the best of us. 
At this point, I do believe stress can kill you. And darn BFS for causing more stress!!!!! I SWEAR I didn't twitch until I read about the disease I dare not say!! I thought I had MS ONLY because I have a lazy eyelid. Then went to MG then the rest is history. I was looking up MS in Sept and only started twitching in Jan! THIS WAS AFTER I READ THE SYMPTOMS! Our mind is a powerful thing and the longer we let it get the best of us deeper we get with this whole thing. 3 weeks ago I went to Knotts Berry Farm & rode roller coasters and WALKED ALL day with no issues.. was still ready to keep on! Because I FORGOT about BFS. Cheer up, we're ALL going through the same thing... I'm twitching right along with you!!!! We can have a twitchers party! lol 
At this point, I do believe stress can kill you. And darn BFS for causing more stress!!!!! I SWEAR I didn't twitch until I read about the disease I dare not say!! I thought I had MS ONLY because I have a lazy eyelid. Then went to MG then the rest is history. I was looking up MS in Sept and only started twitching in Jan! THIS WAS AFTER I READ THE SYMPTOMS! Our mind is a powerful thing and the longer we let it get the best of us deeper we get with this whole thing. 3 weeks ago I went to Knotts Berry Farm & rode roller coasters and WALKED ALL day with no issues.. was still ready to keep on! Because I FORGOT about BFS. Cheer up, we're ALL going through the same thing... I'm twitching right along with you!!!! We can have a twitchers party! lol marycaliforniaprayer
Member
Seepi27, I'm right there with you.After taking a medication, I got the twitchies. It's now 10 months later. In week1, I was freaked. Crying, bawling, even writing letters to my parents because I was in fear that one day, I wouldn't be able to write letters on my own. In month 3, I had read that after 6 months, everything should be okay. Then I read other numbers that I won't mention, because they' aren't worth giving a second thought to. Your neuro is right, most things will make an appearance at the 6 month mark.In month 6 I thought "yay, home free", but I was also relying on the hope that the twitches would be completely gone. In month 7, I was thinking "okay, I'll stop worrying if I reach month 8", then in month 8, I'd promise to be worry free in month 9. It's a never ending cycle.On two occasions I thought I had this thing beat, but they came roaring back. Everyday is full of twitches, pain, some tingling, minor pins and needs, and vibration. Some more worse than others. It really is mind over matter. When I was doing my very best, I was eating very healthy, working out, taking the time to relax (I had to play video games, 'cuz if I lay down, I'll feel a twitch and start thinking about things), getting lots of sunlight and I think the most important thing was, I was deep breathing every day. I have an app on my iphone and I would just listen to it while working or on the computer. It became like second nature. I would suggest those things to you, and in fact, I'm gonna turn on my deep breathing app right now 
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