Stay Away from ALS Sites

[TompeteA]

The one piece of advice veterans on this board give unanimously is, "stay of the ALS sites". To no avail, people still go to them as the gospel of what ALS is, and why, of course, they are in its grips. Tired of people dragging non proven statements on to this site, this is what I did.I went to the ALS Forum, signed up as Tom Klipso (this is not my name, Klipso is a slimey fat bullfrog in a short story I wrote for my daughter), put my diagnosis date at 12/2008, filled the rest of the info, and bam, I am on the site.I next started a new thread subject. "Date fasics hit" If you open it it will read "xxxxxxxxxxx". I feel bad messing around a site with people who truely have the disease, but I felt I needed to prove a point, and it is "any dumb ass can post anything they want, true or not". The moral to this story is this, listen to your Neurologist, they speak the truth, and use this site for support, we will give you the support you need when your ALS fears creep in, and if you cannot weed through truth and fiction, you should stay off the internet altogether.The next time someone posts what they read on a ALS forum, I am going to respond "Really, what does Tom Klipso have to say about that"

 

[MPLS1970]

I love it. I am so sick of the "needle in a haystack" people. There are probably people who had BFS and actually got ALS....seems about as possible as the "Dr. missed it the first 3 times stories".Medical technology is pretty darned good, and Drs dont like to make mistakes....btw Tom, get on Facebook and look us up.Search BFS

 

[InkedMama]

I am laughing soooo hard right now at the original poster.....I was on the board (the ALS board ) when two people got busted. ONES mother got on there and said their daughter had mental issues and DID NOT have ALS. Goes to show you- Dont believe everything you read on the net . ALL MY DOCTORS CALL THE NET POISON FOR THE MEDICAL FIELD. Im sorry Kilipso the frog lol ....you made my evening!!Lovely

 

[occasins]

Has someone else already laid claim to the "Munchausen's Syndrome by internet" term? If not, I got dibs.I'm just trying to live in denial of my imaginary disease.