So, I think I've laid the ALS thing to rest (for now,anyway). My twitches and fasiculations, with the help of this site, have died down.This weekend I stood around for most of the day Saturday and Sunday at festivals! My lower backed ached because I hadn't stood that much since last fall!I have been trying to adjust my right arm/shoulder to keep it from buzzing and tingling. I sleep or drive with it extended out, and try not to hold it close to my body. Yet, it still tingles...even under the arm, too. My left ankle also started the buzz..buzz...buzz...buzz again at regular intervals. I still get the "cotton candy hands" sensations. My right leg still gets a tingly vibration when I sit.The neuro said "I'm not worried about you." However, I'm still worried about me - especially with MS. I have a wisdom tooth extraction on Thursday and I am so scared somethingwill happen inside of me- twitches will blow up, etc.
Standing for Long Hours at Festivals
- Thread starter RedFalcon
- Start date
Hi Tiber, do not worry, it happens to every one here (I mean struggling).The only thing which captured my eye again was that you worry about yourself while your neuro does not. Well, it is right that neuro (probably) does not experience twitches (however many neurologists report them either as part of prefessional burden or just becasue in fact BFS is not rare condition and strikes neuros as much as other people) while you do...but I suppose that your neurologist knows at least basics of his science and has some experience to say that your twitches should not be a reason to worry, no matter MS or any other MND...He (or she) just has much more reasons than you to deny any thought of malignant nature of your twitches (seemingly because they lack any other accompanying symptomes to make a picture of ALS, MS, PD, Huntington or other major neurodegenerative disorder), so I think it would be a good idea to stick to doctor's opinion as you know already that twitches like yours are benign (based on the countless similar stories here plus expert opinion of your doctor) and do not waste precious soul energy 
))Wish you good outcome of your stomatological operation,Yulia
))Wish you good outcome of your stomatological operation,YuliaHi Tiber,those symptomes are also common for BFS picture. Optical flashes are mostly what is called 'aura'. I had them once but can not remember whether it was when i was taking gabapentine (lyrica) or not... maybe yes, 'cause it was two years ago soon after onset. So it is quite possible )) Anyway if ophtalmologist does not find any troubles, you may consider this as benign.Many fellows also report 'crawling bug' sensations and other sking sensory issues (wet skin, hot/cold patches, feeling of gum band) etc. Fascial tingling after unpleasant dialog might be caused by hyperventialtion (its main symptomes are fascial numbness, numbness in the distal limbs (fingers/toes) and struggling with the breathing).I wonder sometimes that our symptomes resemble those casued by certain 'enhancment' drugs, like metamphetmines. Mets are known to mess central brain completely, increaing ability of neurons to stay in excited state, causing various processing zones expand and overlap (that is why people can experience very strange body senstaions, including bugs crawling too). Practically phenomenon of numerous somatic symptomes without any substantial physiological changes is intriguing, and because threre are quite a lot of such 'grey zone' conditions, there were some studies performed and I have read recently that neurologists gradually come to idea that we may have combined central and autonomous neural system disregulation causing chaotic response on autonomous level (sudden vessels spasms, swelling of mucosa, urticaria bouts etc.) and at the same time our central brain starts to provide us with the signal which usually are 'technical' and not deliverd to the conscious part of it.It is just like you working on a modern PC and all the BIOS info just pops up here and there on the screen, inluding each and every CPU operation log, temperature etc. Holy crap, it would be a mess!So idea is that we see, hear and sense some extra info from the body, and in some cases we even may have 'interferences' from other analysing parts. So we can hear the light (as tintinnus), see the sounds, for example pulse sound wave (as floaters) and our perception can interpret pulsation of finest capillari in the skin as crawling feeling.it is possible to drop our brain sensitivity down, that is why medication is necessary in some cases, and in some cases it just clams down by itself.
)) Anyway if ophtalmologist does not find any troubles, you may consider this as benign.Many fellows also report 'crawling bug' sensations and other sking sensory issues (wet skin, hot/cold patches, feeling of gum band) etc. Fascial tingling after unpleasant dialog might be caused by hyperventialtion (its main symptomes are fascial numbness, numbness in the distal limbs (fingers/toes) and struggling with the breathing).I wonder sometimes that our symptomes resemble those casued by certain 'enhancment' drugs, like metamphetmines. Mets are known to mess central brain completely, increaing ability of neurons to stay in excited state, causing various processing zones expand and overlap (that is why people can experience very strange body senstaions, including bugs crawling too). Practically phenomenon of numerous somatic symptomes without any substantial physiological changes is intriguing, and because threre are quite a lot of such 'grey zone' conditions, there were some studies performed and I have read recently that neurologists gradually come to idea that we may have combined central and autonomous neural system disregulation causing chaotic response on autonomous level (sudden vessels spasms, swelling of mucosa, urticaria bouts etc.) and at the same time our central brain starts to provide us with the signal which usually are 'technical' and not deliverd to the conscious part of it.It is just like you working on a modern PC and all the BIOS info just pops up here and there on the screen, inluding each and every CPU operation log, temperature etc. Holy crap, it would be a mess!So idea is that we see, hear and sense some extra info from the body, and in some cases we even may have 'interferences' from other analysing parts. So we can hear the light (as tintinnus), see the sounds, for example pulse sound wave (as floaters) and our perception can interpret pulsation of finest capillari in the skin as crawling feeling.it is possible to drop our brain sensitivity down, that is why medication is necessary in some cases, and in some cases it just clams down by itself.