Slurred Speech - Scared and Unsure

Highlights Only
J

jane3potter3

Member
I am so scared. A couple of days ago I started noticing some of my words are slurred. I feel like I am having trouble getting them out. My husband doesn't hear anything wrong. I had an EMG one month ago on 3 limbs which was completely normal. My neurologist is 100% certain that I do not have any form of ***. She said this includes bulbar. I don't know what to think or do. I really need some advice. Thanks. Sarah.
 
Sarah, hon, believe your neuro. You really are fine! You may feel like you are slurring, but you're not! You are okay!BlessingsCindy
 
As some of you may or may not know depending on how long you have been here I have also struggled with tongue cramps, twitching, spasticy etc etc. It comes and it goes. I also have the speech slurring fear at the begining of all this but I am still here after all these years. I have also had several EMG s and still things are fine. I have always considered having BCFS sxs in the bulbar region very difficult to deal with. More so than the random twitching that most BFSs experience. But the tongue is like every other muscle in the body for some of us it will be our "problem are." Sarah indeed it comes and goes sometimes it takes longer and I totally get your fear but if your neurologist and your EMG say other wise then you could potentially have an array of neurological illnesses. It just happens to be medical FACT that ALS is not one of them. You'll live! A week from now maybe three weeks from now you will wake up and the tongue thing will be gone. The problem is that you will find that the weird sensation moved somewhere else and you will be posting it here and we will do the reassurance for you again. It has happened to all of us. Eventually you'll be left with no choice but to believe your neuro.
 
Zekebcfs, have you ever felt a pullilng feeling from the back of your tongue? Do you know, would an EMG on 3 limbs rule out bulbar? Thanks for your help. Sarah.
 
Three years ago I was at the Tonight Show and I was three quarters of the way into the show when guess what hits me. The dreaded pulling of my tongue. I had to leave the show and ended up at St Joseph's in Burbank. After an injection of Ativa (say injection). I WAS GOOD TO GO! So yes it has happened many times to me and the EMG would have already shown ALS in other areas of your body even if they have no sxs now! I waited 5 hours in line after an exhausting week of work. I should have just headed to the apartment. BTW I was second to last of the alternates to actually make it into the show. Otherwise it would have been a wasted 5 hours. Look at some my old posts if you want to see something about tongue issues.
 
Hey Zeke,I know you have a had a lot of tongue issues and my tongue has now become the worst spot too. I get the pulling, burning, twitching, tightness, buzzing, tingling and numbness, pretty much you name it. What exactly is the spasticity? Is that the tight, tingly rippling feeling?
 
Sarah that is correct. Rememeber that it is just a sensation not the actual tightness. Wrong messages being delivered through your nerves. Just a sensation that goes away in time. Keep me posted on how you feel. Have you ever had a Brain or Cranial nerve MRI? Have you ever seen an ENT for an evaluation of your tongue? Low B12 in many instances causes an enlarged tongue and you may already know that it really causes mad twitching....Low B12 in the body.
 
Zeke, were you talking to me? I think you were, but I'm Nettie, not Sarah. I never had an MRI at all. I actually requested one from the neuro but he said that it was unnecessary. I have also asked to have my Vitamin B12 in the body evaluated because I heard low B12 causes twitching as well but the doctor kind of shrugged me off and said to take a multi vitamin. I am on Protonix for GERD and I heard that can cause Vitamins to not be absorbed properly in the body so I would have liked it checked, but so far not even my GP will check it. It's funny you mention it because a lot of times, it does feel like my tongue is enlarged. I haven't ever seen an ENT but maybe I should make an appointment with one. I do have another appointment with my neuro in a couple weeks so maybe I should be more persistant on the MRI and testing my B12 levels.Nettie
 
Zeke, were you talking to me? I think you were, but I'm Nettie, not Sarah. I never had an MRI at all. I actually requested one from the neuro but he said that it was unnecessary. I have also asked to have my Vitamin B12 in the body evaluated because I heard low B12 causes twitching as well but the doctor kind of shrugged me off and said to take a multi vitamin. I am on Protonix for GERD and I heard that can cause Vitamins to not be absorbed properly in the body so I would have liked it checked, but so far not even my GP will check it. It's funny you mention it because a lot of times, it does feel like my tongue is enlarged. I haven't ever seen an ENT but maybe I should make an appointment with one. I do have another appointment with my neuro in a couple weeks so maybe I should be more persistant on the MRI and testing my B12 levels.Nettie
 

Users who are viewing this thread

Total: 1 (members: 0, guests: 1)
Back
Top