saltandpepper
Member
Hi there,I've been posting here for about a month and am (quite clearly) an anxious wreck. I was feeling really good on Friday as I had this marked the point where in the past two weeks I had 1) clean clinical exam and 2) a clean EMG of legs, arms, and tongue. Hooray, I was elated....for like a day. I should say that my real fear was/is Bulbar since I feel like while it's fairly easy to detect clinical weakness in limbs, it's more vague in the face/tongue/throat. Now I am having all these new Bulbar symptoms creep up (my voice is more nasally - like a have a little cold - really when I just say "m's" and "n's") and I'm having some swallowing issues (feels like food is going up back of throat or nasal passage). I don't know what to do at this point...could these things be new symptoms and I should get retested for bulbar? I went in yesterday and asked my neuro (who does not sound like she has a lot of experience with this stuff - she's only 32 and said she's only seen 2 ) about my swallowing issue/nasal speech. She said it's hard to tell if my speech is more nasal with only having seen me a few times but she doesn't detect anything alarming in my speech/voice and did a quick facial clinical (looked again at my tongue/soft palate and did some facial strength testing). She concluded that I should get a swallow test and see an ENT but that there is nothing about this that seems neuromuscular and assured me that "we are NOT dealing w/ ALS here!".I want to believe her soooo badly. I don't need to get retested, right? I'm guessing I should just take the evidence presented (only 32, presented w/ twitching all over, clear EMG), go see the swallow person and move on. Easier said than done I guess. If I weren't pregnant I'd be taking anxiety meds but no can do 
. Any insights would be so appreciated. THANKS ALL!
. Any insights would be so appreciated. THANKS ALL!