Shaky Hands and Eye Twitching

[angusglover]

Does anyone else get shaky hands? I am noticing that if I lift my fingers on my left hand slightly, they shake and twitch about and when I take a drink with my left hand it is like it is shaking...I also get the feelings of weakness in arms and legs but do not seem to have lost strength. The most annoying thing recently is my right eye!! It twitches for a while, then it goes away, then it returns!! It is very slight and you have to look closely to notice it but I can see it and feel it!!Most annoying. Today, the feelings of weakness seem to be bad in my legs and arms...

 

[LivelyCheer]

Yep. I have had bfs for almost 2 years now...I have twitches 24/7 almost not stop....but I have gotten over any concern about the twiches. The shaky twitching hands and fingers bother me the most. Inderol and or klonapin may help some. Lack of sleep and any worry makes it much worse. I have given up coffee. Meditation helps some too. No other supplements really help me....and I have taken a lot of them in the past.good luckChip

 

[sparkrlock]

Hey-This is very common. Actually this is what sent me to the GP and then he sent me to the neurologist for it. My hands and arms would shake so bad that I would not be able to type a number into my cell phone. This happened for about a month or so and then the twitches started. I have FULLY discussed tremors with two neurologists and they say that people with BFS and BCFS almost always have some form of tremors. If I do a sit-up at about 20 degrees my entire body shakes like its out of control and to this day I still get tremors in my hands, and arms when I hold them above my head (I get bouts where it feels like my arms and legs are VERY weak but this is also normal...because it recovers in days or at most a weeks time or so). Both neuros said it was essential tremor and they dont know why but people that have twitching seem to notice this as one of the most common other symptoms at some point. So dont worry anymore, its all part of BFS. Nothing to worry about at all!Sean B.

 

[sarahh]

Sean B,I was just sitting here wondering how in the world my hands could be shaking so badly. THANKS so much for your response. I feel like jello today with shakes and tremors all over. Very unpleasant and frightening feeling. My most recent flare-up since Feb has brought new symptoms and this is one of them!Stacy

 

[angusglover]

Thanks guys...it seems the list of symptoms gets longer and longer ))))

 

[crazyelvis]

I get them in my legs too? Anyone else?

 

[angusglover]

OH yes, arms, legs, hands...anyone get the tremors in pelvic area? How wierd...

 

[DJH621]

Major symtom of mine over the years. It comes and goes....Best Wishes, Denise

 

[holisticdriver]

The twitching in your eye is a very common symptom of stress and anxiety, the "shaky hands" you describe sounds very much like essential tremor which although can be a symptom of BFS there has never been any clear evidence between the two and no competent neurologist would base a diagnosis of BFS on shaky hands.Essential tremor is quite common and is not a symptom alone of any neurological problem, most people that suffer from it see fluctuations if they are stressed, drink too much caffeine, low blood sugar, side effect of medication, fatigue etc etc etcIn your case, the fact you are concentrating on it is almost certaintly making it worse, the feelings of weakness without the loss of strength just suggests general fatigue which goes hand in hand with stress...how is your mental state right now? I'm no doctor so I can't say for certain but based on what you have posted it doesn't sound like you have much to worry about.

 

[angusglover]

Thanks for the reply.I am pretty sure I dont have ALS, which is kind of reassuring I guess but the tremors are a little worrying. I have them all over my body now. It feels like my whole body shakes all the time...every muscle tremoring. My hands have a definite intentional tremor and my index and thumbs on each hand tremor and move side to side when trying to do fiddly things like send ing a text.I did go for bloods and I got a letter yesterday to say that my liver count was "slightly upset" so I have to redo in 4 weeks but going to see doc to see what the hell that means.I do get wierd thitches in my buttocks, pelvic area etc but not so that my limbs move etc.My concern now is MS. I was always concerned that my symptoms were close to ALS and MS but the lack of strength \ atrophy points me more to MS than ALS. I did have MRI of head and neck and my neuro saw nothing but I believe MS can be missed on MRI.Mental state? Well, apart from the anxiety about this, relatively ok...

 

[heresAether]

I too have similar symptoms with shaking. I lift weights many days a week and often shake, sometimes a lot, when exerting myself. I have no trouble actually lifting any weights, it does not stop me from getting stronger, but it has worried me as well. I have been twitching for somewhere around 6 years and am as able to exercise and lift objects as ever, but I defintely shake. I think the shaking is worse during a particularly severe flare up of twitching, I wonder if all the twitching is making our muscles slightly tired leading to the shakes while exerting. My left pinky also shakes significantly when holding a glass or something like that, but is still just as strong as all my other fingers. I'm glad to see many others have these same symptoms.

 

[alyLeoNCali]

Angus:I saw your very recent post about a good neuro visit - congrats!To address the "shaky hands" question for anyone who is concerned about experiencing this sensation, I hope to provide encouragement by noting that I started having BFS symptoms over 4 years ago, including the shaky hands. During the first awful couple of months, I remember that I tried to act normal, going out to lunch with coworkers, but I had trouble feeding myself with my shaky hand! I remember working at the computer, trying to rest my chin in my hand, yet my chin was trembling so mightily that it hardly stayed in place. When I'd lean into the bathtub to turn on the spigot for a shower, my leaning arm would quake and my reaching arm would ratchet. All these symptoms (and others) lessened over the period of several months.I got much better after the first few months, and I've gotten no worse since then (although I do have episodes where one symptom or another temporarily worsens).Years later, I still notice symptoms but no longer worry about them. For instance, sometimes I'll be standing in line for a cash register while shopping and I'll detachedly watch the fingers on one hand just rhythmically twitch. Sometimes I get eye twitchies. Often I get mouth twitches (visible to others, I'm sure). My singing voice is shot. But I'm grateful that what I feared to be a degenerative condition has turned out to be just an ongoing annoyance.If this BFS crap is new to you, please take note that after you accept that it won't get worse and will probably get better (not completely go away, though), then you will probably be able to ignore it and get on with life. I sincerely wish this (or better) for everyone dealing with BFS!--alyLeoNCali