Sensory Symptoms and Palpitations

smithylab

Well-known member
So let me try to make sense of my topic here.When all of this began for me, it started with a lot of sensory issues as well as heart palpitations. My symptoms were: tingling right arm, numb toe, cold sensation on knee, electrical zaps in my brain and body, itchy skin, dry mouth, jittery hands, heavy limbs,heart palpitations, probably more but I can't remember right now. Mostly sensory issues though.A couple of weeks after this onset, twitching slowly began to creep up on me. I started having a lot more twitching throughout my body, and most of the other symptoms went away. During this period I had twitching, limbs falling asleep easily, sore muscles, strained feeling muscles, finger and toe jerks, globus sensation, and a few other symptoms.Present day, my twitching has died down greatly, I don't twitch much at all (*knock on wood,) though now I have horrible pains on my right shoulder to my fingers, they feel so tight and crampy..very painful to bend them. I also have pains on my right leg, like a strained hamstring and calf. I still have sore muscles, but not as intense. My main issue is the extreme pain that extends from my right shoulder down to my fingers. When I rotate my arm around, it almost feels like it is not aligned or something, it also cracks sometimes. My painful fingers make it hard for me to do things because they hurt so much.So basically I went from Sensory, to Twitching, to Pain being by main concerns within a 4 month period. Does any of this make sense to anyone?
 
Of course. BFS changes all the time. Just when you are getting used to it being one way, bam, it will throw you off guard and suddenly show up as something else. This is why it's best to always stay on your toes and not to take it too seriously. If you get feelings of doomsday every time BFS changes or morphs or starts doing new things, you will drive yourself crazy over it.This is why I suggest that people keep a symptom journal. You should write down what symptoms you are experiencing at any one time. And then go back and look at your past entries to see what the pattern is. Because sometimes there is a pattern. For example, my legs will get all stiff and sore, and the nerves down the side of my legs will start to feel pain around this time every year (late September). I don't know why that is, but it used to freak me out until my wife pointed out that it happens every year. She told me, "You always complain about this right around the time the kids go back to school. Don't you remember that?" And I honestly didn't remember. It wasn't until I kept a journal and looked back at my old symptoms that I started to realize that much of BFS is cyclical. It tends to change with the seasons, with the time of year, with the weather. If you get too wrapped up in the present and stop paying attention to the big picture, you tend to forget that.Another thing that is helpful with a symptom journal. You can read about symptoms that you don't even remember. For example, when my BFS started (5 years ago) I wrote over and over in my journal about this twitch in the back of my neck, and how it was driving me crazy. I would always list that as my worst twitch, and how it never stopped, and how it drove me bonkers. I would always list it as a 10 out of 10 in intensity and bothersomeness. But here's the deal. I was reading through my old journal today and I don't even REMEMBER that twitch. I don't even remember having it. It is like someone else other than me wrote that journal, because as far as I can remember I don't recall ever being bothered by a back of the neck twitch. So a journal can be helpful in the sense that it makes you realize that stuff that bothers you now won't always bother you. Soon it will move on to some other weird symptom. You just have to learn to roll with the punches and go with it. After all, it is nothing sinister, it is just BFS.Apparently in my journal I was also bothered by my right tricep twitching five years ago. Again, I don't remember that either. I certainly don't twitch there now. Apparently 5 years ago I was kind of a wuss.
 
Yes iot started in me sensory, quickly went to twitching all over then to pain and to twitching hot spots. There are some better days but overall I have progressed to worse (I keep journal), I am in a somehow worse state than half year ago. Symptoms change but old one rarely dissapear, although some do hide for a while.
 
It is interesting that you mention heart palpitations and an electric zap sensation, my twitching and other symptoms began after a bout of atrial fibrillation almost 4 months ago. I noticed a slight increase in twitches about a month after the afib event but in that period I also had several episodes where I felt as it there was a jolt of electricity in my chest, almost like an adrenaline dump. I have long been prone to palpitations I wonder how many other people here have an abnormal amount of them? Anyway about a month and a half after the afib event, I had this episode where my left arm started tremoring and jerking, mostly near the wrist, and after that doctor google introduced me to the fear of ALS and since then the twitches have been full blown, as well as internal vibrating, tremoring in the hands, episodes where muscles will "pop" and jerk in static postures, tingling in the hands and legs and occasional pain in the hands that doesn't quite feel like a cramp, as well as a general increase in fatigue.Also of interest is that my mother has fibromyalgia, my cousin a mystery neurological condition that baffles her doctors, many members of my family have a begin essential tremor in the hands, and we all have G.I. issues and palpitations to a man. I wonder if some people are just genetically predisposed to BFS.
 

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