Sensory Issues: BFS v. PN?

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mommyLDN

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I am really hoping someone can answer this question, and I'm not trying to sound rude at all when I say, please dont answer if you are not sure about the information you give. Ok with that being said, How does someone know if they are just having some sensory issues due to BFS and anxiety, or if they are having sensory issues due to a Peripheral Neuropathy sittuation. I mean, if its a PN, shouldnt it be dxsd early so you can try to benefit from some treatment to prevent further damage?I have got some real sensory stuff going on that affects the way I feel touch. Its really starting to mess with my head, and I swear, my anxiety would not be this high if I was not having these symptoms, stuff like always feeling like my sock is bunched up under my foot but its not, feeling water like sensations, feeling like my whole body is kinda numb. The feeling of having to adjust to the way my feet feel either with shoes on or off. I dont see how any of this is being caused by anxiety.Can anyone please help me filter some of this out. I can still feel temperature changes, and my signals of pain stimuli all seem to be normal, just the sensation of touch feels like something is really off. Very hard to explain. Can anyone offer any suggestions or insight on all this?? Thanks so much for taking the time to read this.Robynn
 
I suffered from the BFS symptoms of twitching, muscle spasms, anxiety (a great deal of anxiety), and I also had episodes of foggy brain and poor memory recall. I realize these symptoms don't include the sensory problems you describe, but I do have a suggestion in regards to the anxiety. Please hear me out because although my symptoms are not the same as yours, the doctors told me that mine were being caused by stress and anxiety too and wanted to prescribe me antidepressant pills. This solution is far less costly, doesn't require a prescription, and should go a great way towards helping with your anxiety.My mother is big into homeopathy. When I shared with her the problems I was having, she recommended a dietary supplement which usually comes in capsule form called Valerian Root. You can buy it at most natural food and health stores (Whole Foods carries it). It is a natural relaxant and nerve calmer but it DOES NOT MAKE YOU DROWSY (I emphasize this because it won't interfere with your daily life). I started out taking 2 to 3 capsules of a generic store brand at night in order to calm my nerves enough to sleep. It did indeed work. Later when I saw a homeopathic doctor they gave me a Valerian Root herbal blend called 'Formula 303'. Since its non-prescription, you can google it on the internet and find a store that carries it by you. I had more success with this brand. The doctor told me that it was safe to use intensively for a few weeks at a time and recommended that I take 2 pills with each meal and right before bed (4x per day). It was amazing the difference this made in my anxiety levels. My BFS symptoms did indeed settle down, but they did not go away completely. It was strange because for the longest time, I would sometimes almost have panic attacks worrying about the symptoms. When I was intensively using the Valerian (Formula 303) I continued to experience symptoms (although more mild) but I did not have one single panic attack and I slept better at night.So since you are concerned with whether or not your symptoms are anxiety related, this would be an excellent way for you to put it to a test. Google Formula 303 and see if you can find it near you. Its fairly inexpensive. If you can't find it, just get the generic Valerian Root. Take it intensively for a few days and see how you feel. This may give you some answers.In my case, I later found out that my BFS symptoms were being caused by a food sensitivity. And as it further turned out my food sensitivity was being caused by another condition which I am now undergoing treatment for. If you have digestive problems or have ever been diagnosed with Irritable Bowel Syndrome (IBS) in the past, its possible you could be suffering from the same condition I am. I have a rather lengthy but detailed post on my experience in the 'Experience with BFS' section of this forum if you would like to read up on it. Keep us posted if you decide to try this out. I'd be curious to hear your results. And good luck!
 
Thank you for all of your advice everyone. But Barbie, just so it is said, I have been speaking to my doctor, and I'm not relying on a message board for exact medical advise. I just wanted some opinions on my thoughts and what I was being told. No more, no less, but thank you for responding. :)
 
No, he didnt say that, but I also was not having all these sensory issues the last time he saw me, which was roughly 1 and 1/2 months ago. I have an appt. with him next thursday, and I will be bringing it up. Thanks Barbie
 
PInprick... that is what happened to me. 15 months of just twitches then I suddenly felt like I was getting nerve pain around my body. Sometimes it felt like someone was burning me with a cigarette or like I was being stung by a bee. It has settled down a bit burt it's still there. I have no idea what brought it on. I hope it goes away.
 
I agree.My BFS list at the beginning was just calf twitching. But 7 months on the list ( with twitches now bodywide) is extensive with a lot of sensory stuff. When will it peak?.... who knows. Drives me crazy..what next. A 'lucky dip' that isn't that lucky! Lucky it's benign! cheersRodger
 
Look to my story1992 then suddenly 95% twitches + 5% sensory stuff + trembling on left side only... stuff reduced (still trembling)1999 - New Flare up of that crap - 0 % Twitches + 100% sensory stuff ( on top of 1992 remainder)... stuff reduced (still trembling)2005 approximatively - Another new flare up - 0% Twitches + 100% sensory stuff (on top of the previous stuff)... stuff reduced (still trembling)2008 - Another one - 20% Twitches + 80% sensory stuff addedEnough is enough ... :mad: :mad:
 

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