Self-Diagnosed: Tongue Twitching

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JOHN1589KY

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Well once again I have found myself performing neuro exams on myself. (Dont you guys just love health anxiety?) At any rate, I was looking in the mirror at my tongue & I started moving it side to side quickly inside my mouth. All seemed well, until I let my tongue rest. I noticed the tip of my tongue and the left lateral side twitch for several seconds. I once again diagnosed myself with ***. I repeated the tongue test several more times & got the same results, I feel like I have problems starting a swallow with solid food, but not liquids. I'm also pretty sure my tongue is starting to atrophy & my speech slurs a few times a day. Next neuro appointment is not till January. Looks like the holidays are gonna be filled with anxiety & stress this year. PCP put me on anti-anxiety meds, but they dont seem effective. Hope everyone is having a good day! Stay Safe!John-
 
Don't be worried... I have a twitch on my tongue tip that's sometimes there all day when I speak etc and makes me conscious of how I am talking !! You find yourself over analysing your pronounciation ..What you are doing is triggering a twitch / spasm by moving your tongue... I can do the same if I rub my tongue against the roof of my mouth firmly then stick it out, the front left kinda does a spasm them settles... Try firmly rubbing your finger down your tongue and stick it out ... It will prob twitch.. I'm putting it down to being sensitive with BFS ! Mine even twitches if I yawn or drink a hot drink...
 
I was sitting here this morning and got a phone call from my neuro's office. I thought it was kind of unusual, because my next appointment with him is scheduled for January. Anyway, they were actually calling to confirm an appointment for tomorrow. (I guess whoever made my follow up appointment from last time put 11 for november instead 1 for January.) regardless, I think I will take advantage of their mistake so maybe I can get some more answers. Thought I would share with you guys. Stay safe!John-
 
How's your tongue been ? Mine was not too twitchy on the tip today thank goodness but I got a few zaps on the left and right ... One done a burst of like 6 or 7 zaps :( But all in all today was a not so twitchy day for me! Hope your hanging in there ok, not long until your neuro apt.
 
Seen the neuro today. He is a really great guy. He informed me that my clinical exam appeared normal. They are going to to conduct EMG/NCV in a couple of weeks. & they also did some blood work. I'm gonna keep my fingers crossed. Stay safe guys.John-
 
Do you take the meds prescribed following the course? no quits, no missed pills, no change of dose on your own decision? That is one point usually revealed in people who say that antianxiety meds do not help - thye often are just not compliant.Second point is that meds, even if taken in compliance with the scheme prescribed, may and will lower general level of excitation of central brain helping to regain some criticality. But once your neuron net was formed under stress in a way that every info is going to amygdala and causes ALARM bell to ring and preventing you from critical thinking, no meds can bring it back to previous structure. This needs your thouthful efforts, that is why ususlly CBT works so good after initial excitation level is lowered enough.People start to take meds usually in the situation when literally every innocent issue seem to be causing panick reaction. Sneezing - oh, I must have ebola! Twitching - holy crap, ALS! Gut cramp - oooooo nooooo colon cancer, etc. etc. When due to meds one can say 'God bless me!' after having sneezing (without subsequent fear of Ebola), it is time to put on critical part of the mind :))))as for your self-provoked tongue twitch, it does not look sinister at all. I wonder what really people managed to do with their tongues herer beofre deciding they have tongue twitch (probably, I did not read only about an effort to lift a 1 kilo sportweight with the tongue, all the rest incredible loads were present - weird tongue positions, exertion of unusual tonge stress, attmpts to put it as much far out of the mouth up to jaw dislocation... everything.Please do not make your mouth a gym for your tongue. Enjoy it by eating, dringking, singing and kissing your dear. Do not please exercise it, it is not for that :)))
 
Well, I have an EMG/NCV coming up on November 25th, hopefully this will give me answers and peace of mind. I am so tired of being depressed and stressed out. I just want my life to go back to the way it was, but each and every day it just seems like i slip farther away from the life i once knew. Anytime I start to feel better for one second, one of my muscles will twitch, or I will notice myself "slurring" my words, and right back into panic mode I go. Gonna be a long night, stay safe guys! John-
 
I feel for you. I am in the same boat right now & have been for 2 solid months. Everyday it seems like there is something new or different & it scares me. Thankfully we have the support of this website. My neuro ordered repeat emg/ncs in a couple of weeks also. They also ordered something called the BLINK study, which I believe is a nerve conduction study of the face since I have these weird facial sensations. I am sure that will be a fun test!!! :)
 
Why do they order a 2nd test if the first is ok ? That concerns me... I am scheduled for an EMG on Thursday and I thought if its ok them that's the clean bill of health right there !
 
Mine was ordered because I was there last week & they said they always do a follow up EMG/NCS. I am good with that because I have had some new symptoms develop--cramping in calves & this facial sensation that won't go away. My first EMG was clean on my legs but my right arm had fibrillation potentials/acute denervation of APB muscle which is usually carpal tunnel--but the hand doc is perplexed because I don't have classic symptoms, so that has caused me to not have complete reassurance. If I had been 100% clean I think I would be in better mental shape.
 
Right ok.... I'm going private or the emg but I was thinking on cancelling but I just don't like how my tongue tip is constantly twitching.... I know I've been told its just like any other muscle but it concerns me, I don't even mind the random body ones, I guess I just need reassured and from what I've read most people here have had that reassurance at some stage.. Good luck on the follow up !
 
Don't ya just love the nights when you worry so much that you can't sleep??? Tonight is one of those nights for me. I am trying to focus on the fact that my EMG is only 8 days away. But that seems like an eternity. To make things worse, my hands and feet have been having a lot of aching/cramping like pains. I have even been having some mild pain on one side of my jaw, and under the front of my chin. Seems like I never get a break from the torment. Stay safe guys!
 
Bulbar is so rare, and even rarer for those under 50, which I'm assuming many of us are. Moreover, you'd likely have someserious noticeable issues swallowing and talking before noticing twitching. Its progression is so rapid that there's no mistaking it. My first neuro told me this back when I had bulbar fears due to scary as hell tongue twitching in 2009. Usually it's the doctor that notices the fascics, and the patient comes in complaining that they sound like they had a stroke. This was the case too of a friend's family member, who literally went to bed ok and woke up sounding off. They took her to the ER because she thought she had suffered a stroke through the night due to her speech,but poor lady had bulbar. Sending positive thoughts and prayers to you John and to all the members dealing with anxiety and having to wait for answers. With bfs unlike the dreaded disease, time is on our side.
 
My EMG is coming up this Monday, I am hoping all comes out clean. I am still worried a lot, the last couple of days my calf muscles have felt really tight, almost like they are going to cramp up, but it does not progress all the way to a cramp. It always seems to be worse in the morning. Everytime I think things cant get any worse, I seem to develop a new symptom. Whats next??? I started seeing a psychologist recently hoping they could help me get a grip on my anxiety, but help doesnt seem to be helping..... Anyone else have problems with cramping or tight calf muscles???
 
Help from physchologist ususally comes slowly :)The nature of BFS, and it is typical for many anxety disorders, is that you have an excitation focus i your brain which is a kind of very fine tuned antenna looking for really any signal and interpreting it as pain, tightness etc. Lack of one signal leads it to look for another one, that is why I call BFS "Crazy show' - each week new program. By the way it is also good sign confirming that you got only mood disorder with somatic symptomes nothing else :)as for your calves, you are waiting for EMG and most probably feel a bit between the devil and the deep blue see - on one side, maybe relief& on another - maybe a death sentence? So you may easiy be in that controversal situation of fly or freeze feeding your somatic symptomes as well as anxiety.Sometimes it helps me, and maybe it might help ypu - well, e all may be aware of possible bad outcome, but it soes not mean we should prohibit ourselves to live good life before really we weould be not able to feel how it tastes. We should not do that in advance- die in advance. There would be time to die for sure. But not right now.
 
Hi John, my tongue started twitching months ago,prob 5 months but I thought it was just going numb or buzzing but as it didn't stay constant I didn't look in the mirror until about 9/10 weeks ago I did as it was just doing it constant ... I freaked as my tongue was actually twitching... Now I had a chin twitch about 4 years ago that stayed for months so I kinda calmed down for a couple of weeks but it still twitched, dr google out me into a tail spin and my anxiety became uncontrollable to the point I couldn't eat or properly function and then I started twitching from head to toe...I have always twitched but never so many hot spots and never so constant, it i look at my calves they twitch somewhere every second and I get all kinds of buzzing and twitches !! My point is, it's similar to you... I had a clinical, EMG & NCS and the doctor/neurologist said that everything is normal but he doesn't know why I twitch, he said it was BFS in the clinical and after the emg he said it confirmed his dx ! He said he would like a follow up in a couple of months to be sure but he stated that he is not worried about me at all and that if I don't want a follow up I didn't need to go..So... With all that twitching I too got normal results, I am sure you will join the long list of members that have embarked on the same journey and had the same outcome.Good luck Paul
 
Had an EMG of my left leg and my thoracic paraspinal muscles on Monday. Doctor said there wasnt any evidence of *** on my EMG. He wants to follow up with a clinical in 3 months. Guess now we wait and see. Seems like the twitches have been worse in my legs the last few days. I just wish they would go away. Gosh this sucks.
 

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