judgementallaw
New member
I need some encouragement. I am terrified and freaking out. I apologize in advance for the long post; I just wanted to make sure it was complete.About a year or two ago, I would walk around and get cramps in my legs from time to time. I was pretty sure I was dehydrated because I was an undiagnosed diabetic (since diagnosed and taking better care of it). I always felt dehydrated when that was happening. Once I made sure I was hydrated, the cramps stopped. After they stopped, I kept getting leg twitches when I would go on walks. I thought they were just cramps trying to start up so I always rested right away and they would go away. Then, about a year ago, the same twitches started happening at night, maybe once or twice a week. They didn't bother me that much. I would just change positions and they would usually go away.About three months ago, my right eye started twitching uncontrollably (top and bottom), completely randomly. After a month of everyday, pretty much all-day twitching, that stopped. Then I started to notice twitching all over my body. In my legs (again), arms, stomach, back, and then even in my hands and fingers. It is so bad sometimes that after writing or cutting, my fingers will start to twitch from side to side. It's usually the middle one on my right hand but can be others too (including my thumb). I went to my primary doctor, who sent me to the neurologist. Both the primary and the neurologist (about one month ago) did clinical exams and said everything (strength, reflexes, and breathing) were normal. The neurologist said well if you want I can give you an EMG but it will be "uncomfortable." When I asked what he recommended, he said, "I like to come to a negotiated agreement with my patients." Well, being afraid of needles and electric shocks, he told me to take comfort in his words and come back if I wanted the test. Well, it seems like my twitches have gotten worse. Most often they are quick but sometimes, like last night, my back twitch went on for a good hour constantly unless I got up and moved around, at which point it got better but still tried to twitch. I also noticed that after writing/taking notes, if my wrist is unsupported, it seems to tremble (as do my fingers for a few seconds, until I relax them.) I am terrified that this is MND weakness. I can still open jars, etc. etc. I haven't noticed not being able to do anything I used to be able to do except for not wanting to write/type because my finger twitch might act up. I'm also scared because I figured if it were stress, none of this would happen when I sleep or am relaxing. On the contrary, my twitches sometimes wake me up. Even when I wake up in the morning, I can almost always feel them somewhere. I know I am under a good deal of stress, though I am only 25. I just graduated from law school and am studying to take the bar exam in July. That being said, when I was a first year law student (and much more scared of failing out), I had no twitches! I can't understand why they have come now. My twitching has been so bad that all I can think about all day and night is what I would tell my family and what I would do if the doctor tells me I have MND. I finally bit the bullet and scheduled an EMG for this Thursday. Then I did something really stupid. I watched EMGs on Youtube and looked at abnormal test results. Now I am freaking out about having my EMG, both because of the pain but mostly because I fear a bad result. I am kicking myself for watching that.I am also freaking out because, although I am only 25 (which I hear is young for MND issues), I read that 7% of MND sufferers started with fasciculations. I saw on the ALS forum that many of the "PALS" would even dispute that number, saying it should be much higher. That has significantly added to my freaking out.I keep reading all of your posts and was reassured until I realized that most of you had EMGs done, which I still haven't. That is to say, I don't feel as confident as all of you. Anyway, I guess I just needed to vent and see what you guys think. I hope that I will still be able to post in the community after my EMG on Thurs. and not in any of the more ominous forums... Thanks!
) ....and everything u have described sounds like bfs to me.... 
He kept moving the needle around inside my muscle. He heard fascics in areas I have never felt them before and found nothing in some of my hot spots. 
Other than that, he said there was nothing that would indicate anything sinister. 