Seeking Advice for Toe Pain

[ratolf]

I posted something similer on another board but feel the support group is better for this query.
I am 43 male overweight but basically good health.
I went to my PCP who is a DO 2 weeks ago for hip and butt pain, I was limping and stiff. He said my hips were misaligned and straightened me out told me to stretch and lose weight and sent me on my way.
That weekend I noticed my ring toe on my left foot twitch 5-10 times and on Sunday might left forefinger twitched for 20-30 seconds.
I googled, freaked, found this place calmmed down
and am now overcome again with anxiety.

My twitching has been mostly left finger with some lip and eye area and I feel some general twitching later in the evening and before bed.

I can do all the strength tests in the neuro exam OK but self tested my knee reflexes and my legs almost went straight out!!

I also had terrible cramps last night in both calves for the first time.

I also feel clumsy with my hands and feet.

I do feel somewhat weak but VERY hyped up. I walked around for 3-4 hours on Saturday and drove 5 hours on Sunday without fatigue so it 's probably perception.

The thing that has me the most freaked out is my reflexes plus finger twitching, the reflexes must have been +4 when I went in for my back adjustment and they are through the roof now with my self-testing.

I am going to my pcp tomorrow and expect the worst. *** and 1 year to live.

What is happening to me ????

Zengolf

Now

 

[hCapitalize]

Lets see who gets buried first

I am now 8 months into my latest bout of worrying, and I am expecting to see Christmas without being in a wheelchair, which is more than I estimated for myself when I was in my real panic.

Right now I reckon I am more likely to die of pneumonia the way I am feeling and given my family history as it is heart and lungs that have seen most of them off, and I am not feeling very well myself today.

Twitching doesn't equal *LS, Atrophy does not even equal *LS Atrophy and Twitching don't equal *LS

 

[SirTrouserz]

Oh Steve! Back in the support group room again... and with a Bah humbug?! Good gracious!!

I am be only a naive American, but if "Lets see who gets buried first" is our first line of reassurance for someone just coming to terms with this condition, then maybe we better try to stick with some Hallmark platitudes. I love cynical humor as much as the next person, and very much like Capitol H's dour view of life be it British or not, but maybe we should stay away from terms like "ALS" or being "buried" as some of our first efforts for snapping people out of their paralyzing fear. You've been here much longer than me however Steve, so I will defer to your expertise.

Merry (Benign) Christmas and a Happy (twitchfree) New Year.

 

[SirTrouserz]

Here's my first thought always as a newbie:

"If I just developed PNH/BFS, and this website were my first and only source of information thus far since many neurologists are unaware of this condition, what would I need to know and how would I want the information conveyed to me in the most reassuring and straightforward manner as possible?" (Besides sending all new people to pnhe.info)

We can talk from dusk till dawn about suffering, philosophical differences, British humor and all that, but when poor Zengolf (and what is a Zengolf?) says:

"What is happening to me ????"

I don't want our poor friend to be any more confused or upset than he/she already is. Once we have our pamphlet in all the neurologists offices around the world, then we can debate the rest to our hearts content and I will be happy to sit by and appreciate the shared knowledge, wisdom and wit of all the people here I've come to love. )