I finally got a BFS diagnosis from a good neurologist who is the leading *LS neuro for the University of Miami. He looked at all my tests results and checked me out and said at this time it looks benign and wants to see me again in 3 month. My previous neuro thought I had some type of a motor neuron disease which didn't help my anxiety any. I'm glad I got a second opinion. I was having more problems with tremors due to anxiety than the twitching it's self. After hearing a good Dr say it's benign really helped my anxiety which in turn almost took care of my tremors. I'm very thankful to have something that starts with the word BENING, I can live with that. Still having tremors though but sure its anxiety related, at least I hope it's anxiety related. Everyone on this sight seemed to know more than my first neurologist did and in the end they were right and the neurologist was wrong.Many thanks to everyone here.
Second Opinion Brings BFS Diagnosis
- Thread starter jv7George
- Start date
JohnnyRocket
Well-known member
I'm glad you got some relief from hearing the actual truth from a neuro. And I still don't believe your previous "neuro" was a real doctor. Holy smokes.On another note, don't be phased at all that the neuro wants to see you again in 3 months. Benign is benign but some neuros will always do a followup just for good measure, and other neuros just say its benign, have a nice life. 6 years ago my neuro told me to come back in 6 months and I have yet to return. 
I did have a EMG with the first neuro that was good other than showing some twitches in my calves. She said it wasn't bfs cause I hadn't had any twitching in my past so she ruled out BFS for some reason. I would have believed her had I not found this sight first. I was almost sure she was wrong after reading "BFS in a nut shell" but she was the neurologist so I still had doubt. The second neuro looked at all my previous test results, tapped,prodded and did some strength,balance,reflex test on me and said "well you don't have als cause I have a nose for finding it and you dont have it. Wheeeeeeeeew what a relief. While I was waiting to see the specialist I had a envelope from my firs neuro with her report and all my test results to give to the specialist. She told me not to open it cause it would only freak me out (which freaked me out). When the specialist was done he called my first neuro and left her a voice mail saying that the twitches were benign and he did not think her assumption of als was correct and see's nothing that would indicate so. If I had opened and read what was in that envelope I would have evacuated my bowels followed by a world record anxiety/panic attack.
Wow, you're freaking me out because I am the same as you. My first (and only) emg was normal with the exception of fasciculations in my calves. The neuro told me everything points away from ALS because I showed no weakness in my neuro exam and a clean emg. Withouth abnormal findings on an EMG, weakness, or atrophy, or something showing on the clinical exam, I can't imagine why she would even go that route with you. That's really unbelievable to me. Do you have twitches elsewhere or is it just your calves? I have them absolutely all over and I get them in several places at the same time. Right now, they are popping in my calves, lower back, shoulders, hands, etc. I hate this.
Yes I get them everywhere and I mean everywhere. The twitches don't bother me much it's the muscle pain,stiffness,fatigue and tremors that are my biggest problem. The tremors are what freak me out. Some times I shake like crazy (when I speculate about what I might have) and other times I'm shake free. I'll be happy when I'm down to just twitching cause right now I cant even go back to work the way I am but I'm getting better all the time.