Searching for Experienced BFS Dr

[dravidfanatic]

Anyone have a great Dr who knows all about BFS and has experience with many patients? I live in Virginia, but can get anywhere in the country for a one or two-time visit. My internal med Dr at Johns Hopkins is great, but this is all new to him.
Thanks
Tacketr65

 

[furballfury]

I believe if you are willing to travel, a trip to the Mayo clinic in Rochester MN to see one of their neuromuscular specialists is well worth your while. The visit (my parents live nearby in MN) literally helped me turn the corner - I only wish I could go back regularly for these follow ups as needed.

JG

 

[kellysLayla]

I live in Northern Virginia and saw a dr. who sees at least 1 person with bfs a month. He is a neurologist at George Washington Univ. If you are interested, I can give you his name and number.

 

[dravidfanatic]

That would be great to get contact information for the Dr at GWU. If he sees 1 per month with BFS, he/she should be quickly able to diagnose or rule out!
Thanks,
Tacketr65