Scared of Bulbar ALS Fear

BarboFour

Well-known member
I have posted here twice before and I am now at my wits end. I am very scared I have bulbar. I was given some reasurance and advice from tatooed mommy and that helped but I cant kick the fear. On top of that I was talking today with my sister and a friend of hers and he brought up that a coworkers wife has als.That sent me over the roof. Im not very good at explaining things or typing for that matter but I will try. First I need to say that I have been through the als scare before from about 2003-2005 I had an emg and all was fine. It seemed to for the most part go away except for the occasional twitch here and there. Then about 10 months ago I had a bought with vertigo for about a week and then that was gone.About 8 months ago I was having alot of gastro problems that I thought were of course much more deadly problems and that is when I first noticed my left shoulder blade was twitching alot. I went and had tests run for the gastro stuff and was told results 3 weeks later and during that 3 week wait the twitching took off like crazy. I had them everywhere all the time just like in 2003. I got my results from gastro and he said I have ulcer , gerd , hiatial hernia and spastic colon. Also after the endoscopy/colonoscopy I started noticing a lump in the throat feeling. I then started with my tongue twitching then. Anyways I have sometimes dry throat alot of mucous sometimes excess saliva. I also get alot of throat noises and I feel like my food sticks somewhere towords the bottom left of my throat. I am really scared. I get alot of twitching from my waist up but also have them in legs feet. My tongue is still strong andI dont have a hyper gag reflex. I think I read that you get that with bulbar somewhere on here.I am still strong everywhere else. Its the swallowing that is scaring me. I feel like it could be weakness. I have read that hiatal hernia- gerd can cause swallowing difficulty but nothing specific. I know you all have alot of info on this and I am hoping you can ease my mind. I had alot of stress also before all this started. Alot of loss in a short time. I am praying this is stress or gastro related but my mind wont let go of my big fear.I also get like pin pricks here and there and even on my tongue. Please excuse how unorganized and hard to read this post is like I said I cant type well and have a hard time communicating this stuff. I hope someone can ease my fears.
 
you don't have bulbar ALS.. you have bulbar anxiety... Want to cure this? Take some time away from the internet... get some CBT and fid a way to keep yourself busy 15 hours a day.. you probably arent sleeping well.. get some meds and get some sleep.. I know it seems so insensitive to say that.. but what do you want to hear... You are looking for someone to confirm your fears.. so they are confirmed... they are only fears.. How do I know.. I can't see you .. can't feel what you feel, can't be in your shoes... I know you feel things that can't be seen.
 

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