Scared for EMG Results Tomorrow

Highlights Only
A

AnotherTry

Member
Hi everyoneToday has been awful to say the least. I have the first part of my EMG tomorrow morning and I have never been so scared about anything. Not for the test but for the results. I have had only two people tell me they are confident ill be fine but I just feel like i know I wont be. I mean I haven't even been mentioned of BFS by my neuro so I wonder if I'm in the right place. I keep dropping things from my left hand today and messing up my words. My face feels weak. Im twitching like crazy. My pain is gone today but the fact of that makes me more nervous. I don't even know why I'm writing. I think getting things down helps a little.Hopefully you're all doing better then me today.Xo Niki
 
Hey Niki, I think a lot, if not most people here have been in your shoes a number of times. You are just hyper vigilant of what is happening to your body. I have dropped things, dragged my foot up the stairs, choked on saliva, slurred my words, etc. I am pretty sure I did these things before all of this began, but it didn't matter because I was in a different state of mind.Your emg results are going to be fine, trust me. After tomorrow, you will be back here scratching your head again, wondering why you have all these randon symptoms and a bunch of normal test results.Hang in there, we are here for youJay
 
Niki,You're going to be okay. I read your post and was exactly in your shoes, feeling like I was going to my execution the day of my EMG. But, it all turned out fine and it will for you as well. I know how excruciating waiting is, and how scary the whole thing is. I had an outright panic attack the day before my EMG.Anyway, I'm thinking of you, and know that you'll have good news and a lot of relief tomorrow. Neuros <often> don't have good bedside manners. They simply don't. They don't get what you're dealing with, and they won't tell you you're 100% fine, because they're afraid of being sued if there's a .000001 percent chance you're not.Hang in there!!!Mitra
 
Niki !!!I dont want to jump the gun with good news or anything, but if your EMG was going to be bad, you *almost* wouldnt need an EMG to know it. So you should be resting peacefully knowing that, if you can.I just was in your shoes 6 days ago. Believe me. In fact all last week was MRI and EMG and Nerve conduction test back to back. So i feel you right now. So much time sitting in the car thinking. Saying prayers. Trying to keep the butterflies calmed down because I know each butterfly equates to stress, and that wasn't going to do me any good at all. I just went through this, and came out with clean MRI (holy crap - FOUR HOURS in the MRI machine - nightmare) and clean EMG and clean Nerve Conduction test. In fact my other doctor saw all the results and (he doesnt know what BFS is) told me he thinks I am making the entire thing up. He seemed annoyed. Called me crazy. Because he was expecting abnormality in something, but I was 100% clear on everything. But Ill forgive him. He's just an infectious disease doctor .... The neurologist told me numerous times he expected everything to be clean.Things that made me feel better were using the search tool on this site and searching phrases like "clean emg" (no quotes) and clear EMG .... just to see how many many many many (many) people on here have all your symptoms and a completely clean EMG. Its not only common - its rarely any other way. Peaceful thoughts being sent your way. Say some prayers. Rest in Him. Lean on Him. .... in times like these.
 
Thank you!Your reassurance is much appreciated. I want more then anything to believe that it will be ok. My eeg results came back slightly weak for my right eye. I never thought anything would turn up bad on that test so now of course I'm expecting the worst. I do have nystagmus since birth and I am hoping that is the reason for the wak result....however my Neuro gave me no reassurance on that.I do feel I'm walking to my execution as you said Mitra. I fall asleep hoping for relief from this nightmare only to wake up still stuck smack in the middle of it. Hope you're all having a panic free day!Niki
 
Niki - I don't want to sound at all dismissive and tell you most of us have been right where you are. Having said that, you really are experiencing things many -- if not all-- of us have and still do. I am NOT a fan of BFS, and I won't even say you will get used to it. Some do though and I am waiting to fall into that category. I really believe I will cause I have my moments, hours, etc. where I consider myself normal....with an alien inside my body. Hang in there and I'm thinking about you. Hugs from California! Vicki
 
Jay, Mitra, Vicki, BfsBurger, You have no idea how much your words of reassurance mean. I'm much more greatful then I can express on a computer. I come to. this forum for hope it will be ok. Praying that someone responds telling me they have had the same never ending list of symptoms that I'm having. JohnnythejetI have seen your name so much on this forum that it made me nervous not to have reassurance from you--because you seem to be so knowledgable on the bfs subject lol. You're right bfs isn't so bad as long as I know that's all the symptoms are from. The fact that you're all here to talk to is amazing to me because you guys are it for me. I have nobody here for understanding, listening being so patient with my fears and panic attacks. And I truly hope I will be able to help someone like us too..XOXO
 
Hi Niki, I know it must be very difficult and tough for you but hang on. Like others already said, it's a crazy rollercoaster ride for all of us. Everyone handles it in a different way but in the end you have to find peace with yourself, we can't do that for you but we're here for you to get you through this ride and reach out our support. At one point I questioned myself, if it's really something sinister like a MND, what the hell can I do about it and the answer was quite simple namely "Nothing" so why should I worry about it anymore? (I know it's easier said than done). We already have short time on this beautiful planet so let's enjoy it. For me I try to enjoy every day (more than before), even small things like a nice cup of coffee mean more to me nowadays. Niki, hang on and trust me that it will be better.
 
Hi Niki,no doubts you are dropping things and messing words and have fascial 'weakness' exactly because you are so nervous about EMG. look, my friend, in 99.9999% of us EMG is just for our own relax, not because the dcotor is going to see something really bad on it. BFS is still more 'american' diagnosis so doctors outside USA might even not consider that as a separate condition. Please try to think about your EMG as a pass to relief, not to further tortures.
 
JohnnythejetI can imagine how trying it must get dealing with people like me on a daily basis. I just said to mommyLDN what patience you all must have. I guess my anexity feeds off some of these things like not getting a response from you must mean something awful. Then when I didn't hear from you and I couldn't pm you ....forget it....I had a panic attack. But of course everything panics me these days....my heart is beating out of my chest and I'm trying not to be physically sick as I come closer to this appoinent. FjordianIts hard to say it is what it is. Even though I know you're right amd there's nothing I can do about the outcome I just can't calm down. I'm so young and have little kids I look at everyday and wonder if ill be able to finish raising them. I used to be such a good mother and wife and I don't even know this girl writing to you. And I fear ill never be the same. Its like this emg is going to change my life in one way or another.I guess I will see.Niki
 
Hi Niki -You must be going through the EMG right about now. Our thoughts are with you. !!!Post here right when you get home. !!-BFSB-
 
Bfsburger Thank you for thinking of me you don't know how nice it feels to think all these responses are from people who care. I had the emg on my arms and it came out clean! Legs to follow Monday. This neuro was much more reassuring then the one I went to orginally. He said after checking my arm reflexes and a basic strength test that he was 95% sure I don't have als. Then after the emg said now he can say 100% sure its not als. He said I wouldn't feel my twitches and in 25 years he has never seen otherwise. I don't want to sound ungreatful but I somehow expected to feel so much more relief. Maybe after Monday I will? I've read posts saying emgs don't squash your anexity but I didn't want to believe that! I feel so horrible admitting that but I'm not going to lie. The test was uncomfortable but not the worst thing ever. I have such a hard time understanding how stress and anexity can cause symptoms like you said Yulisar...I know they can I just don't get it.How did you guys feel after your emg? Id like to know that I'm not the only one whose life is RUN by anexity.Niki
 
Lol....you are Awesome and Sweet Bfsburger.I'm glad to know these feelings are normal. And I will do my best to take your advice and breathe.Funny though that my legs felt so much more stable leaving the Dr office.Coincidence???!!! :) :)
 
HOORAY Niki!!!I just knew you would be fine. I hope this good news helps relieve some of that anxiety that has built up over these past weeks. Just take it one day at a time, and think of the many years you have ahead of you.Jay
 
Thank you Jay and FjordianYou are all so important to my life right now. I'm glad we were brought together by this crappy bfs. Without you this would be so much worse.Fjordian....have you your results yet? We are lucky here in the US to get such quick results. Keep us posted on yourself!!
 
Yes - remember - clean EMG means no neurological disease. Period. If you are inundated with symptoms that have been going on awhile and still have clean EMG? Then that clean EMG is there to tell you "We found no disconnections or abnormalities in this person's motor neuron function". That is a guaranteed NEGATIVE on ALS. That means whatever is causing your twitching simply isn't because of that disease.Im learning so much through all of this - so many people with myriads of causes. From cysts in their spine, to pinched nerves, to slipped disks, to bulging disks, improper sodium intake, too much sugar intake, too little sugar intake, too much water intake, too little water intake, stress, exhaustion, potassium excess, calcium excess, calcium deficiency, magnesium deficiency, thyroid issues, lyme infection, etc etc etcALL OF THESE THINGS can cause the symptoms we are all having. ALL OF THEM.For us to whiddle this down to just ALS all the time .... actually makes very little sense. There honestly must be 5, 10, 20, 30 different things that can cause this. Remember that.!!!But its good to rule it out.
 
Thank you Mitra and BfsBurgerCan you believe that I had a clean upper emg yesterday and I ended up in the er this morning with the worst panic attack of my life. I'm going crazier the before. This is awful. I need to listen to all your advice and pull it togeter but its so much easier said then done. I really hope my emotional relief comes soon. I fear ill never be me againxo niki
 
Hi Niki, sorry to hear you ended up in the ER this morning. In the beginning I had a lot of panic attacks at night so it's not uncommon and you are not crazy.Try to believe it's going to be better for you. You will be you again.We all believe you are going to be better, now it's time that you do the same.Hugs, Fjordian
 

Users who are viewing this thread

Total: 1 (members: 0, guests: 1)
Back
Top