I have been reading this site for months, but only now am finally posting. I am scared out of my mind about what has been happening to me. Not sure anyone can give me comfort, but thought i would post and ask a few questions...if anyone can respond, that would be greatly appreciated.
first, my twitching has only been happening for a couple of months...however, i had been experiencing many neurological symptoms for about 10 months before the twitching started. The main symptoms i experienced for that 10 months were sensory, not motor. Pins and needles was the worst...had them in both feet, constantly. Usually it would be either the left, or the right, though rarely both at the same time. I went to the doctor way too many times...did the usual tests for reflexes, strength, etc. However, everthing always seemed normal. The pins and needles in the feet was the worst, but during that time, also had other senory symptoms....feelings of weakness in the legs and imbalance when walking (seems to have been subjective, not clinical), pins and needles on the nose, very occasionally. Finally, my doctor sent me to a neuro...did an emg....totally normal. Did strength/reflex/vision tests. Totaly normal. This was the first week in january.
Also in the last year, a few other health developments:
-carpal tunnel
-ibs
-patella femoral syndrome
So....quite a mess.....but then a couple of months ago, the pins and needles stopped. Completely. Only to be replaced by.....TWITCHING. Started with my left foot.....instep along the side of my foot, and also the top of my left foot. Twitches seemed to be in these exact 2 spots only. Both are the long slow kind of twithchs, where it almost looks like a vein is coming thorugh the skin. From time to time, twitches elsewhere, most notably, both calves, both shoulders, sometimes the right foot. Muscle pain occurs in the twitch areas, particulcy the instep area and left foot and toes, but also both shoulders sometimes. Also have had deep muscle pain in calves, feeling of tighintess in calves, and pain on the outer side of right foot (not aware of any twitching there). There does not appear to be any clinical wekaness, but my legs often feel very very tired and wonky (for lack of a better phrase). i can walk on my toes and heels, etc and function more or less normally . Also get severe pain in my left knee joint and calf, which could be related to the patella femoral problem i have. The previous symptoms of pins and needles have stayed away since the twitching started. Ok..thanks for bearing with me on that story...here are my questions:
1) I know that pins and needles, tired legs, etc can be symptoms of BFS, but from reading this board i have assumed that such other symptoms follow the onset of twitching, not precede it. but does it ever happen the other way around, where the non-twitching sympotms precede the twitching? And then stop when the twitching starts?
2) From reading this board, i assume that asymmetrical twitching is worse than symmetrical (in terms of being more indicative of a potentially serious neurological disorder) . Although my twitches occur on both sides of my body, the most constant twitcing is definitely the left foot. Does anyone else on this board have the twicthing largely in one limb on one side of the body?
3) does anyone else share the hotposts i have - top of one foot, almost right in the middle, and instep of same foot?
4) as i mentioned, i have been having extreme pain in my legft knee joint, too. Could this be related to the twitching? Perhaps a sciatica problem? Not even sure if sciatica or patella femoral can cause twitching.
thanks again for anyone reading this. I realize this is not a site to get medical advice (and i am seeing my gp AGAIN on monday) but if anyone has any knowledge, experiences, etc. to share, that would be great. thanks.
first, my twitching has only been happening for a couple of months...however, i had been experiencing many neurological symptoms for about 10 months before the twitching started. The main symptoms i experienced for that 10 months were sensory, not motor. Pins and needles was the worst...had them in both feet, constantly. Usually it would be either the left, or the right, though rarely both at the same time. I went to the doctor way too many times...did the usual tests for reflexes, strength, etc. However, everthing always seemed normal. The pins and needles in the feet was the worst, but during that time, also had other senory symptoms....feelings of weakness in the legs and imbalance when walking (seems to have been subjective, not clinical), pins and needles on the nose, very occasionally. Finally, my doctor sent me to a neuro...did an emg....totally normal. Did strength/reflex/vision tests. Totaly normal. This was the first week in january.
Also in the last year, a few other health developments:
-carpal tunnel
-ibs
-patella femoral syndrome
So....quite a mess.....but then a couple of months ago, the pins and needles stopped. Completely. Only to be replaced by.....TWITCHING. Started with my left foot.....instep along the side of my foot, and also the top of my left foot. Twitches seemed to be in these exact 2 spots only. Both are the long slow kind of twithchs, where it almost looks like a vein is coming thorugh the skin. From time to time, twitches elsewhere, most notably, both calves, both shoulders, sometimes the right foot. Muscle pain occurs in the twitch areas, particulcy the instep area and left foot and toes, but also both shoulders sometimes. Also have had deep muscle pain in calves, feeling of tighintess in calves, and pain on the outer side of right foot (not aware of any twitching there). There does not appear to be any clinical wekaness, but my legs often feel very very tired and wonky (for lack of a better phrase). i can walk on my toes and heels, etc and function more or less normally . Also get severe pain in my left knee joint and calf, which could be related to the patella femoral problem i have. The previous symptoms of pins and needles have stayed away since the twitching started. Ok..thanks for bearing with me on that story...here are my questions:
1) I know that pins and needles, tired legs, etc can be symptoms of BFS, but from reading this board i have assumed that such other symptoms follow the onset of twitching, not precede it. but does it ever happen the other way around, where the non-twitching sympotms precede the twitching? And then stop when the twitching starts?
2) From reading this board, i assume that asymmetrical twitching is worse than symmetrical (in terms of being more indicative of a potentially serious neurological disorder) . Although my twitches occur on both sides of my body, the most constant twitcing is definitely the left foot. Does anyone else on this board have the twicthing largely in one limb on one side of the body?
3) does anyone else share the hotposts i have - top of one foot, almost right in the middle, and instep of same foot?
4) as i mentioned, i have been having extreme pain in my legft knee joint, too. Could this be related to the twitching? Perhaps a sciatica problem? Not even sure if sciatica or patella femoral can cause twitching.
thanks again for anyone reading this. I realize this is not a site to get medical advice (and i am seeing my gp AGAIN on monday) but if anyone has any knowledge, experiences, etc. to share, that would be great. thanks.