Right Hand Stiffness and Twitches

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jonny32

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Well, I guess I've had this stiffness already before the twiches began.But I'm afraid now because the stiffness seems to be progressiv.It's difficult to explain.My right hand feels a bit crampy, stiff, clumsy. I haven't had twiches in this hand yet.So that concernes my more. I would understand the stiffness in case of twiching. But there are no twiches in my right hand.I recognize the problems mostly while typing or using the mouse.Ringfinger an pinky seem to be heavy. The palm of the hand is kind of stiff.Sometimes it feels as if the hand is slower than before.Sometimes tying shoes feels strange, but not always and I cannot explainit clearly. This is also the hand that looks atrophied (well, to me-not to the doctors)The wrist cracks very loud when turning around.Fingers feel weerd.Is this BFS?? Ulnar??Reflexes were good, EMG was normal after 4 weeks of bodywidetwiches (no twiches in hands)I am still strong in this hand. All known strenght test make no problems.This drives my crazy!Anyone with the same problems/concernes?
 
I've had stiffness and clumsiness in my hands as well. Those symptoms are not uncommon and whether or not you have twitching in that hand is irrelevent. Yes, this stuff is annoying but benign.
 
Thanx to the Jet.It is always great to read your answers, as you are a very helpful oldtimer.Chrissi also had the very same problems in her beginning of BFS.But I am not sure if we are talking about the same problems. Because they are difficult to explain... Have you also expierienced the cracking wrist? And my shoulder on the rightalso cracks since this all began. The same with my elbow.I am not even sure if my problems are caused by the hand or by the wrist.Oh man, it is so hard to get through this....
 
I have all joints cracking but this is because of hypermobility of joints (wrists, shoulders etc.)You might not notice that until heavy feeling started.cracking joints are not harmful at all. But hypermobility with the time might induce BFS.may I ask if you have any signs of hypermobility?
 
No problem, and yes christinasgirl123 has had much of this too. Her and I also have tremors which can cause our fingers to shake uncontrollably in certain positions. My typing is horrible and my fine motor skills with fingers is *beep* poor. I have cracking of multiple joints daily. I'm not sure if its related or not.
 
Yes, I have some hypermobility in my fingers. This has been diagnosed by a doctor a few years ago,when I was suffering pains in my finger joints. The cracking in my wrists started at the same time as theother BFS symptoms. I'm afraid know, all my problems could be caused by loosingmuscle mass. Less muscle leading to tendons problems leading tothe cracking leading to the clumsy feelings.I also have very prominent veins in my right hand since all this started.And I read a post in this forum yesterday about a bass-player diagnosed with ALS and his first symptoms were numbness and stiffness...*beep*....
 
Well, hypermobility syndrome is so frequently assosiated with twitches, that you might leave thinking of ALS. HMS is enoufh to make those symptomes.I also started to experience clumsiness, easy numbness and joint pains in my fingers after BFS onset. I am a translator, so I type 10-14 hours a day. 6-8 pure hours of typing only per day. No wonder I have those symptomes... But I also was very scared. But without nothig really bad happened in a few month I become more easy about it.In BFS all your nerves are hyperexcited. That is why we notice strange and hardly expressable symptomes - so borderline, so dilute but so evident for us...Believe me, the ALS victim you mentioned had not just 'numbness and clumsiness' - one day he felt his fingers definitely do not move as fast and fine as he needed for guitar palying because the muscles statred to be paralysed. We in BFS still keep our hands working with only more or less prominent loss of dexterity, but never to the point of inability to use it. Even small motorics is preserved, not talking about bulk movements... One BFS fellow here told a story of his father's ALS - his father ocne noticed he can not pick up small things (fishing hooks) - because he lost small motorics. In few weeks he can not turn the driving key - loosing bulk movements in his hand, etc.Nothing like that had happens in BFS. We feel that our hands are clumsy, aching, twitching, even loosing the grip in a kind of ulnar/carpal syndrome - but they are still strong in clinical exams.
 
Okay, thank you for your feedback.So it looks as if we are all going through the same stuff.It's so hard to realize this in early stage of BFS. I wish time would pass faster at the moment.What a waste of time....
 
it IS a hard time indeed. And terms are very individual. Read this forum, go to chat room, you are not alone with both the symptomes and fears (holy crap how fearde i was this winter with all that stiffnes in my hands... I was dropping things, can not hold a shovel to move the snow (and only later I read that hypermobility has a typical weaknesss aggravated by the cold weather), I thought I was really dying. But not right now, as I realized later.Wish you to pass this dark water and to back to life. You'd be fine.RegardsYulia
 
cramping, stiffness, pain...in fingers, toes, you name it. Been there and still there. True confessions.... I have moments when it freaks me out and I think "what if...it means %##$#@!!!!!" Then I have to say "really...really - get a grip". The end.
 
I think we pay too close attention to our symptoms. I have an achy leg, calf or whatever. Dunno how to explain it other than I can FEEL my front calf, sometimes its the back and sometimes it includes my thigh. But its ALWAYS in the same leg. When I'm walking, I pretty much don't feel it till I sit down. Needless to say, this creeps me out!! I keep measuring my calves and can tell that that one is slightly smaller than the other one. That is my right leg & I'm right handed so you'd think that's NOT the leg I favor.. Hmmm dunno but I know how you're feeling. I wanna say stiffness but I try like you know what you stay away from that word!! Just try to relax & know that it's all happened to us. When I drop my pen.. I nearly have a HEART ATTACK!!
 
HI Jonny,What have you described above, I feel all the same for almost 5 years.. I feel stiffness in my right hand near around elbow . fingers give sm abrupt motion, i mean to say work like handwriting .. drawing has gone down to a very low degree.. I have been to physiotherapy .. orthopaedics... been to neurologist with MRI done --- nothing have come out.Strength test give normal, but I feel less strength many a times... difficult to explain as same.I click my wrists most of the time, why I dont know but now I give jerk to my hand to get a click sound from elbow which makes me somewhat relax. Most of the time I feel bit awkward while using my right hand. I left all the medication and therapy for about 2 yrs and tried workout.The same feeling also persist here .. I feel most of the strain in my right hand even in dumbells and sometime this hand got so stiff that it takes too long to relax.The load comes most of the time on elbow and forearm region, not on biceps while this is not the case with LEFT hand.If you have got some remedy for this .. then pls reply ...PS: One more thing I need to add ... I feel no numbness in my hand .
 
Jonny is not active on the board anymore. He moved away from the forum and anything that has to do with BFS or ALS fears to get his life back, successfully . But I am in daily contact with him. He is doing very well, the complaints about his hand stopped a few weeks ago so I guess it just vanished.
 
Hi Chrissi, nice to hear of Jonny and thank you for your quick response.But I am still having the same feeling about my right hand and I would like to know how Jonny managed to get rid off that.I would be grateful to you if you help me out as this thing is pulling me back from many things for a long time.
 
Hi Chrissi, nice to hear of Jonny and thank you for your quick response.But I am still having the same feeling about my right hand and I would like to know how Jonny managed to get rid off that.I would be grateful to you if you help me out as this thing is pulling me back from many things for a long time.
 

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