JohnnyRotten
Well-known member
I cannot say this for all, because as I have read the posts here, we all may twitch for different reasons. It’s comforting for me to know so many of you share this problem, but disturbing in that there may be a silent epidemic on the horizon. With my observations, I would like to throw this out in the open:
Theory:
It is highly possible that the majority of BFS sufferers could be due to some type of transmittable infection.
My Story:
I have had BFS symptoms for the past 15 years. I have had tests for most major motor neuron diseases, which all have come back negative.
Since around the age of puberty I’ve noticed an onset of muscle twitching. This is where a part of the muscle can be seen and felt jumping randomly. It happens what seems to be all over the body at different times. I get these twitches hourly. Most last from a few seconds to a few minutes. Occasionally I have one of these twitches for days, and this seems to be happening more often lately as I get older. Other symptom include my sensory nervous system where I can feel the same random occurrences as pain, which varies from very sharp pulsing pain to small pin pricking to itchy sensations. All the above have the same random “mores-code” pattern.
I feel as if my entire peripheral and sensory nervous system is hypersensitive. The nerves are not able to maintain a proper resting potential. I believe it is the actual neuron that “fires” probably due to some type of irritation or inflammation. When the neuron to the muscle is affected, the muscle jumps. When a sensory neuron is affected, I feel the sharp pain. Although it feels like this is randomly occurring all over my body, I believe there to be over 50 of the same neurons exhibiting this behavior, and increasing. One twitch (in my thigh) lasted 6 days without stopping. Re-positioning or stretching my neck made it subside temporarily. More evidenced the nerve fibers are irritated somehow.
I thought this problem was unique to me. Perhaps diet related, or a genetic disorder. Then the Internet was invented and I discovered many more share this evil affliction.
BFS transmittable?
However, a recent twist on the situation: My wife of 4 years now is experiencing these same symptoms! Although, not as chronic as myself she said she never had these before we met. Turns out she can remember a slow onset within a year of us being together. No matter how strange this may sound, this leads me to believe that there is some type of contagious factor associated with my BFS case. Perhaps this is not a syndrome, but rather a disease as an exposure to some type of bacteria, virus, or even prion.
Possible Contributors
Some of this might sound far-fetched, but I remind you to keep an open mind and look for links or events within your own life style.
Lyme Disease:
If any of you search through Lyme related boards and information? You will find a lot of common symptomatic traits. There is currently much debate that Lyme is sexually transmittable. The bases is on that the bacterium, which causes Lyme, is closely related to the same family of bacteria that causes syphilis. Moreover, tics are not the only known carriers of the disease. Anyone been bitten by a tic, or had contact with a known Lyme carrier?? Can you be sure? Lyme in most cases needs to be clinically diagnosed, just like BFS. There is no absolute test to confirm infection.
Canine Distemper Virus:
Here’s a quote from the fact sheet…
“It is possible for humans to contract an asymptomatic (subclinical) CDV infection. Anyone who’s been immunized against measles (a related virus) is protected against CDV as well.”
Reading this fact sheet, you see that this dog virus has a lot in common with BFS sufferers. Only difference in that CDV is usually fatal for dogs. Anyone been around dogs? Been bitten? We all know that with the recent SARS developments that viruses can make a species to species jump. Is it possible that BFS is simply a type of CDV in humans? It’s even stated in the Mayo study of BFS, that this syndrome seems to be related to some type of post-viral infection. They also noted that many of the subjects in the study were in the medical profession in one way or another.
12Drifter12s Anyone??
Another observation of mine. How many of you see “spots or shadows” floating around in your eyes? Those that don’t, won’t know what I’m talking about. These are usually caused by fragments of your cornea becoming trapped in the visceral fluid in your eye, which results in shadows being projected against your retina. 12Drifter12s could be another sign of deep internal infection. Most infections cannot get through the Blood-Brain Barrier. This includes the eyes. I’m not saying BFS and floaters are related or always occur together, just an indictor that floaters in some cases might be another sign of internal infection either past or present.
Research Needed
I want to remind everyone that “syndrome” is just a lose term that the medical experts use to categorize something that is unknown or not yet explainable. I want to add that we are still probably far from finding the true cause of BFS or even a cure. Who wants to fund the research for a benign syndrome? After all, we are not dying of BFS are we? (Except that one individual in the Mayo study who died of a self-inflected shotgun blast. I can only image it must have been suicide.)
Disclaimer
A topic like this attracts many types of sufferers who twitch. Some might have BFS, others might have a precursor to a more critical disorder. Be careful and always get yourself fully checked out by a doctor before adopting theories.
Thoughts / comments anyone??
I want to hear from the rest of you. Can you add anything? Did I provoke some thought? Or am I just plain crazy?
John R.
------------
I’m waiting to be unplugged from the Matrix.
[/i]
Theory:
It is highly possible that the majority of BFS sufferers could be due to some type of transmittable infection.
My Story:
I have had BFS symptoms for the past 15 years. I have had tests for most major motor neuron diseases, which all have come back negative.
Since around the age of puberty I’ve noticed an onset of muscle twitching. This is where a part of the muscle can be seen and felt jumping randomly. It happens what seems to be all over the body at different times. I get these twitches hourly. Most last from a few seconds to a few minutes. Occasionally I have one of these twitches for days, and this seems to be happening more often lately as I get older. Other symptom include my sensory nervous system where I can feel the same random occurrences as pain, which varies from very sharp pulsing pain to small pin pricking to itchy sensations. All the above have the same random “mores-code” pattern.
I feel as if my entire peripheral and sensory nervous system is hypersensitive. The nerves are not able to maintain a proper resting potential. I believe it is the actual neuron that “fires” probably due to some type of irritation or inflammation. When the neuron to the muscle is affected, the muscle jumps. When a sensory neuron is affected, I feel the sharp pain. Although it feels like this is randomly occurring all over my body, I believe there to be over 50 of the same neurons exhibiting this behavior, and increasing. One twitch (in my thigh) lasted 6 days without stopping. Re-positioning or stretching my neck made it subside temporarily. More evidenced the nerve fibers are irritated somehow.
I thought this problem was unique to me. Perhaps diet related, or a genetic disorder. Then the Internet was invented and I discovered many more share this evil affliction.
BFS transmittable?
However, a recent twist on the situation: My wife of 4 years now is experiencing these same symptoms! Although, not as chronic as myself she said she never had these before we met. Turns out she can remember a slow onset within a year of us being together. No matter how strange this may sound, this leads me to believe that there is some type of contagious factor associated with my BFS case. Perhaps this is not a syndrome, but rather a disease as an exposure to some type of bacteria, virus, or even prion.
Possible Contributors
Some of this might sound far-fetched, but I remind you to keep an open mind and look for links or events within your own life style.
Lyme Disease:
If any of you search through Lyme related boards and information? You will find a lot of common symptomatic traits. There is currently much debate that Lyme is sexually transmittable. The bases is on that the bacterium, which causes Lyme, is closely related to the same family of bacteria that causes syphilis. Moreover, tics are not the only known carriers of the disease. Anyone been bitten by a tic, or had contact with a known Lyme carrier?? Can you be sure? Lyme in most cases needs to be clinically diagnosed, just like BFS. There is no absolute test to confirm infection.
Canine Distemper Virus:
Here’s a quote from the fact sheet…
“It is possible for humans to contract an asymptomatic (subclinical) CDV infection. Anyone who’s been immunized against measles (a related virus) is protected against CDV as well.”
Reading this fact sheet, you see that this dog virus has a lot in common with BFS sufferers. Only difference in that CDV is usually fatal for dogs. Anyone been around dogs? Been bitten? We all know that with the recent SARS developments that viruses can make a species to species jump. Is it possible that BFS is simply a type of CDV in humans? It’s even stated in the Mayo study of BFS, that this syndrome seems to be related to some type of post-viral infection. They also noted that many of the subjects in the study were in the medical profession in one way or another.
12Drifter12s Anyone??
Another observation of mine. How many of you see “spots or shadows” floating around in your eyes? Those that don’t, won’t know what I’m talking about. These are usually caused by fragments of your cornea becoming trapped in the visceral fluid in your eye, which results in shadows being projected against your retina. 12Drifter12s could be another sign of deep internal infection. Most infections cannot get through the Blood-Brain Barrier. This includes the eyes. I’m not saying BFS and floaters are related or always occur together, just an indictor that floaters in some cases might be another sign of internal infection either past or present.
Research Needed
I want to remind everyone that “syndrome” is just a lose term that the medical experts use to categorize something that is unknown or not yet explainable. I want to add that we are still probably far from finding the true cause of BFS or even a cure. Who wants to fund the research for a benign syndrome? After all, we are not dying of BFS are we? (Except that one individual in the Mayo study who died of a self-inflected shotgun blast. I can only image it must have been suicide.)
Disclaimer
A topic like this attracts many types of sufferers who twitch. Some might have BFS, others might have a precursor to a more critical disorder. Be careful and always get yourself fully checked out by a doctor before adopting theories.
Thoughts / comments anyone??
I want to hear from the rest of you. Can you add anything? Did I provoke some thought? Or am I just plain crazy?
John R.
------------
I’m waiting to be unplugged from the Matrix.
[/i]
