Returning with Unusual Facial Heaviness

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IcebergTayCircles

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"Back so soon?" you're probably thinking, right?I know, I know. But hear me out... I've been experiencing a very strange heaviness in my face for some time. I'd say for about a month to two months... Anyhow, it started out where I'd be speaking to someone and it felt like my face wasn't really allowing me to form my words as well. I'm not slurring or anything, but... my face (around my mouth and just under my cheeks) feels really strange and sluggish.So, fast-forward to today. I'm was talking to my friend in the other room and had a sort of half-smile on my face... And my face started to shake like CRAZY! So, I flew into the bathroom and started to watch my face as I changed my expression. I can only smile for 1-2 seconds until my face (my mouth and cheeks) starts to shake like mad. And then it sort of fades away without me doing anything about it.I'm quite worried and am probably going to make another appointment with my neuro fairly soon.
 
Steve, the half smile tremor was one of my first symptoms, before the twitches. It really scared me and I was able to demonstrate it in full force to my neuro whom was not at all concerned with it, and never even brought it up again. Eventually it went away, but sometimes returns. Its just a wierd part of BFS and I don't think you should be concerned about it, sorry that it is bothering you.
 
I have been having the same issues. I ran to my neuro Thursday. Told him my jaws felt tired tongue twitching and facial twitching. He examined me and my tongue and said I was ok. I know its hard to relax but this disorder is so bizarre.
 
I totally agree with JoggingCub and TS, this thing is bizarre, and the symptoms never seem to add up to anything diagnosable, but I guess thats a good thing if you really think about it. I had all of this too, back a few months ago, but the majority of it has subsided except for my cheeks and jaw still feeling fatigued and tight, but my cheeks still feel heavy also. My lip used to twitch and shake when I smiled especially if it was just a half smile, my husband said I looked like Elvis on crack :LOL: My left eyebrow would shake as well. I had all kinds of strange tremors and things that shook, so please dont make too much out of this symptom, it will pass promise. I know it doenst make any sense and you think to yourself that something has to be wrong, but as everyone else has said and myself as well, no neuro has been impressed by these symptoms. They just dont add up to much and arent diagnostic of anything.Hang in there Stephen, you know we are rite there with you, we have all been there.Your friendRobynn :D)
 
So, the awkward facial sensations I’ve been experiencing seem to be worsening. I feel like I am unable to move my mouth properly form words which in turn makes me sound like I’m slurring. Saliva is also collecting along my lips whenever I speak; this is rather annoying and worrisome as far as conversations with peers/friends go… I don’t want to be drooling and spitting all over them whenever I speak.All of the facial heaviness I’m experiencing is around my nose, above and below my mouth, down to my chin. This is the strangest sensation—not feeling like I’m able to move my face as freely as I used to. It doesn’t necessarily feel tight—it feels almost floppy. I hate it.Smiling takes a conscious effort now, it’s not reflexive. My smile would normally fade away gradually and fluidly after I'd finished laughing… But now it simply disappears when I am no longer laughing to where my face looks emotionless.Any insight? Anyone? :confused:
 
CHRIS!!! :LOL: Stephen, its just one of the sensory symptoms some of us BFSers get, its real common during the earlier phase, but it will pass. You will have days where it feels very much there, and days you barely notice it at all, then eventually you will realize that you havnt noticed it for days, then weeks then only rarely.I still say you are ACES :D) Ur good babe :D)
 
Steve, I think I know exactly what you are experiencing. I tend to get this after periods of high anxiety. I'll even test my speaking skills when driving in the car alone to be sure that everything is working fine. And of course, I'll even slur a couple words here and there which makes things worse. The "heaviness" of my cheek/face muscles is a weird feeling and if my anxiety is bad enough it will actually lead to cramping. There have been days at work where I am afraid to speak face to face with people because at points in the conversation I will feel my face cramp up to a point I have to break off my speaking a bit. This is fresh in my mind because it occurred about 3 weeks ago. Looking back, I remember this happening before but everytime it comes up I freak out to a degree. It always passes, but only when I stop "waiting for it to pass." Or at least, that's what I've learned after 5 years of BFS.-John
 
And I probably spent a good combined 1.5 hours checking my smile in the mirror. I even noticed that my smile seemed not as curved as it "should be" and that it went up higher on one side than the other. Then in the mirror I would start speaking so that I could watch my speech which inavariably lead to me messing up my words. My mouth/face didn't seem to be able to keep up with my brain.
 

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