Return to Normality after BFS Symptoms

[ChrisSwiftly]

Hi FriendsMy name is Chris Sewell and I pop back on site now and again to help reassure all, that this Bfs is benign and can settle down and you can return to normality. I joined this site in2005 after mass twitching, weakness, pain, limb twitching, tongue buzzing, exercise intolerance, self ocd examining and, so on, and so on.Totally out of character for me. The most annoying thing for me was feet pain, and not being able to accept that this thing was benign. I thought it was the end of the world for me. I sold my bicycle, never socialised and was a total wreck.It took about 18 months to three years (total) for me to get over this thing, but hey!! I did, as you will too.Yes three years may be a long time, but fortunately with this condition you have time.I now run, cycle, socialise, etc, etc. I am back in the land of the living, my mental state is 100% and I only get the odd twitch, which I totally ignore. Pain is minimum, very minimum!! Most likely age ,lol!I went through hell and back. But got there, as you all can too, Tips, although hard, I know !Try to accept that this condition is benign.Always stay positive.Read posts like this over and over.Tell your self there is hope, there is proof (me) that this can go.Ignore the nasty neurologist who snub you, as they know very little about bfs.Accept the good neurologist diagnosis of benign condition.Stay on safe sites like this one.Anyone needing advice just pm, or Facebook me ( Christopher Sewell) I may take time to reply due to work, but I will get back.Hope this helps.Take carechris

 

[BarbiePetals]

Thanks Chris for that wonderful post. I am only 6 months into this but I am starting to feel better since every test I have had has been normal. I'm starting to accept this is benign. Your post can help many on this board.

 

[MrenLvl7i]

This is so great! Thanks so much for sharing and taking the time to write that!~!!!!!!!!!!!!!!! It's wonderful to hear stories like yours! )

 

[forestrain]

Thanks for your post, very comforting. What's interesting about my case, now over 2 years old, is that I never once believed I had the dreaded disease. I dismissed that rather quickly, foolishly or not. My anxiety over this has always centered on the chilling thought I could have this the rest of my life, which I know is better than the alternative. I can't explain why I still have BFS, or why it hasn't changed since about the first month. No better, no worse. I don't really think about it too much anymore, and yet it never changes and I still feel it almost every waking moment. You wrote there is an end... how? Did it just slowly fade away? I can't imagine any scenario under which this will go away. I've tried everything. Is that my problem? I don't believe it will. How do you "will" it away?