Results of Twitching and Fever

[coolcat]

My twitching started with a fever,after that I was told that I schould ignore the symptoms, well after 1 year i noticed that the fascicualtions slowed down , the 6 months later I started to get all sorts of weird things, sleep jerks,acting out in sleep,hallucinations while trying to sleep. enlarged pupil, wierd sleep states.
now im not saying that anybody here has it this way but I believe that if I had taken the antibiotics at start that I would be ok now. I had many neuro signs.
I believe but im no doctor that I destroyed my motor neuron,s . at a year and a half they became brisk and that is where the down hill started. I hope I am wrong. they cant find any deficets at all yet I am getting weeker every day. I hope this does not continue.
eric

 

[JohnnyRotten]

So many times I see posts on here "do vitamins help" or "I stopped drinking coffee" or "I stopped eating this or that". Since BFS waxes and wanes, its truely hard to pin down what is helping. Now that I look back, I can say that nothing I have EVER tried has really done anything to affect my BFS (weather good or bad) until now. I'm not here to promote drugs, but doxy has been the ONLY drug that has actually changed by BFS symptoms. 1st for the worse, especailly the "hot spot" twitches everyone here talks about. I usually get one or two a hot spot twitches a month, but when initially on doxy, everyday! It has since gotten better.

I really can't say if I have Lyme or not. I've never had a positive test result and doesn't rule it out either. What I can say is that doxy has been helping me (slowly). Up until two months ago, aside from random bodywide twitching I've always had many facial and constant eyelid twitches. Example, every time after sneezing would bring out several twitches all over my face and eyelids. Now, two months later, I can sneeze or flex all my facial muscles and maybe only one twitch comes out! Now that is a measure of success! No vitamin, no herb, no phsyco drug, no muscle relaxer has ever done that for me!

FACT that doxy has had an impact on my symptoms is yet another point on my score card that (my) BFS is pathogen related. After all, antibiotics are only suposed to kill germs right, and for my BFS to be improving, my BFS must be germ related. Take this for what it's worth. I'm not saying doxy will be the cure for me. It could harm my body in other areas for long term use. But I finally found something that is affecting the behavior of my BFS unlike any other drug, herbal, or diet I've ever tried. Believe me, I've had 15+ years to try a whole lot of things in my life!!

As far the anti-protozoan drugs, this is a new concept I've been really thinking about. My BFS may not be a bacterial infection at all. It could be a parasite, which could explain why BFS has never gone away or killed me yet. Also might explain why doxy would have a marginal benifit. My wife (who I "gave" BFS too) gets numbing sensations too and has a really low red blood cell count. Her BFS cycles with her menstrational periods. More evidence there is and infection we are dealing with here. She's not on doxy yet (I'm still the guini pig).

So until I find the answer, I still consider myself a BFS sufferer.

 

[coolcat]

i read that twitching of the face was a sign of lyme, dr burrascanno hints.. look it up!
also get your tests and sent them to igenix right away as here on long island we have found out that they closed stonybrook lyme center, because i believe the tests were not acurate. alot of people got negatives even though they were positive.
i took test western blot : quest labs and two bands
i took test western blot : igenix labs 8 bands all for lyme!!!!
as of last week I was on zithromax and my symptoms got much worse, wierd sensations in the back spine. i got so week on my feet that i had a hard time walking , i was so bad that i saw three neuro,s in three days, i started to take doxy at 600mg a day and the problems at night and wierd numb feeling along the back and throat dissapeared, thank god for doxy!!
eric