Sakkon - if you don't mind me asking, what country are you from? As a Canadian, I've never heard of a Doctor threatening to refuse medical help.
When I first had my scare, my Doctor put me through a series of physical tests but would not send me for any diagnostic tests until my nerves were under control. Looking back, in my particular case, that really was the best thing to do.
I'll go out on a limb here (a wee bit of sarcasm!) and assume that I am one of the individuals that you are referring to who "would rather ignore the symptoms and carry on with their lives." I'd like to clarify that. There is no way that I can possibly ignore my symptoms. Just like the rest of us, I twitch and have the odd muscle ache (BTW my muscle aches were much worse during the first 8 months than they are now). However, as "Karen" mentioned in a previous post, I choose to accept this benign condition. There is no way that I am going to let it consume my life and impact the lives of my family and friends. Hey, it's my life & I want to enjoy it to the max! I really don't see the point in spending time researching/looking for it's cause. Just look at all the people registered here - to my knowledge no one has been diagnosed with a significant medical problem relating to their original BFS diagnosis.
BTW, just my opinion - you can't classify BFS as a "potentially debilitating condition." We can all get out of bed in the mornings (yes, some mornings are worse than others!), we can dress ourselves, we can drive a car, we can go shopping... yes we have aches and pains and we twitch - no big deal. Hey, I can't run as fast as I once did, I can't lift as much as I once did, geez I can't even drink as much as I once did! I choose to accept that as I am aging, my body is changing. I am thankful for my health everyday.
There really are so many more positive things that we can all do that will help us get our minds off this condition. Before my wake-up call, I would spend hours at night thinking/worrying about stuff I had read. I'd be looking at my legs, I'd be measuring my calves - it's embarrassing to write this!! I've finally gotten back to talking with my wife and asking her about her day, how she is feeling... I could go on & on...
I really only hope for the best for ALL of us!
I'll put a sock in it now.
Dale
