Hello! I am new to the forum, but have had diagnosed BFS for over a year. I have had twitching for nearly two years, but spent the first months in an increasing spiral of anxiety, afraid to go see a doctor about it. My best friend finally made me go, and after several tests, my neurologist assured me that I had BFS (NOT ALS, which I was most afraid of). For months after that, my symptoms continued to get worse, with more and more frequent twitching that got stronger as the months went by. I noticed it particulary at night in bed and in the morning when I woke up -- before I was even fully conscious, I was twitching.
I knew it was nothing to be concerned about, but it still bothered my a LOT. Then I found a website that mentioned a link between B12 and nerve function (on a menopause website, of all places), and it said that low B12 could occasionally be associated with twitching. I never found any other web site that could corroborate that, but it seemed worth a try. I started taking a 500 mcg B12 supplement at night, and within 3 days, I noticed less twitching. So, I increased my dose to two vitamins (1000 mcg) at night, and the twitching nearly disappeared. If I stop taking it, even for a day, the twitching returns --- gradually but but steadily increasing to the level it was at before.
Has anyone else ever heard about this link between B12 and reduced twitching? It has been an amazing relief for me.