Relieved to Have You Back!

[reneecatx]

Whew~~~

I was worried about you! I kept thinking, oh no something went wrong and she won't come back. I'm glad you're back

I bet it was nice to relax on vacation after you appt. It's always a relief to get them over with.

I hope the med's work for you. I don't have muscle or joint aches, but I can imagine how frustrating it would be. You seem to have a good doctor that keeps searching for answers, which is great.

I never had any extensive blood tests done. I wonder what mine would show?? I'm afraid to ask my doctor, because she(gp) and he(neuro) already know I'm a hypochondriac and wouldn't take
take me seriously anyway. The reason I would like to do this kind of test is back 16 years ago when I was pregnant I had a mysterious low grade fever, that made me feel like crap. I also felt like my skin was burning hot. After I gave birth this crazy thing went away.

Since then, about once a year this mysterious illness comes back. I'll get a fever of 99.2 and it will stay for up to a month, along with the burning skin, and fatigue. Basically I feel like sleeping all the time. I've never told the doctors about this. I'm afraid too.

I don't know what to think, but I'd like to have a blood test while this is happening. Maybe it would show something. I know some people might say 99.2 isn't really a fever, but when my normal temp is 98.4, it is to me.

Anyways, I'm glad you're back and your doc is searching for answers.

I hope the "zoo" is under control!!

Renee

 

[ivancrazy]

Hi Kim-

The medication is Plaquenil. It's actually used to treat autoimmune disorders like rheumatoid arthritis or lupus and I guess the "non specific" ones, too.

I know others have posted here about having elevated ANA levels, so I'm not sure what the connection is there. I wish I knew more about all of this stuff...it's so frustrating!

That's good that your twitching is much less than before. Mine is too, but now its all the other symptoms that are driving me crazy!

Take care!
Renae

 

[garymills]

Renae,

How/when did you symptoms first start? The reason I ask is because I suffer from a bunch of muscle/joint pain and it's driving me crazy. I have a 13 month old that I can no longer pick up because my shoulders ache afterwards. I could do that 1 month ago without any problems. I had an emg that the dr. said ruled out als, which is great...but doesn't make my other symptoms any better.

Finally, i have to ask if you ever took any of the antibiotics like cipro, levaquin, floxin or one of the other quinolones? I highly suspect that cipro started all this with me. I know people are probably getting tired of me asking the same question, but the quest for knowledge is never ending.

Good luck to you!
Gary

 

[ivancrazy]

Hi Renee-

Thanks for your reply. I'm sorry I had you worried that something bad had happened!

Yes, I hope the medication works too! I'm so sick of feeling like crap all the time!! I'm sure you can relate!

That's weird that you get that low grade fever thing every once in a while...you should definitely mention it to your doctor. It couldn't hurt, that's for sure!

Well, you take care of yourself out there and keep in touch! I'll keep you posted, too!! Thanks again for your concern!

Take care,
Renae

 

[ivancrazy]

Hi Gary-

I'm sorry to hear that you've been suffering with muscle/joint pain, too! My symptoms actually started over a year ago...last July. It all started with a bad episode of vertigo and then I started twitching, getting pins & needles and that kind of thing. The twitching has gotten better over time and I don't know why exactly...I am now taking Klonopin (which may be part of the reason its better). But then, a few months into it I started getting muscle aches and pains that seem to migrate. For a while my leg was really bothering me....to the point where I was in physical therapy and it still bothers me sometimes, but not as much. Lately, its been my wrists. I just generally never feel well and I'm very easily fatigued. I wouldn't say I can't do physical things, but I feel like when I do certain things ( if I overdo it), I regret it the next day. I don't know if this makes any sense. Its as though I have to be a lot more gentle to my body or something. So, I've been trying to do the exercises that the physical therapist has given me and walk because those are both pretty low impact things to do.

I don't recall being on any of those antibiotics that you spoke of...I did have a bad cold and sinus thing right before all of this happened, but I think I was just taking Claritin because my doctor thought it was allergies. I should ask my doctor, though, just to be sure because I really don't remember. After the vertigo...about a month later...I did take Flonase. Is that in the same category??

Well, I'm glad your emg was good. That's always a relief, but I know what you mean...that doesn't make your symptoms go away. I hear ya there...I've had so many tests and should feel so "reassured", but when you physically feel like crap...its hard to think that way.

Good luck to you!! I hope you're feeling better soon!
Renae

 

[MasturbatorSmegmaSn]

I am new to this group and have beem twitching for 7 weeks or so. I also have shoulder and right arm pain. The neuro. checked me out a month ago and found nothing wrong. He is not sure why I twich, my guess is that it is BFS. My EMG was normal, strength etc.. I am wondering if any of you experience increased twitching after exercise?{ I tend to over do it 4 or 5 days a week, like 2 hours a day..it helps keep me sane.} What helps this condition? Are there certain vitamins or minerals thought to be deficient? It is all so new and so very annoying. Everyone thinks I have made this up.

Thanks for any help.

Greata