Refresher: 11 Mo. of Twitching

InkedMama

Well-known member
Just a refresher- 11 months widespread twitcher Nov 1st!Lately my tongue feels like its not forming words correctly or it feels like its going to be HARD to say something! It always comes out fine but to me when I ponder I feel like my tongue is going to get stuck (NEVER DOES). I have totally become one with the widespread twitches. I had a bout before this round but it disappeared rather quickly and reappeared during pregnancy and remains after. The sad part is. I had a small remission after pregnancy for about a month- very little twitching then I got back on the Depo Provera shot (STRONG horomone birth control pill) and they kicked in full force. Now it seems I am focusing on my tongue etc. My question is...... And I am so DUMB for asking b/c I spoke to PALS with Bulbar als and ALL OF THEM SAID "THEY NEVER EXPERIENCED WIDESPREAD TWITCHING" and the "TWITCHING THEY HAVE ON THEIR TONGUE (bag of worms) they cannot feel."However, could I have limb onset als WITHOUT any WEAKNESS and now my tongue start to be affected? Is that possible? I dont really fear BULBAR because I've had this 11 months nearly. We all know the life span of bulbar! I just wonder if pure limb onset ALS could cause tongue issues to develope w/out any dead limbs or weakness in the body PERIOD.I have conquered my HEAVIEST FEARS and LOADS of this STUPID MALADY. I have had the EMG. 3 months into twitching. I have had the physical strength tests etc. I think this divorce and my new move with a new baby to a different state is getting my ANXIETY up therefore I am starting to "FOCUS ON MY EVERY MOVE".You know..People have things I would FREAK out about happen to them EVERY DAY. Actually I probably wouldnt freak out if I never read about ***. Example: A friend of mine had a tool box and was walking around the corner when his knee gave out. *hes 30* I would have freaked out..INSTEAD he laughed and said "OMG did you see that ..that sh*t was funny!".... I have to admit I was laughing..but if that had of been me OMG.....Anyhow..any remarks/answers etc about my question would be greatly appreciated. I did read on Anxietycentre.com that speech problems or percieved speech issues are totally related to ANXIETY!My EMG of 14 sticks of ten muscles was clean.I should rest assured eh?!
 
Yes, speech issues can be anxiety related. I've done what you say you are doing for years. Nobody has ever commented that my speech was slurred or weird.
 
There are enough clear cut things with bfs that you have to be really wanting to upset yourself to focus on things so subtle.I am prone to worry too so I know how this works. I have always had a latent fear of having something wrong with me so whenever I would trip a little (especially on carpet) I would note it in my head. I wouldn't freak out but would think it was weird and would hope it didn't signal a problem. I have tripped like this every now and then my whole life, so when the twitching began and I had a little trip I was so glad I knew this was nothing. When I say trip, I don't mean falling I just mean a slight stutter step because of thick carpet or my shoes etc.As a teacher of middle school students for the past 4 years, I can tell you that I definitely mispronounce words sometimes or slur a word because they love nothing more than to laugh at you and correct you. Last week, I had to read a story aloud to all six of my classes so I was reading for almost 4 hours of my day. I said one word wrong and a girl interrupted me to correct me. The next day she said, "teacher, are you going to speak correctly today." If I didn't know that people are constantly doing this, I would have been worried. But I know from listening to other and watching newcasters that everyone slips up in their speech. It's usually from having too much going on in your mind while trying to talk.
 

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