Recurring Neurological Sensations: Anxiety?

[pixielittlefirefly]

Hello AllNot been on here for a while, think I last posted about 4 months ago or so.Anyway, all my sensations started last July and came on after a health scare....I had to have a scan and this was 100% fine but then about a week later all these weird and wacky neurological sensations started.I saw various doctors who all attributed it to one thing.....anxiety!!I paid to see a neuro and he advised me that he was happy that whatever was causing my problems was not of a serious organic nature....he definatly ruled out ALS and said he could only discount MS with an MRI but could see no reason to order one of these as there would be other signs that would alert him to this.So, the neuro visit was January and we are now in May and I'm still in the same situation. I do not have the ALS worries any longer, funnily enough I got over this easily as it is actually very easily discounted, I suppose I do still have a lingering MS concern but I'm sure that by now I would be having more and more 'symptoms'.I have recently seen the doctor and have been signed off work for a month, I have been struggling with work and am hoping that a month off will allow me some time to regain some fitness, eat healthy and get myself right.The main problems I still have are the twitching and buzzing/vibrating. The twitching is mainly localised in my legs but I still do get all over jerks...my left eyelid has twitched non stop since last August. The buzzing is the thing that is really so annoying....whenever I mention it to the doctor that just look at me like I am mad, the sensation is so hard to explain but it is like the feeling you have when you hold a pulsing hose with pressured water in it, this sensation can strike anywhere but mainly seems to be in my fingers, legs and the bottom of my feet and sometimes can actually be felt in the pubic region Combined with all this is a constant sense of fatigue and a vague spaced out feeling, I seem to get more tension headaches as well...I also suffer from a percieved weakness of various limbs at different times but this is in no way clinical as I have 100% strength. I also seem to get pins and needles pretty constantly. None of these things really effect my day to day life in a huge way but it is having a huge psychological effect on me, I suppose the sensations are bad enough but whilst you have the 1% doubt lingering that something is being missed it just makes it so much worse.So, there you go, just an update. The funny thing is that whilst when I was in the middle of my ALS terror I just hoped that it was 'just' BFS the thing is that BFS is not really an easy option....OK, you won't die from it but it can certaintly drag your life down.I have another neuro appointment scheduled for next month so I will go along and may even demand an MRI just to try and overcome the MS thing once and for all....I'm sure I have BFS as the way it started (I'm sure a stressful event can trigger it) and also the sensations fit the same as so many on here....that said though, even though this condition is benign we should remember that it is a tricky thing to live with.

 

[fuzzyjuly]

nice to hear from you, thanks for the update. I am sure you are well, but I also believe that one should do what they need to do to gain peace of mind. The MRI may be only for that reason. Take Care and keep us posted.

 

[AllGoodHere]

I agree, there seems to be no end to the array of symptoms this syndrome can 'offer'; and it can be hard to deal with day to day. Even though I haven't been at this forum long, I have been struggling with these symptoms for years so I understand how it metamorphoses on you and you have to learn how to deal. The fatigue - since your muscles work 24/7 you're going to be a little tired sometimes but as long as they aren't keeping you up...? Are they disrupting your sleep? When I couldn't sleep I finally followed my neuro's advice and started with baby doses of gabapentin which does help. We tried other stuff first that totally wacked me out so I was resistant to doing meds. But the gaba has helped in this way and because I'm less tired I feel better in general. I meditate - it helps a lot with energy and getting things calmed down so I can do other stuff like conditioning. This but is not very practical in a lot of situations (sleeping, driving, etc) - but since I already knew how to meditate I just had to change my practice a bit for it to work for BFS/CFS and teach myself how to get into it more quickly.The pins and needles - and even sometimes the headaches - I attribute to muscles and ligaments rubbing and irritating nerves. Usually I can get rid of these with a light warm-up and stretching - once you figure out which movement counteracts the strange nerve feeling you can use it in milder ways and not look like a freak in public. By this I mean doing some outrageous stretch in the supermarket or scaring your coworkers.Time off is good. I hope you find some solutions and gain a path to better health. Don't worry about the strange 'you are from another world' looks and responses you get. Enjoy your life and leave they where they belong....