Danners2Dan
Member
Hi! I am just recovering from a pannic atack few minutes ago. Thanks a lot to Twin2, who helps me a lot with his comments.I would like to start a list of things that we should avoid, in order to do not fall in a panic/anxiety atack, as usually I do.There are my don'ts:1.- Test the fingers of both hands, looking for inability to move, to coordinate, etc: I used to play Piano, and when the fasc. started, and begun to test my fingers the whole day like if I were playing with a keyboard. It actually does not hurt if you are in front of a piano, but it does if you are driving to work, with tension in the forearm, and with the wirst in bad position. Now my wirst has some problems.2.- Test yourself for Babinsky/Hofmann reflex. Actually it does not hurt I think, but it does not help. The other day I try to test Babinsky reflex on my right foot, and I realise that my toes move!!!!!!!! yeah, it was horrible! Not the movement of my toes (from the second to the fifth, not the big toe), but the fact that I was sure I had positive Babinsky. I will explain it a little better. I do not have any reaction when I estimulate the palm of the foot, like the doctors do. But if I press (not only stimulate) the dorse of my foot, four of my toes go up a little (the big does not react like babinsky). And the four fingers remain up until I relase the pressure on the dorse. I thought it was a possitive babinsky and I did not sleep that night at all. At the next day I made my girlfriend ask to her neuro about that, and I was told it is normal. Please, do not make it at home!3.- Look for dystrophy on the hands. It is very time consuming. Thanks god I could not find good pictures of hand's dystrophy on google.4.- Make exercises for the calfs only for testing purpouses. If you do not carry it out properly, or too much, it will generate pain.5.- Do not look in youtube for twitching videos, and related. Do not look on Internet for reflex testing videos!!! You will find information that you do not need, as far as you are not a neurologist.6.- Do not look on Internet (google) about BFS. You will find information that is not always right. Like that the BFS is ONLY and NOTHING else than in muscles at rest. Twin2's EMG demonstrate it is not true for me.7.- Do not enter the following in google: "Do I have ALS". You will finish in a very good ALS's Forum, with real people suffering with this disturbing disease. It does not help to read the post there if you are BFS. Mainly because you will find a lot of syntomps, and you could start feeling it (not because you have als, but because many of these syntoms are normal in many many healthy people).8.- Do not go to a doctor more than 3 times asking the same. It is only disturbing, and you will get all the time the same answer that you will not believe anyway.9.- Do not make an stadistical analysis of the average age of ALS's onset. If you are below 35 it is very difficult that you get ALS, but you will still find two or three persons with it. If you do, please realise that it is normally ALS-4, a genetic one. And please realise that young people use much more (and better) Internet, and you will easely find them.Well, there are my DO NOT! I hope you will continue it.