Received BFS Diagnosis - Relief!

Hello, Friends,This morning, after months of dealing with twitches and cramps in my feet, I finally received the BFS diagnosis from a neurologist. Whew!Although I'd earlier had some tests done, courtesy of a responsive podiatrist, no one had offered a diagnosis, and two weeks ago I was terrified by my internist who, when I mentioned my symptoms, replied that these were symptoms of **S and that I should see a neurologist. (I hadn't lost muscle strength, although I have some tremors in my hands from the anxiety.) There followed some very anxious and dark days--I know many of you have had them, too--and a trip to the hospital today for an EMG and spinal MRI.I was fortunate to have a very competent neurologist who stuck me about 20 times and then "broke ranks" by choosing to tell me immediately (rather than waiting for the news to come through my doctor's office) that he'd found no pathology. When I asked him if stress could be causing my twitches, he responded that more likely was Benign Fasciculations Syndrome, which he described as fairly widespread in the population.So I think I got better advice from this support group than I did from my family doc! Other things will still be checked out, but this, of course, was my greatest fear. Thank you all for the insights and wisdom you've offered. I will keep this group in my thoughts and prayers.
 
My internist said I was getting older - gee thanks - as if that could explain it, it's not like anybody is getting younger. Great news that you got your diagnosis and that you have a good neuro. He said BFS was 'fairly widespread' in the population? As in lots of people or as in across all groups? Then why are GP's so ignorant of it? Reading here it seems that even some neurologists know little about it. Hmmm, well, it is a shame that you or any of us had to go through those dark days because few people are aware of pnhe/bfs/cfs. Hopefully people will find this forum which can help a little with getting the word out.
 

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