Rant: Non-Twitching Sensory Symptoms

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Bounce1892

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Hi all,Sorry but I just wanted a bit or a rant and to get some worries and thoughts off my chest.If you read my 1st post you will have seen that I do twitch and still do, 3 months (ish) on from when this all started, but not 24/7 anymore, each day yes but not to the point I remember all of what is twitching in a day. Anyway, I posted about the other non-twitching symptoms - sensory stuff. I know others get these but they are doing my driving me nuts, I can pretty much experience stuff that you can use any word to describe. Cold/hot/burning/prickly/tingling/stinging/zapping/buzzing etc etc.... For example, the last week my legs have been getting cold sensations, both can be described watery feeling, breezy or just dam cold, then in the same day they can heel hot, like burning, tingly burning in feet etc.. These sensations can be in my foot/feet, lower legs back and front, upper legs back and front, even my butt cheek has had it, and then a little above my right hip!!!!! Hands/arms have felt some of the cold tingly stuff too at times, just all over...I am trying to just get on etc but it is not easy when your legs feel like they are stinging the s**t out of you, itching almost, like they are sensitive to the touch of my trousers, socks and shoes.... Just really sucks and I hate it, particually when at work.....Sorry, just needed to put this out there....Hope you are all doing ok..Thanks,Ippo
 
It amazes me how much you sound like I did when I first came on here. I had every single sensation in my legs that you just listed, and most are gone, it will get better. I know its so hard to ignore, but that is really what you have to do, and give things a chance to improve, because they will, I promise. I never was to concerned with my twitches either, I knew I was having them, but the sensory stuff is what I was concerned with and it freaked me out badly. And I was saying "how can I ignore this" I couldnt even stand to get dressed because I hated the way clothes, shoes and socks felt up against my skin, it didnt really hurt but it sure didnt feel normal at all. You are welcome to send me a PM if you want to compare notes or if you just need to talk to someone who has had all of those sensations. I had them for months, and trying to describe them to others or even my neuro made me feel like a mad woman, but they were very real, not imagined, but they do improve.Take CareRobynn :D)
 
Ippo, I get a bunch of sensory stuff (as well as twitching) , and the longer I have BFS, the longer the list.OK the list includes and I think it is a lot to do with the nerve hyper-sensitivity thing ( dont get all of these all at the same time, thank god!) tremors ( including internal), shakes,numb limbs,zaps/shocks,hip buzzing (sensation like a mobile on vibrate) watery eyes, sneezing ( more than normal-itchy nose constantly), itchy scalp, hypersensitivity to insect bits/ anti-perspirant. sensitive teeth,tongue, burning sensation( flushing) in feet, legs, torso, fatigue, acute leg pain ( like I have been punched or jabbed in the leg very hard),heavy limb sensation, constant clearing of throat-like something is stuck in it. These are ones I recall. I am sure I will remember more later. Having said that twitching is the most constant, other stuff comes and goes. Also have IBS which I think is a part of all this as well.normal BFS stuff??? I guess??oh also 'pre-cramps' in legs- not full cramps but the beginnings of one that wont go away!cheersRodger
 
Hi Rodger,thanks for your reply, to be honest the twitching does not bother me so much anymore, it is this sensory rubbish... Odd thing is, just had my lunch break, having a bit of a walk round town seems to ease the sensations a little, it is when I am still they seem to be hightended.. I agree with the 'flushing' description For the burning, inhave had this also.. Do you ever get the cold feeling?Not sure if this is related but earlier in the summer, before this all began, I got bitten on my right calf by some insect, had a really bad reaction to it that took weeks to subside, but even now every few weeks I get an itchy spot/lump appear where the bit was??? Odd....Thanks.
 
You know its funny you should mention an insect bite.I live across the irish sea from you and I know that there arent any venomous insects in the UK and Ireland but i cant shake the thought that I was bitten too just before this happened.It was a wolf spider..pregnant and carrying her eggsac...(any spider experts out there?) My first sympoms were burning calves at rest but not in motion(totally gone now)I said it to the docs and they were like nah...I also had extensive blood work done with nothing amiss.I still have the bite mark 5 months on...I think that it is weird. There are so many possible causes that it is impossible to guess at times...I was bitten, I was in emotional turmoil, I was dieting, i was exercising heavily...the list is endless.I wish I could find out though.
 
Now my feet r stinging and the cold has lessened, pah!!Not a spider expert, but think it was a dirty horsefly that bit me, had one last yr that I reacted badly too also... Oddly I had a really bad bodily rash last ur that I had to take some strong meds for, it was an urticarial rash and the lump I get from this bite is like the weals I use to get from that rash.. They r like raised bumps that go clear if u pull the skin around them..Prob no link but.... Meh....Oh I hate this crap!!!!
 
Ippo - I used to have very weird sensory stuff - it has slacked off a lot. Movement also makes it go away (usually not always as when I had the inner ear flutter - like a bug was in there) - in which case you must agree that a lot of it has to do with circulation. It's the tension in your body - it doesn't allow good circulation and may even compress some nerves. Something to check out for yourself and try to combat with finding ways to get yourself to un-tense. DaRR & Ippo - BUGS! I live in bug-land (S. Florida) and it is not uncommon for people to get bit and suffer a bad infection often needing a course of strong antibiotics. Of course we have some pretty venomous bugs here but many of the common spiders and others can also cause an infection with their dirty little mouth parts. Many of the docs down here are very used to it and know it can cause tissue necrosis so they jump on it right away - it can go away by itself but it is not pretty (I speak from experience). So if you think getting a bug bite kicked off symptoms, and you still have trouble at the bite site, it just might be that you have a lingering infection? Did you show it to a dermatologist?
 
Hi ImOk,I did not see anyone about the bit, just smothered it in cream and took a few antihistimine pills.. It is odd how it still appears with an itch every now and then...What sort of sensory stuff did u experience??? I was thinking about circulation earlier, but then started thinking it could be bad like a clot or something... I know I know anxiety.. But these symptoms are real..Thanks
 
I never saw a dermo...i am sick of docs..im only going in for amputation from now on :LOL: Iv been to florida... jeeze its hot there... too hot for me...Orlando and a place called St Petersburg...it was nice...my first time in the states so I have fond memories of disneyland and the food and all the pretty girls that I never had the courage to talk to.My favourite thing was the lights and the smell of the air at dusk...it was so quintessentially American to me.I think that this thing has scrambled my brains..everything is a potential cause...I dunno if the spider bite could do this to me...it was only a wolfie after all.I was in Turkey and saw a spider the size of a small cat...(Rodger think of a huntsman that ate a huntsman) now THAT could do some damage.
 
Im in Limerick over on the west coast...from Belfast originally though.See I don't think it could because I was definitely bitten by a wolf spider and they are so so common, so common that they must have bitten many others and I have never seen a report or heard of anyone twitching because of their bite.
 
Limerick.. Never been that far west over there. My dad has a place in kenmare and i have to go to Belfast quite a bit for work, I do like Ireland... Not sure about how the spiders bite reacted but I did get bad reaction to the horsefly, but to caus this..... I dunno!
 
Kenmare...firmly in the people's republic of cork!Limerick isn't worth visiting unless you are fascinated by medeival history/angela's ashes or are looking for drugs or guns...I suppose its a bit more mid-west and far from the ideal of Atlantic Ireland.Where are you settled in the U.K? I lived in London for a spell...well I say London but who can afford that in their twenties?it was actually Fleet on the commuter belt in Hampshire..lovely place but a little conservative...I got the impression I was seen as a paddy or a mick... That is definately not the norm though ...pretty much everywhere else Ive visited in the U.K has nothing but love for the Irish.I don't think a horsefly could do this...but who knows?allergic reaction...one in a million horsefly...I guess we'll never know.
 
Not really into the history stuff so maybe I will give it a miss... :) I live in Ipswich but born and raised in London.. The Irish are a good bunch, always up for a laugh.. Every time I go to Belfast I end up being taken to the Crown Bar, u know it?
 
Ippo - don't remember a lot of the sensory stuff (or rather have put it out of my mind) - the weirdest ones were the bug in the ear thing (it felt like I had a moth in there) and the hot fluid on the foot thing (family teasing me about small dogs not liking me didn't help much). There was a lot of the feeling like bugs crawling on me stuff - once I actually had one and thought it was a sensory thing and my friend thought I was weird letting it crawl on me like that - what can I say - it gets hard to distinguish? But the majority are not around anymore except for the occasion bugs on skin one.A clot? everywhere? that's a bit much to imagine. Right now you are using your mind against yourself by thinking of all the things that could be wrong - you have to start using it for yourself. Finding a relaxation method is a start - think of it as internal stretching.I didn't mean that an insect bite caused your twitching - however many here noticed symptoms started after infections so there is a link for some. I have seen some nasty infections from insect bites (of course down here we have the brown recluse and black widow leading the venomous pack so .....). DaRR - yes, winter is the best time for northerners in Florida but we hate it when they clog up the roads mixing it up with the local bad drivers and transplants; it makes those of us trying to get to work and home miserable.
 

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