Questioning Work Staffed for MS/ALS

[TrisTrip]

Check this site at work... I though my work was checking this site!

OMG what was I employed to do?

I’ve not talked to you before because I’m a little new.

I live with the fear most of the time. I’m not worried about MS anymore, once I had my MRI (clean) those symptoms disappeared. I still fret about ALS though, because I twitch.

I can tell myself until I’m blue in the face that I’m not dying and don’t have ALS but there is that little bit of doubt, when things are at their worst, that enters my brain. I wish medical science could tell me, definitively, what I do have. Then maybe I could stop worrying.

Living with BFS is bad enough without wondering what you’re going to die from – I hate twitching but I’ll live through it.

You’ll be fine too

 

[Carrilicious]

Oh my goodness Jeff that's me to a tee. I just posted something regarding the worries of life (or death) in general.

I'm new at this so I feel like I'm never going to feel better completely. I think it's the benign part maybe if they could give you a complete medical diagnosis we would all feel better. I don't know all I know is I want to be happy for my kids and husband like i used to be. I have my good days. Yesterday was one and I though today would be even better. AAHH no wrong feel worse today than yesterday. !@#$ its frustrating.

 

[emmaengland]

Thank you so much for your ideas. I like the idea of printing out posts and carrying them around just in case. My own version of the Yuckmonster might be the Feck-head!

It's amazing, but I've hardly had any symptoms today. My right arm and leg feel normal(!) and I've had next to no twitching and tingliness. It's amazing. You've really helped me - again!

Sue - how did you get so nice? It's like hearing from a long lost friend. How are you by the way? You're forever being wise and dishing out advice. Is the *beep* and the fecking BFS done with you yet? I hope you are well, my friend.

17Wildcat17 - so glad tat you are doing better these days too. We've had a similar experience and it's great for me to know that you are on the up. It seems like I am too.

It's good to be back. You lot are a godsend.

Emma

 

[darric1]

Great to hear your feeling better. Sounds like you had a slight relapse. I've had a few of those also. It's easy to do if you start thinking about it. Just need to stay positive about it, but I know it's easier said than done.

 

[furballfury]

I think ristinaL91 hit it right on the head from where I'm at. The issue here is getting to why I feel destined to live a short, illness filled life. Only when I fully committed to a real effort at intensive therapy, did I even start driving at those issues. And once I did, my whole outlook on this thing, and my physical well-being, have started to turn around. It will be a long process, but I can feel the real changes starting.

Naming this thing sounds fun...mine won't pass the "filter" on here, but you get the drift ...

JG

 

[BT2NE1]

Hi Emma,

I'm an oldie here and haven't visited for quite some time but your question really caught my eye.

The fear will fade, but it takes some time. I have just gotten over a hot spot in my right bicep that lasted well over a month. It was one of those bothersome kinds, non-stop and aggressive sometimes making it hard to sleep just because of the motion. Two years ago that would've sent me into full-fledged panic mode. Anxiety would have ramped-up to the point of me not being able to function well. I remember notes and posts from Garym and Aaron really being a life-line back in those days.

But you know what, that bicep twitch didn't even PHASE me now. I completely ignored it, forgot about it, and let it do it's thing. Twitches are and were irrelevant and not a sign of anything serious. That is just the way it is. Hard to accept I know, but a true statement. Go look at Exercise forums and Fitness forums, there are literally hundreds of posts by people complaining about "spasms", "twitches", and "involuntary pulses"... they are not rare nor are they signs of a disease process. They are annoyances, but that is really the extent of it.

So, keep the faith. Your apprehension and fright will begin to lose it's edge over the long haul. Focus and energy will become less inward directed towards twitches and become more outwardly directed towards living life.

Steady as she goes...you will improve )

All the best,
Brian