Question: Possible Cancer Diagnosis

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mommyLDN

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**DO NOT READ IF YOU ARE PARANOID ABOUT CANCER** I'm not sure exactly why I'm posting this here but you guys have been my family for over a year now...and I really dont know where to go with this...So a couple of you know that I went to a doctor today to have a lump checked. It was not a breast lump. This is embarrassing but after everything that happened today I could care less who laughs at me for posting this. This lump is in my inner side of my left butt cheek...yeah I said it...its not on the outer skin..its inside the actual tissue...or muscle even...but its quite close to my rectom..I found this lump over 4 yrs ago..it was the size of a marble then but not hard like one and was somewhat moveable..I showed it to my family doc back then and she felt around it and pretty quickly said it was a lipoma (sp). She said they are totally benign fatty tumors and rarely ever require treatment and do not turn into cancer..and she told me not to worry and just forget about it..DONE :D) Fast forward to last week...I had been placed on an antibiotic for my tooth situation and it was causing some stomach issues...well these issues led to my butt hurting pretty bad..and I went to the local clinic to get something for my butt..They checked it out and I asked them to check that lump while they were already in the area...2 different docs checked it and neither one were comfortable calling it a lipoma and strongly urged me to go have it re-evaluated...I kept saying why..its a lipoma...it doesnt hurt..it isnt causing any issues..they both said they could not tell me whether it could be cancerous or not but they did not like the location and did think it was important to have it re-checked and possibly bi-opseed (sp).GREAT :rolleyes: So I guess I've been walking around for 4 and a half years with potential butt cancer and didnt even know it...which is my proof that I dont have health anxiety because at the moment I dont even feel scared..I feel *beep* (very angry) and back to when I first found it..I never gave it a second thought after my family doc said it was a lipoma and wouldnt turn into anything....If I had health anxiety I would have stressed over that lump till someone took it out....I'm very upset...but at the same time my mind is going back to things I read about para neoplastic sydrome and how PNH can be the preceding event before someone finds the tumor....What if this is the tumor... :rolleyes: Which for some reason leaves me feeling defeated but also a weird sense of relief..like aww ha..a reason for all the madness. I just dont feel fear yet...but if someone told me I may have MS or ALS I would lose my mind...hmmm, maybe I do have a touch of health anxiety :eek: So I saw a new GP today to have the lump checked...and she straight up said...that doesnt seem to me like a lipoma...I said is it cancer..she said I'm not sure..you need to see a colon/rectal specialist..GREAT :rolleyes: She did say it may be like a hernia from all my pregnancies because I'm so small..but she also said there was no way she was going to call it a lipoma and send me out the door.So thats it...I know nobody is really going to be able to say much...but I just needed to get all this off my chest."I just dont like where it is" :( Take careRobynn
 
Robynn,So sorry to hear about your day. I'm not going to pretend I'm a doctor and I don't know what it is. BUT, I can say that it would be very hard to believe that you've been walking around with cancer for 4 years. I had a tumor removed from my wrist after having it there for 4 years. My primary doc originally said it was a ganglion cyst. It was the size of a walnut by the time I went to have it removed after watching it grow for 4 years. The hand surgeon said that I needed to have it imaged but it was highly unlikely that it was cancerous because I had it for 4 years. It was benign. I hope your story is the same. I wish you nothing but the best in figuring this all out. Try to relax. It could very well be nothing to worry about. -Matt
 
mommy sorry to hear that and no its not at all a laughing matter on where it located. Now the best thing is to just get the test the done as soon as possible and find out what it is the earlier the better. I am not gonna say dont stres on it this and that cause no one will feel what your going through but I strongly believe it is nothing serious.Take care
 
Oh, Robynn, I am sorry that this appointment didn't turn out the way it could have, saying it's just a lipoma. I already told you I had several tumors and they all tuned out to be benign/cysts. So will you have an biopsie there? For me, they coult tell it's benign from ultrasound, but I guess that won't work "there". I send you a big hug over the ocean. As far as I've read this syndrome you are talking about that may cause PNH syndromes (actually neuromyotonia, not BFS) goes along with thymomaa,lymphomas and a certain type of lung cancer. Never read about colon cancer causing this.
 
I am pleased that your MDs are taking it seriously, but I would be shocked that it would be cancerous after 4 years. And if it was, it would be one incredibly slow growing cancer that hasn't spread, so good. I am so sorry if you may have to go through the biopsy, and all the associated fun; blood tests, waiting, etc.
 
If it didn't grow in 4 years it's not cancer. it can be anything, and paraneoplastic applies to lung, breast, ovarian and testicular cancer, that lump doesn't fit anything so it's likely not related to the other stuff you have. Good luck with the tests mommy.
 
Thanks alot u guys...I do appreciate the words of encouragement...and believe me, I can hear myself telling someone else the exact same things..For the most part the intelligent, and realistic part of my brain says if it was cancer..after 4 yrs.. I would be in far worse shape then I am now, just as you all stated...but the funny or not so funny thing about that is, out of all 3 of the docs that have felt this thing in the past couple weeks...I could not get one of them to say that to me....I found my self staring at them and their eyes, searching for some kind of reassurance but they really offered very little...Not trying to make it all sound so sad and hopeless, I just dont understand how doctors can stay so cold and distant...If I was a doctor I would do or say what I could to try to help keep my patient calm until test results came back...This whole BFS thing and now this...all of it has really opened my eyes to how little of compassion is left in the world...I'd like to think differently but I have just seen so little through all this.I'll keep u guys updated, and thanks again.Robynn
 
So sorry to hear about his Mommy. How soon can you get to the Dr. you need to see? We all can relate to "faster is better" when it comes to questions.
 
I was just about to type what everyone said "if it were cancerous, you'd know in 4 years". Either way, if you've had it for so long, it can't be too serious to your health or you would have known by now, even if it's some really slow growing tumor. That being said, I can totally see your concern, and I'm sending you many good thoughts that it turns out to be a cyst or some weird thing instead of the big c. Hang in there, and I'm thinking of you!!
 
I bet it's a cyst of some sort, i went through the lump craze a few years ago with one on my jaw line, the doctor said it could be anything (not very helpful) but said surgery is too risky due to the closeness to the facial nerve, i would risk having a permanent facial droop, so i let it go, hasn't grown so i think it's some fibrous tissue or something like that. Just a question why you want to get it removed after all this time? It's disturbing you or something?
 
Thanks Mwagner..I appreciate that :D) @Kstoruk..the doctor already said its not a cyst because of how it feels...She said it felt a bit like a rubber ball in there when she was examining it...Not sure if your question was directed at me or not..but I didnt say anything about having it removed..Although she did say that it may be pushing in a bit on my rectum and that may be why I have had issues going to the bathroom for the past year or so...nothing too major just somewhat..I'm not even sure if a cyst would or could hang out for 4 or 5 yrs like that could it?My next appointment is this Friday morning..I will update when I get home from that. Thanks again for the support, it is appreciated...Take care everyoneRobynn :D)
 
My doctor thought the tumor (schwannoma) in my wrist was a cyst and told me that for 4 years. So in his mind, it was a cyst and it had been there for 4 years. He never questioned that it might not be a cyst and told me that it would always be there until I had it drained or removed. My brother had a cyst removed from his back that had been there for a long time too. Not sure exactly how long but it was at least a couple years, probably longer.Don't know if that helps but my guess is yes, cysts can be there for 4 years, and even much longer. But I'm not doctor, just going off personal experiences.Hang in there Robynn, I'm sure you'll be OK. I'm sending my good luck vibes to you, here they are ~~~~~~~~. -Matt
 
Thanks alot Matt...I do think you all will end up being rite..just hard to hear it rite now with knowing I have a lump somewhere like that...I have spent the last two weeks being told there is no way to know for sure without having it bi opsied...and I'm wondering how painful that may be just because of where this is at. :eek: @MsMaverick, sorry I didnt see until just now that you had responded also..thank you for the support. I'll keep everyone updated.Take careRobynn :D)
 
lovely LeAnne, try not to stress about it (I know I know, look whos talking, right? LOL)> I Think if it was cancer, you'd be feeling miserable. Keep us updated. Backtracking to what you said about doctors; I absolutely agree. Everytime I go to my doctor I just have this fear that I can never get rid of. Most of the time their answers are short, brief and definately distant. I had that problem with my first two doctors. Let alone, i can tell by their body language that they really didn't care to listen to the smallest concerns that worried the hell out of me for weeks at a time. my current family doctor is better then my last experiences. I really couldn't accept that what I was going through with bfs is anxiety related, but she helped me accept that and explained it to be and gave me a hug before I left her office in tears. I cant even tell you how much that meant to me, it gave me a sence of care for once. Anyway, dont let it work up your worries, but keep us updated! I had a cyst the size of a ping pong ball right by my shoulder blade about 6 yrs ago they removed... i thought i was cancer because within a week it went from dime sized to three times that size! love you ~carmen
 
I'm just catching up on this one. Cancer in young people is generally always aggressive and invasive. In other words, it wouldn't just hang out for four years and not progress. I'm looking forward to hearing that all is well, my dear friend. Blessings, Suzi
 
Hey, I have a story but read everything and know ahead of time I'm saying it to keep your chin up. My friends mom had colorectal cancer and she had some thing on her for but for I would say less than a year. She got it biopsied and had it removed. That might sound scary but I remember doctors saying that colorectal cancer is extremely slow growing. They also told her that because it grew outward instead of inward it was really rare but good good in 2 ways. ! it wasn't spreading into her body, her body was keeping it balled up into a little sack and 2 that those types of cancer didn't even require follow up treatment like chemo or radiation because they have an extremely low incidence of returning due to the doctors being able to remove way outside the boundaries of where the tumor is. The other thing I remember was that they said it was a great and convinient trait that those types of tumors are slow growing because they present 90% of the time like a benign mass, so when one finally got biopsied it had usually been there a good while( a while being a year to 18 months). Hers was pretty good size and after they removed it it never came back, just like they told her, that was about 12 years ago. I know you london and I know some of the similarities in the story might scare you but don't be scared, i'm trying to say that either way your outcome is extremely positive even in the worst case scenario, so don't over analyze everything I've said.The truth is that almost all very slow, symmetrical masses located close to or on the skin are almost always benign. Get the biopsy and then you will know and feel better. I personally have several masses on my body close to or seemingly within the skin, similar to what your describing and I had them CT'd and they were all described as being some type of benign mass. I asked after that if they could tell me for sure it wasn't cancer and they said " not for sure without biopsy but we're 90% sure", I was scared all over again but for some reason never went further and got them biopsied. It's been 10 years and they are still there and no cancer. We are all getting older and our cells are constantly changing, there are many, many other benign masses that aren't lipomas and not cancer either. I'll be praying for you and though it's easier said than done, don't worry. contact me if you need me. Have peace.
 

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