Promised to Not Post Again - No Offense Given

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Nocturniscope

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I promised to myself to not post here anymore because I got a post deleted without any reason. I never offended anyone here, never lied.The only thing I did was post a article I found on medscape that worried me.I found a dent on the side of my left hand thenar eminence and became desperate thinking it was atrophy starting to show up (that muscle twitches when I poke it). Went to a neurologist (who also do emgs) and she said this could be atrophy or anatomical and that a EMG would tell the difference. I told her I already had 5 prior emgs and she said she would do another herself.The emg (14 muscles) report said that everything is completely normal. Went to talk to the doctor and she said my dent is anatomical. She said it is impossible to a wasted muscle to have normal MUPS with full interference pattern and no spontaneous activity.I told her about my crazy symptoms (widespread twitches, muscle aches, muscle fatigue, constant dull pain on my right index finger, tremors) and she said she would investigate it but that I have no signs of any kind of motor neuron disease.The twitches can be tolerated, but the pain/fatigue I get on my muscles then they twitch too much are very hard to ignore.I think I am one of the worst cases here on this forum. I have few twitches on my calves, my twitches don't stop when I contract the muscle, I can trigger twitches by stretching, I can trigger them on my thenar eminences by poking with my finger, I have muscle aches, I have muscle fatigue, I have finger movements that sometimes are constant for days, I have tremors on my right index finger and other muscles.The doctors say that my reflexes are hard to get and are very, very calm.I am 13 months on this thing and got 6 clean emgs on total with 4 different doctors. (1 on start, 2 with 5 months, 1 with 6 months, 1 with 10 months and 1 with 13 months). So if I can get clean emgs even having the strange symptoms I have. You that have twitches most on the calves, you that have no pain, no aching, no tremors should not be even thinking about ominous diseases anymore.
 
Sorry to hear all dear but i think u r unnecessary bcoming hyper anxious.I ,as a MD doc tell u,u cant have***with normal emgs and normal power.Dear,for ur informn lot many people in this forum have what u have[tremors,aches,fascics,fatigue etc,dont give much importance to calf twitching-calf muscles r like any other muscle].I agree ur intensity n frequency of symtoms may b little more.Try to not focus on ur body n indulge in some other activity ,divert ur conc from ur body.Dear dont waste a single min over the things which r not in our hands.ENJOY every precious movement of esteemed life.I reassure u again that u dont have any nasty and u take help of psychitrist to calm down ur anxiety which is alway asso with depression.I request u 2 go thro my post-dont b sad n fundamentals of happiness.I am sure u will like it n it will help u..........takecare.............baily.[while writing this ,had twitches in tongue,fingers, back and cant remember.............]
 
Hi noturnus,I do not know which article you posted but if it was the new one from October, I would not really wonder if it got deleted... Anyway, you are not alone - I hardly twitch in my calves, I would even say I cannot remember when I twitched there. I twitch in upper arms, trunk, face and even tongue and really not much, few times per day. It may sound good but I would rather twitch more and stay in the usuall BFS pattern..I too CAN induce fasciculations when I poke or grab my thenar muscles. Not everytime, but quite often. The twitching after stretching is something I think most of us here have.
 
Hi Nocturniscope, yes I remember the article, and yes I was one of those that got a bit up set. Probably a bit kee jerk in hind sight and I apologise for that.. I have moved on buddy, so hopefully you will too. The last thing we want is for people that need this forum, not to use it.As Baily says, I think your anxiety is not helping. You need to try and focus on others things in you life - goods things! As you said you have had all the testing, so you are 'OK'. The sooner you move down that path of...I am OK!. The sooner this will all pale into insignificance ( mentally & physically)cheersRodger
 
Nocturnus.... you now hold the world record for having the most EMG's done in a year. I had only 1 done 20 months ago. I can't believe you are still obsessing over this. Do you know your symptoms are just like mine? Dude... you have BFS or maybe if we call it Peripheral Nerve Hyperexcitabilty it will make you feel better. Please, please stop torturing yourself.
 
I have few twitches on my calves, my twitches don't stop when I contract the muscle, I can trigger twitches by stretching, I can trigger them on my thenar eminences by poking with my finger, I have muscle aches, I have muscle fatigue, I have finger movements that sometimes are constant for days, I have tremors on my right index finger and other muscles.I also rarely twitch in my calves. The arches of my feet twitch constantly and I get twitching in my thighs and forearms most frequently. My fingers also twitch. Often I can feel a twitching or constant nerve pulsing in my fingertips. I also have muscle fatigue/weakness. I also have many other sensory symptoms. I have had 2 EMGs (1 which picked up my fasciculations but no other problems) and 2 MRIs. I am 18 months into this battle, and I am feeling better mentally and physically.Physically, I am working out (in spite of my cramping and twitching) and eating well (no sugar, low fat, good fruits, vegetables, and lean meat). Mentally, I am working on ignoring my symptoms rather than dwelling on them and learning to believe my doctors and those on this site who remind me that I do not have a terrible disease. Neither do you.
 
The only thing that seems to help me is 900mg of oxycarbazepine daily. While I am taking this drug the twitches set down and I can have some peace. It is very hard to ignore my twitches because they are invicible (don't stop when I move my muscles) and my muscle is left with a terrible aching after they set down. When they are too crazy and I am feeling so much fatigue and pain I can't stop myself from going to another doctor and do another EMG.
 
Nocturnus... the thing you have to work on first is believing you don't ALS. Yes, you have very annoying condition that is scary but so do the rest of us here and we are all fine. We have been through the exact same thing. Once you convince yourself that you don't have ALS or some other deadly disease, you can work on dealing with the twitching. It took me a long time but I am finally getting there. You get to a point where you get sick of the worrying. You will get there. You know that you don't have ALS so start looking at that as a postiive. People live with much worse than BFS. Just look at all the children in the world with Leukemia who are stuck in hospitals. They have better attitudes than most of us. My point is that there are many, many things that go wrong with us health wise in life. But when the doctors are telling you it's benign you just have to take that and run with it. I know its a struggle but you can do it.
 
Nocturnus, listen to Barbie. She makes a lot of sense. You are NOT going to die from BFS. You have all the testing in the world done- all OK. I know it is tough, but you just have to work through this rough spot. You are OK- please start to believe that, and things will get better- guararanteed...take care- chin up!Rodger
 

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