Potential Drugs for BFS

[ooz3freetruth]

Hi everebody,I am a spanish guy, so sorry for my English....I have read the interesting forum and want to write a post about new potential drugs about BFS.There is a BFS approach based on antibodys and Potassium Channel. I have read it in the forum and in the website about PHN.There are two especific drugs which act in the potassium channels. The names are flupirtine and retigabine. I want to ask if somebody have tried to take it. Some of them have very good researching neurologists and maybe you had told about it with them.Thanks in advance!

 

[SmartMister]

Yes I have heard of Retigabine and it was one I was waiting to try called Ezogabine here to get approved since last August. The FDA here needed some more info and it was supposed to come out here early in 2011 and it still has not. Currently I am on a sodium channel blocker which follows the same concpept you are speaking of targeting messed up potassium and sodium channels called Lamictal. It seems to be working. I hope Ezogbine(Retigabine) gets released here because I do believe it can help this condition. Keep us posted if you try it and it works for you.Mary

 

[WindyCityGentleman]

Ok so who in Europe wants to try it first? Interesting, maybe it will help with our pain associated witch twitching?

 

[seadragonsovereign]

It looks like retigabine may be interesting to try, though even if FDA approves it, health plans may be slow to add it to their Tier 1 lists to make it cheap. I tried a sodium channel blocker, diltiazem, which was supposed to be of some help for cramping. It seemed to work at first, but in the end it was just another failed med to add to my long list. It WOULD be interesting if our European colleagues would try it out and report back. Please?

 

[HoneybeeBzzz]

never heard of these, but glad some of you have. Keep us posted. Anything that will calm the twitching is worth the try. I have to write these drug names down...

 

[ooz3freetruth]

I am taking Zebinix (Eslicarbazepina). It's not working very well for me. My neurologist believe that I have a neuropathy indepentely of the cramps....The tests shows a sensitive neuropathy...

 

[ooz3freetruth]

This link is about Peripheral nerve hyperexcitability (PNH) and Retigabine and Flupirtine. It is not easy for reading:How much of your family have this disorders?:The KCNQ gene family encodes five voltage-gated delayed rectifier K+ channels (KV7.1–5), which are mainly expressed in heart muscle (KV7.1), the central nervous system (KV7.2–5) and the inner ear (KV7.1, KV7.4)I have read that some of you are "working" with Dr. Hart. He is in this text.Peripheral nerve hyperexcitability (PNH) PNH (myokymia, neuromyotonia) is clinically characterized by a spontaneous and continuous muscle overactivity, which has been described as myokymia (undulating movements of distal skeletal muscle), fasciculations, cramps, or other symptoms, which are due to a hyperexcitability of peripheral motor neurons (Hart et al. 2002).